One more time

A new specialist, a new gathering of papers

This is getting old already . . . not to mention the seizure attacks around 11:00 pm last night. Or is it still tonight? I digress.

A different role, a place all too familiar

As the rest of our lives carry on with big news: hubby passed his FAA oral and flight exams! Just like that I am the wife of a pilot, again!

Alas the doldrums of daily routines still carry on

Finally getting to work in my own garden late tonight after devoting much of this past season to a community park and much of this weekend recovering from another setback, ugh. The blackberries are no more. Elderberries are up next!

It was 8 years ago that I got sick just 5 days after buying my first truck

Now it’s a few weeks after an upgrade in same . . . does this mean that I will get well and drive off with my beloved into the sunset? Oh how I can dream, right? That we did the right thing too.

One more time things come around again but really are not the same

For we can never go back only forward as each breath moves us on. I guess we want to be who we are now with the romanticized memories of what we once knew: the fullness of our present with the innocence and perhaps mistakes erased from our past? Yeah, just let it go.

Look to our Lord and His return to make things alright my Gentle Friend

He will return in glory, in judgement, in power, and the makings of everything better forever good. The best part: TIME will no longer be our measure but only to dwell . . . lain in the rapture of ultimate love for always.

Sounds wonderful to me. Do you know Him too? Oh I pray that you do and you will be there with me when the stuff of life moves on for good. May this music minister to your soul as we wander towards our heavenly home. JJ

He’s going to make it

My beloved is following his dream

To fly, fly away, up into the sky.

Tis nightfall before the test of his study

Everything in him has turned accordingly.

I knew from my past what to do

The helpmate must get behind her man.

Extra chores, some sacrifices and then

You will share the joy of your man realized.

For settling one’s fears yields a greater good

Don’t worry dear wife, he will share this with you.

Your life will be even better than ever, it’s true

Fall in love with his loves as you do him too.

The rewards will come naturally and exceed your dreams

Your own desires will be satisfied along the way too.

God’s plan is so good. Trust in it this night.

My beloved is going to become a private pilot

“Gooooo Steeeeve!” I love you!

UPDATE: And after rescheduling due to overcast skies, Steve became a private pilot on Tuesday, August 20, 2019. Congratulations my love! We celebrated with his first flight that Friday with my beloved as Pilot-in-Command and yours truly. Story to follow . . .

It’s just me, It’s just You

It’s just me Lord

Laying my burden at your feet of glory.

Tempted to pick it up again

To etch out stains left on my life, on my story.

Alas Your Word doth profess

You have it already in your plan:

The end, the redemption

The entire beginning from the end.

For the race is so hard

I admit day after day

When the lows speak loudest

And overshadow the sunnier ways.

It’s not as bad

I do proclaim overall

At least I can rest

And in the quiet, hear Your call.

What a gift to behold

Your goodness in so many forms

Let it not shadow under

These deviations from the norm.

For You know the score

The rise and fall of my failings, my pain

Holding my tears

Allowing me to rise out of bed once and again.

It’s just me in humanity

My weakness, shame, failings, doubt

Oh could You just take

My thorn, soon and forever pull it out?

Seems so simple

Yet I cry and too easily give in to worry

Will have to be You my Lord

Leading us onward, yes for Your glory.

When you search no more

Google and Google Scholar have gotten way too much traffic from me these past 8 years of battling serious illness. It’s time to spend less time there and more time dwelling in the presence of my Lord, Jesus Christ.

And so I shall.

Facebook has been my link to the world outside the comforting yet speechless walls of our home when there were no more folks to call on the phone. A recent relapse in convulsive episodes brings a state of mental fog afterwards. While not a true “post ictal” phase of an epileptic seizure, it is still a time when goal-directed activity (as I used to call it when working in my profession of occupational therapy) simply does not occur. Reading short phrases while lying in a passive state is about the best I can do. Well, except when my beloved is nearby and comforts me dearly. But I follow way too many disease-oriented groups on Facebook so spending time there is not really a break from life, a connection to the living, or even as entertaining as it once was. It’s time to spend less time there and more time dwelling in the presence of my Lord, Jesus Christ.

And so I shall.

Endless planning in my mind or on the calendar on my smart phone has increasingly become a source of frustration rather than relief or even hope. Focusing too much on the future brings tomorrow along too soon, robbing me of the gifts all around me in today. I simply don’t know when-or-if I will be a candidate for parathyroid surgery now that I have a diagnosis that explains so very much of what is wrong with my health. I simply have to wait for others to review my case and call me. Steve and I will adjust our schedules and lives accordingly. It’s time to spend less time there and more time dwelling in the presence of my Lord, Jesus Christ.

And so I shall.

Gardening has become both a hobby and source of identity when my role as an Occupational Therapist went away. I am grateful that a couple of months of better health in the spring allowed me to largely finish a rain garden project in my community as a Master Gardener. My volunteer work continues as the Assistant Editor of the quarterly publication, Canoe News (of the United States Canoe Association), and Editor of the monthly newsletter, Across the Fence (of the Master Gardeners of Purdue Extension, Allen County). Often these are difficult to get done; somehow with the Lord’s grace we do. But I am struggling to keep up with our own landscape that requires daily maintenance and some brute strength that is tough for me to do these days. The degenerative changes in my spine are not going to go away so what will I/we do about all of those flower and fruit and vegetable beds out there? Keep watering for now, pray about it, and realize that it’s probably time to spend less time there and more time dwelling in the presence of my Lord, Jesus Christ.

And so I shall.

Gee, suddenly I feel less stressed about things. Thank you Jesus. You care about these issues in my life and in those of the Gentle Readers out there too, holding every one in the palm of your hand, the love in your heart, with the promise of your return. Things will work out according to Your Divine plan for our lives. In this we can rest tonight.

And so we shall, eh?

He is out of the woods

As soon as we made it across the States to his hospital bed in that massive place

I was overcome with the smell of sickness, gloom, and death beeping along the layers of sheets and tubes.

Therein lain my dear brother, eyes swollen shut and breathing guided by the lifeline protruding from his mouth. Are you in there Mike?

Four days he would sleep, barely stirring when painful procedures ensued . . . then we knew: he is waking up! And out came the feeding tube with one sharp yank. Ouch!

It wasn’t long before he was demanding this and that, or so I am told, as the old cravings for smokes also awakened in his stiff, ace-wrapped frame. Let’s hope “the patch” holds him over.

I can hope for better days once he starts to move a little more yet I know better than that. He and his love/caregiver will have to figure out how to make it past this first major crisis since his stroke 6 years ago. Yet there were others with seizures from meds prescribed amiss.

Long term care sounds better to me but I am not the one in the driver’s seat even as my beloved and I returned home from our whirlwind Sunday visit. So glad there will be more days together, to come.

I saw her love for him and that was enough for me to let the “big sister syndrome” go. To just listen will be my way of showing support when she calls me now and then, returns my own.

Dear Mike, do find meaning in this broken phase of life: something to give yourself to and to care for the vessel albeit wrecked with pain and parts that don’t work right at all. Our Lord will sustain you and treasure you through the many hours alone when your body begins to spasm or shake. This I do know. He is there both inside and out of the woods you know . . .

I love you Mike. JJ

UPDATE: Mike woke up about 4 days later and was discharged home another 3 days thereafter, to be with his fiance. He was shaken up from not remembering those early days in the ICU yet is seeking a renewed direction for his life. This is good! Oh, and his insurance issues giving rise to medication issues and this medical crisis are largely resolved as well. Praise the Lord!