Whenever my Dad’s mom was facing a setback in her health she had one phrase regarding her progress, “I am getting there, slow but sure.” She might be in the hospital with an exceedingly painful case of shingles but her response was just the same. Surely this attitude endeared many of the medical staff to care for her just a little more. I sure appreciated her more when she reassured me with these words over the phone 300 miles away.
I have decided to borrow this attitude for myself. Perhaps it will help with another temporary setback as I recover from a recent biopsy of my thyroid. My neck hurts! The procedures and resulting discomfort have triggered more noxious symptoms including those related to hormone fluctuations: temperature dysregulation, blood sugar swings, occasional tearfulness, etc. But it had to be done: my third round of biopsies over the years at least this time was performed under conscious sedation. Gratefully I did not have to be awake when they pushed that very long needle into my neck. Eeeeek!
My recovery is coming along, slow but sure. Today I was able to be upright more hours than yesterday and hopefully I will be able to leave the house tomorrow for an appointment before my infusion of antibiotics in the afternoon. The latter continue 3x per week as they will very likely for the total of a year of IV ceftriaxone. We are trusting the Lord to provide for all of this; we have had to pay thousands per month ourselves for most of this year. With treatment by a naturopath and genetic coach, compounded medications and supplements, and every kind of co-pay there is, we should qualify for a medical tax deduction for the year without any problem!
At least now I am not failing unto death any more. What good would I be to anyone to allow my health to decline without a fight? I believe the Lord gave me a brain, five years, and an unusual provision of resources to get this job done so getter done I shall with my beloved Stevers leading the way. Slowly but surely this train will reach the proverbial “Station*” just in time someday with a little less baggage for having fought the good fight. And it looks like things may be looking up soon (provided the biopsy results indicate that the thyroid nodules are benign!). Regardless: God is good. All the time. God is good.
I hope that you know that to be true too, Gentle Reader. Feel free to tell me about it below . . .
As you may have read in the About Julie page of this blogsite, I treated for Chronic Lyme Disease early in the four years that I have been battling serious illness. I had not recovered my health four months after a bout with viral hepatitis and our Family Practice Physician convinced me and Steve that latent Lyme disease was keeping me sick. Then the story changed a few times . . .
Treatment for Lyme disease, Candida, mold exposure, mercury toxicity, gut parasites, and infected root-canaled teeth has still left me with the following symptoms four years later:
- Hours of daily convulsive episodes, every single day
- Painful shoulders, forearms, hips, neck, jaw, and more
- Ringing in my ears
- Multiple severe chemical, mold, and sound/light sensitivities
- Significant nutritional and hormonal deficiencies
- Episodic cognitive and emotional setbacks
- Periodic night terrors, nightmares, waking terrors
- Weakness and deconditioning
- Air hunger and chest compression symptoms
- Severely disrupted sleep/wake cycle
- Food sensitivities despite a restricted diet
- Gut dysbiosis
- Inability to consistently perform activities of daily living or work
- Social isolation
- Intolerance to treatment
So in other words, my life is kinda hellish a lot of the time! Today was no exception. Then right in the middle of the trauma there were tender encounters with the sweetest man on the face of the earth: my Stevers. We talked in between seizure attack episodes, he provided care when I could not move, and we made the most of a low-key day. It was the “same story, different day” around here. And something else happened too: I may have discovered another piece of this wretched illness mystery: Latent Lyme Disease can affect the gut which in turn can contribute to neurological complications much like the ones that have eluded all of our attempts at recovery.
No, it’s not systemic Candida as I suspected when I wrote my last Treatment Update. It’s called “Bell’s Palsy of the Gut,” a term coined by Lyme Literate Medical Doctor (LLMD) Virginia T. Sherr. “Gastrointestinal Lyme disease may cause gut paralysis and a wide range of diverse GI symptoms with the underlying etiology likewise missed by physicians,” states Dr. Sherr in the April 2006 issue of Practical Gastroenterology (p. 74). There are tests that can be performed to determine the presence of Borrelia burgdorferi along with other microbial pathogens transferred in tick saliva after a bite. In two weeks I will have a diagnostic procedure in which these tests could also be performed. Whoa Lord. Is that why I felt led to add an anti-microbial to my anemic treatment plan?
God is good. All the time. God is good. Today I felt led to add back a probiotic that I actually was able to tolerate this time. The new information about Lyme disease may explain the increasing gut inflammation this past year and my supremely negative response to a trial of a far-infrared light treatment to my abdomen. Or to any abdominal exam. Or to physical therapy to the hip flexors in the lower part of the abdominal wall. Or to certain foods. At any rate, a new door has opened and there are new possibilities for getting well. Perhaps it is time to re-visit the diagnosis of Lyme disease.
Stay tuned. This exquisitely wild roller coaster ride of recovery from serious illness is about to reach a new station. In the meantime, please pass a spoon and 1/2 of a carton of Siggis plain, grass-fed, organic and Icelandic yogurt. We’re going to get this thing right or keep screaming all the way to the bottom of the next hill until we do! (I told you that I worked in an amusement park one summer didn’t I? Yeah, Cedar Point is really cool!)