Just sitting at the table

 

My beloved opened the door

And my evening suddenly brightened,

Knowing he would be close with a listening ear

Makes handling the “nasty” less bad and more good afterwards.

I just don’t get used to

The evening ritual of torment

When my world goes dim from sickness

No matter the resting gone before, the mini successes (or so I thought?).

sitting, chair, upset, anguish, grieving, prison, torment, grief, hurt, person, woman, man

I was just sitting at the table

When my eyes pulled closed and shook

My head and neck followed next then I knew

There were just seconds to get lying down before all hell broke loose.

So I did run to the bedroom

Head turned to soften impact bedside

Eventually pulling the comforter over my broken frame

As the sputtering gave way to shouts of terror, gasping for air, legs drawn up too.

In waves the torment continued

Just when I thought I might cry for help

No words came when Steve came to my rescue

Trying to figure out how to get a remedy inside me as I twisted before his eyes.

Tis trauma for us both

When a Monday night isn’t anyway alright

For I will never accept that fifteen hundred of these nights

Are the way it should be forever, oh Lord deliver me please!

Try again the new this or that

Until we or the Docs get it right or even better

Til that night we will sit talking about our day eye to eye

Then ready ourselves for bed with a tender embrace as it should be.

Oh I know others have their trials

And I grieve for theirs with ours in there too

Let me know your need for prayers, Gentle Reader

Allow me to make good use of this time before the altar:  His throne of grace.

My Jesus cares for me, for you

He loves us and lives for our coming to Him

No matter the reason TRUST:  all will be new one day

Until then pray for me too, k?  I am tired from this ungentle cross at my tableside.

JJ

 

Vampire Diaries 2

hebrews, Hebrews 13:5, abandonment, promises of God, alone, loneliness, scripture, depression, sorrow, loss, illness, sickness, hope

Tears going up and down a lot this day

On the roller coaster of emotion I find myself on:

Help cometh x2 but test results won’t satisfy

As here I sit with my neck aching all through my brain.

I tried.  I really tried to figure it out and failed.

The symptoms that remain still taunt my peace

Leaving scars, leaving woes, leaving loss behind the hope

And yet my breath prevails so in and out I will also go today

To match the pull of the vampire’s teeth left in my chest wall.

The infusions continue instead of a long-desired break

The bank will love us less, the medical folk perhaps more

Whilst someone’s Mercedes payment will be made

And my saga continues on Big Box Store hamburger.

Hope always seems just one more day out there somewheres

Leaving me here beat up from this morning’s episode of torment

A snuggle with my husband got transformed into caregiving

And more hours were lost in the aftermath once again.

At least my dog seems to understand as she nudges her nose at the leash.  “Can’t we go now?” her soft brown eyes contend.

Relief might come in the mail soon

Or maybe not; it’s hard to tell

So I’ll keep calling on my Jesus for now

His calling card never leaves and never fails any of us anyways. JJ

 

 

A Plausible Case

As you may have read in the About Julie page of this blogsite, I treated for Chronic Lyme Disease early in the four years that I have been battling serious illness.  I had not recovered my health four months after a bout with viral hepatitis and our Family Practice Physician convinced me and Steve that latent Lyme disease was keeping me sick.  Then the story changed a few times . . .

Treatment for Lyme disease, Candida, mold exposure, mercury toxicity, gut parasites, and infected root-canaled teeth has still left me with the following symptoms four years later:

  • Hours of daily convulsive episodes, every single day
  • Headaches
  • Painful shoulders, forearms, hips, neck, jaw, and more
  • Ringing in my ears
  • Multiple severe chemical, mold, and sound/light sensitivities
  • Significant nutritional and hormonal deficiencies
  • Fatigue
  • Episodic cognitive and emotional setbacks
  • Periodic night terrors, nightmares, waking terrors
  • Weakness and deconditioning
  • Air hunger and chest compression symptoms
  • Neuropathies
  • Severely disrupted sleep/wake cycle
  • Food sensitivities despite a restricted diet
  • Gut dysbiosis
  • Inability to consistently perform activities of daily living or work
  • Social isolation
  • Intolerance to treatment

So in other words, my life is kinda hellish a lot of the time!  Today was no exception.  Then right in the middle of the trauma there were tender encounters with the sweetest man on the face of the earth:  my Stevers.  We talked in between seizure attack episodes, he provided care when I could not move, and we made the most of a low-key day.  It was the “same story, different day” around here.  And something else happened too:  I may have discovered another piece of this wretched illness mystery:  Latent Lyme Disease can affect the gut which in turn can contribute to neurological complications much like the ones that have eluded all of our attempts at recovery.

No, it’s not systemic Candida as I suspected when I wrote my last Treatment Update.  It’s called “Bell’s Palsy of the Gut,” a term coined by Lyme Literate Medical Doctor (LLMD) Virginia T. Sherr.  “Gastrointestinal Lyme disease may cause gut paralysis and a wide range of diverse GI symptoms with the underlying etiology likewise missed by physicians,” states Dr. Sherr in the April 2006 issue of Practical Gastroenterology (p. 74).  There are tests that can be performed to determine the presence of Borrelia burgdorferi along with other microbial pathogens  transferred in tick saliva after a bite.  In two weeks I will have a diagnostic procedure in which these tests could also be performed.  Whoa Lord.  Is that why I felt led to add an anti-microbial to my anemic treatment plan?

God is good.  All the time.  God is good.  Today I felt led to add back a probiotic that I actually was able to tolerate this time.  The new information about Lyme disease may explain the increasing gut inflammation this past year and my supremely negative response to a trial of a far-infrared light treatment to my abdomen.  Or to any abdominal exam.  Or to physical therapy to the hip flexors in the lower part of the abdominal wall.  Or to certain foods.  At any rate, a new door has opened and there are new possibilities for getting well.  Perhaps it is time to re-visit the diagnosis of Lyme disease.

Stay tuned.  This exquisitely wild roller coaster ride of recovery from serious illness is about to reach a new station.  In the meantime, please pass a spoon and 1/2 of a carton of Siggis plain, grass-fed, organic and Icelandic yogurt.  We’re going to get this thing right or keep screaming all the way to the bottom of the next hill until we do!  (I told you that I worked in an amusement park one summer didn’t I?  Yeah, Cedar Point is really cool!)

Cedar Point gatekeeper_wallpaper

 

Who will carry me?

It’s easy to bemoan the slide of morality in the United States recently escalated by the legalization of gay marriage.  What is natural to the human body has now been publicly adulterated by the unnatural.  The institution of marriage, which was created by God, has been changed by a few willful and unlawful men who did not even create the institution of marriage.  Alas another door has opened in our lives that will ultimately hurt everyone when his or her rainbow-colored eyes finally open to see it.  But most of us will never see the damage coming until it is too late . . .

When the truth, the pain of what we have done to ourselves is revealed, we will mourn.  Others will mourn the horror of what our complacency, our tolerance has produced.  Further, things will go horribly wrong even for those who believe that free living is right:  things that they could only imagine in a sex-slave murder mystery will come into their reality and hurt them too.  And those of us who have attempted to shine a light or sound an alarm on the moral decline will realize that what we have tried to do could never be enough to change unbridled evil.  Eventually, we all will grieve but for very different reasons.

So who will carry all of our tears?  Who will carry your grief and mine?  “Who” indeed.

boy and wheelbarrow, trees down, storm damage, carry, wheelbarrow, burdens, Lord carried me, Lord carried me, Footprints in the Sand

Chad Ryan | The Journal Gazette
Five-year old Braxton Davis joined the work crew 6.27.15 at Opechee Way and Nokomis Road, using his toy wheel barrow to remove leaves after a large tree fell in the front yard of his house at the Indian Village intersection.

The cute picture above denotes how we have trivialized the important issues of our day.  The picture above denotes how we have traded our core values and beliefs for a picture of life that feels good in the moment.  We have minimized the significance, the impact that our actions, our public statements, our private thoughts, the work of our hands can truly have in the larger picture of life.  These are not a small issues.  Eventually the magnitude and truth of who we are is always revealed.  Eventually a tiny wheel barrow carried by a child that is supposed to help us feel good about hundreds of thousands of dollars of storm damage will be crushed by the tsunami of horror headed our way.  Our world will never be the same for you and me beginning the events of June 26, 2015.

We cannot fix this.  No one individual, you or me, can carry us through to a better future. No one:  no President, no preacher, no crafty writer, no partner, no one can fix what is coming for us or carry our wheelbarrow of tears.  We are alone to face the consequences of these actions.  If we want the pain, the grief to stop then we will have to take our sorrow somewhere many of us have never gone before . . .  But where?

We understand the dilemma inside our own home too, in another way.  Last night was hell for me and Steve.  In the middle of 3 1/2 hours of  continuous convulsive episodes, I struggled to squeak out a request for him to carry me to the bathroom.  I was also in the middle of a 24-hour urine hormone test procedure so imagine my shame in trying to figure out what to do when my hands or legs were not working right.  Neurological collapse had settled in.  Gratefully as soon as he got me upright and helped me with a sip of water, I could use my hands well enough to position the urine cup myself when sitting on the toilet.  I was able to get the sample and dump it into the collection receptacle resting in the bottom of the tub next to the toilet.  Steve then helped me back to bed just in time for the next round of head-banging, wailing, tears, and terrible pain.  And so it went for the sixth night in a row.

I am grateful that when Steve is home, he is very capable of carrying me.  He has done so a hundred times.  He has held me through the ugliest of moments, fed me, clothed me, prayed, and artfully let his deft gallows humor fly at just the right moment in time when we both needed it!  Then there were the thousands of times when he was not there and I still needed help.  I needed to get to the bathroom but my legs would not move.  My throat was parched from cries of sheer angst, hyperventilation, sweats episodes, and chronic dehydration.  I wondered if my next breath would arrive or not.  My tummy growled for hours and I could do nothing to satisfy the hunger.  My brain became too numb to figure out what was in my ability to do or not anyways.  Oh the neck pain from the seizing!  Fearful thoughts, not my own, pushed into my mind by force of some electrical misfiring that goes with seizure activity.  And I cried deeply, feeling alone.

In those moments, Jesus Christ carries me (John 16:32).  I am not alone!  Jesus Christ carries and equips Steve over and over again for the tasks at hand in our marriage (1 Peter 4:10).  Jesus Christ will also carry those who do not know him whenever, wherever they finally reach out for help (Psalm 10:17).  Our God, Jesus Christ, is worthy of our reach since He created us out of love:  shown to all as He grieved bloody tears for our sorrow, our pain (John 11:35) that we endure in this life.  He existed before the time, space, and material that characterizes our lives (John 1:1-4) and is the very reason that we are here.  He loves us more than we can ever imagine and is always here for us, no matter what is going on around us (or within us!) (Matthew 28:20).

Further, we can never say that what freedoms we want, doubts we have about our lives, or the philosophy in our own minds will have anything to do with Who God is.  God, the triune Holy Spirit, Father, and Son (Jesus Christ), is separate from mankind and is not subject to the constraints of this earthly life.  Our ideas simply cannot match up. We will never fully understand Who He is with our finite minds so rejecting Him won’t get you anywhere worthwhile.  The answer to our questions, our unmet needs in life is belief.

Because we are finite, we must place our belief in that which is infinite:  true yesterday, today and tomorrow.  The only entity that is infinite is God.  He never changes.  He is perfect, all-knowing and we are not.  We can reach out to Him in with our tears, know that He cares (Psalm 139:17-18), know that He has our back (Jeremiah 29:11), and live on with hope for tomorrow amidst our trials, our heartache.  It follows then that our victory over the heartaches of this life is in Christ alone:  the Son of God.  Jesus Christ, manifest in His Word (the Bible), reflected in His creation, and felt through the longing inside our hearts, is not bound by our limited view of the world.  Jesus transcended this life when He died on the cross and rose from the dead.  Jesus Christ will “carry” each of us through the mysteries of life to a better place when we place our trust in Him (John 3:16).

Our Lord Jesus Christ made the difference for me and Steve last night and a hundred other horrible nights.  Jesus Christ will make the difference for you too in everything, Gentle Reader, whether you choose to believe in Him now or at another time.  But why wait?  Why not enjoy His transcendent peace, love, joy, hope, and more right now?

For the believer in Jesus Christ, it doesn’t really matter for our future, what is going on around us in the world right now.  We will live infinitely longer in heaven with God than the time it takes to complain about a Supreme Court decision.  Join me in doing what we can to love people, all people.  Reaffirm in our minds that we ultimately place our trust in only one place:  the Person of Jesus Christ.  He is the One Who matters most.  He is the One who will carry us from here into our blessed eternity with Him.  And that is a celebration worth waiting talking about!

But, dear friends, remember what the apostles of our Lord Jesus Christ foretold. 18 They said to you, “In the last times there will be scoffers who will follow their own ungodly desires.” 19 These are the people who divide you, who follow mere natural instincts and do not have the Spirit.

20 But you, dear friends, by building yourselves up in your most holy faith and praying in the Holy Spirit, 21 keep yourselves in God’s love as you wait for the mercy of our Lord Jesus Christ to bring you to eternal life.  (Jude 17-21)

The Lord is the one who carries me for sure.  What do you say we go together?

With love, JJ

The moments that matter

child with umbrella, boy, boy in the rain, blog about sorrow, overcoming sorrow, rainy day, hope beyoneWhen things are not right or even worse

We cry out to the air and wonder, “who is there?”

“Can anyone hear me on my bed of sorrow?”

“How long will this go on, how long?”

Oh the angst for enduring what simply should not be . . .

I could bemoan much pain in my heart this day:

From my spirit through my tender frame.

But why?  What will I gain by wallowing here?

As I listen to a friend who sounds like me over the waves,

I hear wisdom that comes with her years.

She doth declare that in her own time of prayer

The Lord spoke to her so gently.

In all of those times of suffering,

When surely no one cared He said,

“I was there with you.”

And her heart was full, no place untouched.

So today let’s heed this wisdom

Should we, too seek and hear His voice.

Don’t just want for the pain to end.

Reach into the moment to His love so grand.

Find people with mercy for the darkness of our lives

For we all have a burden to carry, each one.

And let us come together in prayer, in fellowship, in praise.

But most importantly

Kneel at the throne of grace often

In adoration of the Person who sees you always.

For Jesus loves you always.

And turn these into moments that matter for all time.

They will be sweet, and soften the burdens we will endure.

We can go on when held by His hand.

Yes, we can indeed.

JJ