We had planned to be in Texas to see my hubby’s family this week for Thanksgiving but it was not to be due to “the illness.”
I had hoped to get some cleaning, shopping, planning, and cooking done days ago but things did not turn out that way. The cleaning got done at 3 o’clock Monday morning!
The special oatmeal dish that my hubby makes for me when I am recovering from seizures was to be off my special diet right now . . . until I had another episode rendering me too weak to consider anything else.
One afternoon my beloved was carrying me to the bathroom due to a neurological collapse episode and the next day we were working together after dark on winterizing our landscaping.
Alternate plans for a family gathering in Arkansas would have saved us a significant amount of driving but my In-laws decided not to change their plans; my hubby’s parents even chose not to add another “leg” onto their California-to-Texas-and-back trip as we had hoped and discussed.
Lying in bed each day this past weekend was broken up by a few meals in the kitchen, barely recovered from intractable back pain that sent me to the emergency room this past Monday.
My LLMD decided to treat my back with his chiropractic finesse despite my visit lasting 15+ minutes beyond when his timer went off. He never does that. I benefitted tremendously.
The new antibiotics prescribed to treat a co-infection of (chronic) Lyme disease has had the effect of increasing my most noxious symptoms instead of alleviating them. My private pay costs increased $45 each week instead of decreasing as my treatment days diminished from 3 to 2.
The compounding pharmacy is now able to make my prescribed mineral IV treatment after declining the ability to craft the prior prescription, saving us hundreds of dollars and incredible inconveniences travelling to a clinic 2-hours from home. My home health nurse reports that the new plan meets the criteria of her agency so we can schedule the start of bi-monthly infusions within a couple of weeks.
Two home infusions were cancelled during the transition from one antibiotic to two but my home health nurse was off sick those days that I usually received treatment anyways.
I sent an expedited check to make a payment for the medical bills on my credit card by the due date but the credit union never received it. Someone named “John” supposedly signed for it but it was never found. They reimbursed me for both the check and the “stop payment” fee.
I could go on . . .
If there is anything that I have learned over these 5 years of illness is that things are never as they should be. Well actually I knew that long before 2011 from my work with PEOPLE in healthcare. Peeps are finicky, change their minds, let you down, show up late or not at all, get sick, get on board with the program eventually, give into emotions over reason, love you anyways, or just plain old don’t care sometimes. In the end it’s not about the individuals really. It’s about where I am placing my trust.
A wise pastor (Bill Hybels of Willow Creek Community Church in Barrington, IL) once preached that we are to, “Trust God, Love People.” Yes indeed. Our ultimate hope for things turning out the way they should be should be in the person of Jesus Christ. We are to love everyone else as unto the Lord. Only He will never forsake us, never fail us, and deliver right on time every time.
Alrighty then. This rant is now over. It is just before sunrise and my nurse will be here in a few hours to administer my care. I seem past the bewitching hour of the nightly seizure attacks so I will probably try to get a nap of sorts. Two bags of antibiotics tire me out so I would have needed a long nappy-poo/recovery period afterwards anyways. I will trust that the Lord’s will will be served once again. So before I stop making any sense at all, I will end here.
It’s probably the way it should be? JJ