Just sitting at the table

 

My beloved opened the door

And my evening suddenly brightened,

Knowing he would be close with a listening ear

Makes handling the “nasty” less bad and more good afterwards.

I just don’t get used to

The evening ritual of torment

When my world goes dim from sickness

No matter the resting gone before, the mini successes (or so I thought?).

sitting, chair, upset, anguish, grieving, prison, torment, grief, hurt, person, woman, man

I was just sitting at the table

When my eyes pulled closed and shook

My head and neck followed next then I knew

There were just seconds to get lying down before all hell broke loose.

So I did run to the bedroom

Head turned to soften impact bedside

Eventually pulling the comforter over my broken frame

As the sputtering gave way to shouts of terror, gasping for air, legs drawn up too.

In waves the torment continued

Just when I thought I might cry for help

No words came when Steve came to my rescue

Trying to figure out how to get a remedy inside me as I twisted before his eyes.

Tis trauma for us both

When a Monday night isn’t anyway alright

For I will never accept that fifteen hundred of these nights

Are the way it should be forever, oh Lord deliver me please!

Try again the new this or that

Until we or the Docs get it right or even better

Til that night we will sit talking about our day eye to eye

Then ready ourselves for bed with a tender embrace as it should be.

Oh I know others have their trials

And I grieve for theirs with ours in there too

Let me know your need for prayers, Gentle Reader

Allow me to make good use of this time before the altar:  His throne of grace.

My Jesus cares for me, for you

He loves us and lives for our coming to Him

No matter the reason TRUST:  all will be new one day

Until then pray for me too, k?  I am tired from this ungentle cross at my tableside.

JJ

 

What would suit her best?

That funny bush with the orange berries

That I found tucked in a nursery corner

Was her birthday gift many decades ago

And became another treasure of uniqueness, much like that of her own.

Or the specimen discovered from the zoo

When she found the groundskeeper

And pleaded to give her a cutting

To grow with her collection of rare finds and vagabond species too.

Perhaps the devil’s tongue would be it

That bloomed in the closet each Winter

With a stink much worse than her smokes

And a tropical canopy outside in summer:  uniquely placed in the Midwest.

Surely she would be planted on the hill

Where the orange pavers from Woodstock days

Used to mark the side door to the home

Laden with so many memories and metal trash cans covering some of them too.

Oh I’ll bet she’s still out there somewhere

For her ashes got sprinkled into the earth

Forever mixed with the fruit of her hands

And beautiful gardens, a spa, some whimsy, all in squared borders of suburban fare.

Oh mom, how I miss you this day

As I tend to my own soil and dig

Preparing for Spring flowers and food

Adding amendments, turning it over again until everything crumbles just right.

One plant in particular we share

From your garden and mine:

Those “bee bush” perennial sedum

That you made me edge around in the hot summer sun by back-breaking hand!

Oh how you would love

To see me hail a sharpened spade

Defining my borders so clean with

Just one more bed added most years ’cause it’s also a passion for me borne from you.

Maybe the climbing Baffin rose

I will dedicate to you, Rose Anne:

A rambler, a bit wild yet beautiful

Yes this you shall be in my garden scrapbook come alive where you and me will always meet.

JJ

William Baffin, roses, fuscia, pink, red, climbing, vines, fence, garden

Fuscia William Baffin Climbing Roses

 

The Struggle is Real

Wake up and wait for the tempest beast to roar

Through my head, my tender frame — ah the pain:

Will I be able to hold back the waterfall in my loins

Will my body rage with tazoring if I try to rise to soon?

Welcome to my world, my day, my nightmare as Cooper said

Alice had black eye make-up unlike the darkness behind my lids

Held so tight, squeezed closed by puppet-like strings of wrath

Taunting my resolve leaving me nowhere to turn but to His Face.

My Jesus knows torture far worse and soon we will celebrate

How He came to save us from our hell by His bodily sacrifice

His ministry when hated, limited only by the perishing of His frame

Such a witness for me, for all to keep moving forward always.

No trial shall thwart the plans made for us in the womb

When our Lord crafted our days, the ups and the deep downs too —

He grieved yet promised to walk with us and deliver us one day

So we could have hope and a reason to reach for His gift above all.

So that is where I will turn:  the Cross of my Redeemer that lives

That delivers me from the angst of life without hope for alas it does:

One day this suffering will be gone and my story will be my cross

May it bring glory to the One who opens my eyes on my bed of becoming . . .

 

. . . for my just reward, for His purposes, for trusting when the struggle is real.

JJ

cross of jesus

You not Me

If my eyes can gaze upon you not me

To care, to serve, to pray, to worry some

Then maybe my burdens will soften a bit

For I have fixed my angst off my tender frame.

If I can plan my day to give more away

My time, talent, and resources to you not me

For a new challenge that maybe stretches me a bit

Then we shall both emerge stronger when tomorrow comes.

For what good is a man if he gains the whole world

And weakens his soul by burying it deep in self-pity

When we can travel together for awhile

You and I, carrying your bags then you lifting mine.

Seems like a better deal dontcha think

For the moments when I do return home to rest, to reflect

Will find new meaning in what it means to live

When the Lord dwelling in my heart spills over to you.

He is the One Who makes all these things possible

These ups, these downs, these trips veering off that away

We must but trust in His gracious plan, every detail

As He is the reason for you, for me, for glory and goodness too.

Do you see me?

I shook for almost 3 hours in that clinic recliner chair after a treatment that was supposed to help me.  Why did the nurse wait to answer the call light when I finally figured out what I needed to do?

treatment, recliner, hospital, bark a lounger, adjustable, IV infusion

I couldn’t speak properly but had to go to the bathroom greatly, knowing it would require transport via wheelchair and considerable physical assistance.  Why do I have to risk the episode worsening as I attempt to blurt it all out and even help operate the dang chair?

My left arm and leg were too weak and unstable as they seized with the rest of me so pivoting on a leg opposite the grab bar was the only way to land on the toilet dontcha know?  Why do I have to keep repeating that initiation of speech or movement makes the convulsions worse then be forced in a situation to have to do both anyways?

Each jolt repeated hundreds of times that night made the headache spike while wrenching my neck, spine, low back but alas I could do nothing to stop it or change its course.  Why did not voiding alleviate the symptoms like it had so many times before?

The infusions of fluids were supposed to help me treat the dysautonomia they said and address the dehydration but instead pushed me deeper into an exacerbation of my worst symptoms.  Why did not both doctors return my calls about my care that week, that day?

My beloved rescued me, drove me home, and helped me start the decontamination procedures to minimize the influence of exposures that could make the episode persist.  I feared falling in the shower after mumbling that I thought I could do it myself after he left.  Why do these heartaches keep happening to us?

I am still so very sick a year post IV antibiotics, genetic coaching, IV and compounded nutritional treatments, testing and treatments beyond that most experts would ever comprehend.  Why am I still at this level of strife FIVE YEARS down the road with no money for a big new direction, a possible cure?

The symptoms concerning me most recently are the ones where my cognition becomes dulled.  Why . . .  How in the world will we figure this out if my mind goes dim now?

I place this need to know “why” at the foot of my Lord’s cross who crafted this journey for me and my beloved for this time in our lives.  Thank you Jesus for Steve’s love.  I surrender my questions, my suffering, the thorns in my flesh, and the weakening of my mind to Your mighty hand with trust o’ God of the universe Who reigns!  Whether the battle is in the heavenlies or in my heart, my flesh, I let it all go to you now and ask for your covering my Jesus Christ.

God’s Word captures the submission of Job to the Lord in His time of suffering:

25 I know that my redeemer lives,
    and that in the end he will stand on the earth.
26 And after my skin has been destroyed,
    yet in my flesh I will see God;
27 I myself will see him
    with my own eyes—I, and not another. (Job 19)

“I know that you can do all things;
    no purpose of yours can be thwarted.
You asked, ‘Who is this that obscures my plans without knowledge?’
    Surely I spoke of things I did not understand,
    things too wonderful for me to know.

“You said, ‘Listen now, and I will speak;
    I will question you,
    and you shall answer me.’
My ears had heard of you
    but now my eyes have seen you.
Therefore I despise myself
    and repent in dust and ashes.” (Job 42)

Me too.  I trust that You always see me.  I will trust in you.  JJ