High CBD Hemp Oil: 2nd UPDATE. PLEASE READ!

Yesterday I posted the following blog.  If you have already read this, scroll down to the bottom for the latest update as of Sunday, March 23, 2014.
I have been instructed in another forum to check the United State’s Drug Enforcement Administration (DEA) for the ruling on industrial hemp intended for human consumption.  High CBD hemp oil is not medical marijuana (MM), however it does contain trace amounts of THC:  a controlled, Schedule 1 substance.  Evidently the ruling in 2003 has not been significantly altered by recent case law (although I do not have access to more recent decisions to check this myself).  Below is the original ruling.  In non-MM states (or when out of compliance with state laws where MM is legal), the use of substances for human consumption that contains natural or synthetic THC at any level is considered ILLEGAL!  Below is an excerpt from the final rule.  Each of us will have to decide how we will handle the use of high CBD hemp oil whether or not you reside in a medical marijuana-legal state here in the United States.
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[DEA-206F] RIN 1117-AA55 Exemption From Control of Certain Industrial Products and Materials Derived From the Cannabis Plant AGENCY: Drug Enforcement Administration, Department of Justice. ACTION: Final rule. SUMMARY: The Drug Enforcement Administration (DEA) is adopting as final an interim rule exempting from control (i.e., exempting from all provisions of the Controlled Substances Act (CSA)) certain items derived from the cannabis plant and containing tetrahydrocannabinols (THC). Specifically, the interim rule exempted THC-containing industrial products, processed plant materials used to make such products, and animal feed mixtures, provided they are not used, or intended for use, for human consumption (and therefore cannot cause THC to enter the human body). DATES: This final rule becomes effective on April 21, 2003.
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Since I live in a State where products containing any amount of THC has not yet been legalized, I have some very important decisions to make.  I am in shock.
And my Lord, Jesus, is still on the throne.  Headed to prayer . . .
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Update Sunday, March 23, 2014
Just found the following ruling from a 9th Circuit (Federal) Court that would supersede the ruling of a federal agency such as the Drug Enforcement Agency:
The DEA’s Final Rules purport to regulate foodstuffs containing “natural and synthetic THC.” And so they can:  in keeping with the definitions of drugs controlled under Schedule I of the CSA, the Final Rules can regulate foodstuffs containing natural THC if it is contained within marijuana, and can regulate synthetic THC of any kind.   But they cannot regulate naturally-occurring THC not contained within or derived from marijuana-i.e., non-psychoactive hemp products-because non-psychoactive hemp is not included in Schedule I. The DEA has no authority to regulate drugs that are not scheduled, and it has not followed procedures required to schedule a substance. The DEA’s definition of “THC” contravenes the unambiguously expressed intent of Congress in the CSA and cannot be upheld.   DEA-205F and DEA-206F are thus scheduling actions that would place non-psychoactive hemp in Schedule I for the first time.   In promulgating the Final Rules, the DEA did not follow the procedures in §§ 811(a) and 812(b) of the CSA required for scheduling.   The amendments to 21 C.F.R. § 1308.11(d)(27) that make THC applicable to all parts of the Cannabis plant are therefore void.   We grant Appellants’ petition and permanently enjoin enforcement of the Final Rules with respect to non-psychoactive hemp or products containing it.
So as of this date, in the interest of Gentle Readers in all 50 states (where marijuana is legal and where it is not), the tide is moving back towards my original statements:  high CBD hemp oil (containing trace amounts of naturally-occurring THC for synergistic benefits) is available in all 50 states.  I have a few follow up calls to make to ensure that my statements here are accurate.
So exciting.  Please forgive the confusion.  Trusting the Lord in all that He will direct my paths for His glory alone.  (Proverbs 3:5-6)

Flowers for Algernon?

Flowers for Algernon

Another temporary setback in my health tonight ended by a couple of drops of tea tree oil masking the noxious scent of perfume.  I don’t do perfume very well and am grateful for this suggestion of a friend familiar with essential oils.  Thank you Lord for Cindy and tea tree oil!

Sigh.  How am I supposed to be around people when the scent of any products they might wear with fragrances can trigger seizures?  I feel like a prisoner in my own home.  If I linger away from my cocoon then I am at risk.  And if a guest visits our home not wearing perfume but carrying a coat or wearing clothing scented from another day, BINGO.  I get sick.

I endured three major setbacks including last night and three other times this past week.  Setbacks that is, from significant improvements that came from taking high CBD hemp oil.  I was enjoying some sweet moments of near-normalcy!  At least the overall episodes are shorter.  I guess there is something else going on that is preventing the treatment from holding . . . .

Is it diet?  How can it be when consuming a strict Candida, mold-free, and low oxalate diet?  Could it be methylation or residual biotoxin illness issues?  Perhaps and I’ll be pursuing these at a new clinic next week.  Is neuro-Lyme the culprit after all and I need to get back into antibiotic therapy?  The Rife machine made me worse.  I’m not so sure about Lyme disease anymore as my genetic markers are more significant for mold illness than Lyme disease.  Still:  who knows?

In the 1966 novel Flowers for Algernon, Daniel Keyes portrays a mentally disabled man who gains intelligence after being selected for an experimental brain surgery.  The surgery was shown to be successful in a laboratory rat whose intelligence increases 3x after the procedure.  Charlie, the main character, undergoes the procedure himself as the story follows him from his menial janitorial position to falling in love with one of the teachers at the school in which he works.  Charlie quits his job about the time that the rat begins to decline.  The improvements did not last.  Charlie buries his little friend in a cheese box in the backyard near the close of the story.

I worked on the set of the stage play of Flowers for Algernon at my high school.  The sorrow of the scene pictured above when played out even by a wiry teenager was very emotional for all of us backstage.  I will never forget it.  For me it represented finding hope then moving forward in life with new skills and possibilities.  My life was already very painful at age 15.  The story touched my heart as we brought it to life for our peers and parents.  My tears had no where to go as I stood in the dark backstage, waiting to bring out props for the next scene.  When I got home the lockdown continued in the chaotic and unsafe environment of my childhood.  My sorrow was locked away for many years.  After much healing and decades of living, the Lord brought back this particular story to mind recently with the frustration of the illness that I am enduring:  I came upon a reason to have hope from seizures only to have that hope dashed against the wall.  Again.  It feels like death.

Sadness fills my eyes.  Of course I want to be well.  Every time I grasp for air, stabilize my neck for fear of my head breaking off, emit some guttural utterance from the forceful involuntary movements of every appendage in rotation or unison from a seizure attack I become very aware that I could die from them.  I stare blankly into space or hold my eyes closed to keep the room from moving.  Keeping my eyes open brings dizziness and nausea; keeping my eyes closed brings increased fear and a lost sense of time.  While still awake I sometimes can talk.  The words are strained and speaking (like trying to move) runs the risk of exacerbating the attacks further.  If the episode goes on too long then neurological collapse follows.  I either have to lie motionless until function returns or my beloved Steve transfers me out of bed and carries me to the bathroom or bed.  This more severe level of seizure occurs late at night when he needs to be getting ready for bed to be able to work the next morning.  It’s my private hell.  It’s his private hell.  It’s the private hell on earth that is our burden to endure at this time.  (See my non-epileptic seizure video for more information.)

To see a loved one losing the battle over illness, over injury is one of life’s greatest sorrows.  Even for a Christian, experiencing it yourself will challenge everything you know about grace, endurance, meaning, and more.  Flowers for Algernon is a fictional tale about a rat and a man who found answers but those answers did not last.  The story touches a cord deep within me.  Oh to taste the goodness of life and have it taken away!  I have searched for goodness for a long time.  One of the great opportunities of this life is to seize the sweetness that abounds, hold it lightly as it shines for a time, then let it go gracefully when we must either move on or the script of our lives writes it off the page.  It must be the Lord’s plan but why?  Such answers often never come.  Moving on can be the reward for grieving well.  Then there’s the fruit of living with loss that is ongoing:  when the disappointment never really goes away.  This is when you really know who you are.  This is when you really know Whose you are.  It can be the time when you are truly ALIVE.

I am a child of the King held in the shadow of His wings, His loving arms just like I quoted yesterday in Psalm 139.  This night I bring forth an invitation for my Lord to:

23 Search me, God, and know my heart; test me and know my anxious thoughts. 24 See if there is any offensive way in me, and lead me in the way everlasting.

13 For you created my inmost being;
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
16 Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.

My Lord sees me!  Even so, this illness is one of my greatest mysteries from all of the events that have transpired in my life.  In the past my Lord has graced me with seeing some good come from the evil, some divine plans that have emerged from the chaos through which the deepest desires of my heart have come true.  I will hold onto His words that:

17 How precious to me are your thoughts, God!
How vast is the sum of them!
18 Were I to count them,
they would outnumber the grains of sand—
when I awake, I am still with you.

At every turn, with each moment of sorrow I no longer ask:

Where can I go from your Spirit?
Where can I flee from your presence?
If I go up to the heavens, you are there;
if I make my bed in the depths, you are there.

Indeed you have led me through it all.  I can trust from Psalm 142 that:

When my spirit grows faint within me,
it is you who watch over my way.

And as it reads in Psalm 100 we will all:

Know that the Lord is God.   It is he who made us, and we are his; we are his people, the sheep of his pasture.

We will:

Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name. For the Lord is good and his love endures forever; his faithfulness continues through all generations.

Rest will come for you, Gentle Reader and me too as we read in Psalm 121 that: 

The Lord watches over you—the Lord is your shade at your right hand; the sun will not harm you by day, nor the moon by night.

The Lord will keep you from all harm—he will watch over your life; the Lord will watch over your coming and going both now and forevermore.

With that I bid you good night.  I’ll be fine.  Join me in trusting the Lord that you will be too, eh?

Time for a change

From Family Practice Physician to Lyme Literate Medical Doctor, from Chiropractor to Obgyn, our medical doctor tries to do it all.  I have benefitted from his expertise yet I am still not well.  And when I saw the redness and exhaustion in his eyes during my appointment this evening I realized that he is not well either!

Everyone who sees this gifted physician knows his crazy schedule, his dedication to help everyone in his care, and his history of nearly dying a couple of years ago with his own debilitating illness.  We used to hear how his office conversion to the government mandated computer system was responsible for incredible stress and delays in appointment times.  For example, it was not unusual to call the office in the morning about an appointment scheduled for 10:00 a.m. and not be called in for my appointment until 4:00 p.m. or later.  Forget the ones scheduled after 3:30 p.m. as they were usually rescheduled.  For awhile about one-third of my appointments were re-scheduled, delaying receiving test results or reviewing the status of a particular medical condition for months.  Frustrating indeed.

Yet when there was an acute issue, the Doc was right on it.  When something new popped up I was sent to the hospital in another section of the medical park for labs or scans, held in the waiting room for results, and sometimes seen back in the office much later that night.  To be seen well into the evening was not an unusual occurrence.  My record was an appointment that started at 2:30 a.m.!  He had one more patient after me and had just received notice that one of his pregnant patients was going into labor.  He must have never gone home that night or morning!  Dedication had become insanity.  We talked about it during that visit.  He agreed.  I understand that some scheduling and office procedure changes were put in place for this new year.  As near as I can tell, the staff and Doc are ending their nights before midnight now.  Virtually the same story, different day.

I recently blogged about some important abnormal test results being misplaced for six months.  That has happened another time as well.  Tonight there was only enough time to go over about half of a detailed genetic cholesterol study.  He handed it to me and said, “here, you take this.”  Whaaat?  He thought the “high CBD hemp oil” that I reported was reducing the seizure attacks 40% was vitamins C, B, and D.  Er, no!  After correcting the computer’s voice recognition software two dozen times, I believe he understood what I was saying:  sitting there with my ventilation mask on to avoid seizure attacks from some mysterious exposure in the office.

Mysterious was the exposure until I asked one of the nurses about it.  I had asked before and a different nurse declined comment.  And yet tonight in her own fatigue, a long-time employee openly shared how their office has routine leaks in the ceiling throughout the summer.  The staff has complained about the musty smell and requested testing for mold spores.  Evidently the tests came back “negative.”  The nurses still battle sickness at work.  A friend of mine who is a patient there can detect the musty smell but I cannot.  I just get tic attacks sitting in the treatment room for 2 hours waiting for the Doc!  My worst episode lasted 2 1/2 hours NON-STOP began after midnight dominated by convulsions most of the time!  My husband came to pick me up around 4:00 a.m.!  I’m sure that exhaustion and stress were a factor being in the office so late that night but hey, I was sitting in a water damaged building to be seen by my doctor for mold illness!  Whaaaat?  Soon after that I started wearing a mask every visit!

I have learned so much from my brilliant Doctor.  He is a Christian man who really cares about his patients.  He has provided better care for me for six years here in this smaller Indiana town than I ever received in the large metropolitan area of Chicago.  When my health got significantly worse 2 1/2 years ago I hung in there with him, hopeful that we would find answers.  I was also unsuccessful finding another MD or clinic to address the intractable seizures, pain, etc.  Gratefully, the Lord has now led me to another clinic in Michigan with two physicians specializing in methylation issues and biotoxin (mold) illness, respectively.  After three phone consultations, extensive paperwork, and additional lab testing completed, my husband and I are preparing for my first in-person visit on March 24th.  We will stop at a lab near the clinic for additional blood work to better match Dr. Richie Shoemaker’s protocols for “Chronic Inflammatory Response Syndrome.”  My current MD and I have worked closely on Dr. Shoemaker’s protocol yet neither of us are officially trained; this led to using the wrong laboratories, incomplete test results when the samples were not processed correctly, and improper sequencing of the treatment plan.  Two very expensive medications from an out-of-state compounding pharmacy either did not work or made me much worse.  We tried!  The biotoxin illness Doc at the new clinic works closely with Dr. Shoemaker and is a Christian too.  I am encouraged.  Lyme disease is not the focus at the moment and that’s o.k.

So it’s time for a change.  I still have appointments on the books with my primary care physician as someone will need to monitor ongoing health issues not covered by the new clinic.  He has asked for copies of all of the testing and reports so I am happy to oblige.  With the Lord’s help I will continue tweaking the dose of high CBD hemp oil in hopes of reducing even further the seizure attacks and noxious symptoms that follow.  The Lord is guiding me step-by-step, including through the spiritual leadership of my beloved Steve.  I am so glad I heeded hubby’s advice and did not start seeing every expert who sounded good on the internet!  When moments are better for me, we celebrate and don’t think about the bad times.  We both see examples of how the Lord has used this season in our lives for His glory.  We are closer than ever, more in love than ever before and for that I am grateful.  I am closer to Christ than ever before as well knowing that He heard my truly desperate cries for help the night before I first started the CBD oil.  I was ready to die and it was not to be.  I was spared from further anguish and suffering, turning a corner to better things at last.

If you are suffering this day, this night:  do not give up!  There’s a blogger praying for you Gentle Reader.  More importantly the God Who created the universe knows your name, sees you, knows your pain, and gave his life so that one day your heartache would end.  Please draw near to Him and He will draw near to you.  He will never leave you or forsake you.  Everything will be worked together for good someday if you but call upon the Lord and let Him into your heart.  These statements are based upon His Word and promises that are true today and always.  The Great Physician will see you through, always my dear one.  Take care,  JJ

CBD Hemp Oil and Seizures

Personal Update:  I continue to experience a 40% overall improvement in seizure activity and related noxious symptoms just 16 days after starting high CBD hemp oil (HCBDHO).  After 2 1/2 years of serious complications to Lyme, mold, Candida and biotoxin illness:  I am amazed!

Here’s the research that I found that led me to discovering this LEGAL alternative to medical marijuana (more on that in a moment):

http://www.ncbi.nlm.nih.gov/pubmed/7413719

http://www.ncbi.nlm.nih.gov/pubmed/7028792

http://www.ncbi.nlm.nih.gov/pubmed/22696383

After seeing that there was authentic clinical research supporting the use of “cannabis” for epilepsy, even though I was diagnosed with non-epileptic seizures, I wondered how I might obtain it.  Purchasing medical marijuana when it’s not legal in your State is a complicated process and risky.  Some persons have obtained State I.D.’s in the state where MM is legal, set up post office boxes and even used the addresses of friends or family who live in the MM state.  I did not feel comfortable with this, even though I was suffering tremendously on a daily basis.

The story of Charlotte changed everything.  Charlotte was 5 years old when her parents became heartbroken over the hundreds of daily seizures their precious daughter had as part of Dravet’s syndrome.  Her father researched alternatives to the myriad of medications that were not working and found CBD medical marijuana.  Finding some to try was difficult even in Colorado where MM is legal since CBD is generally in concentrations too low to make a difference.  CBD can reduce the “high” and confound the benefits of THC found in MM; it was long ago cultivated out of most strains.  The parents found the Stanley brothers who had high CBD hemp, were willing to grow it for Charlotte, and were willing to sell it to them with the proper orders from two pediatricians as required in Colorado.   Charlotte’s seizures stopped for days after the first dose!  She is now gaining in all developmental milestones and reclaiming her young life much to the delight of her parents.  Other parents around the world are flocking to Colorado to get on the waiting list for Charlotte’s Web:  the high CBD cannabis.

I believe it is the Lord who allowed me to ask the question of whether or not CBD (cannabidiol, a type of cannibinoid) is available in other types of cannabis.  While medical marijuana and hemp are the same genus of cannabis but the species containing mostly THC is generally cannabis sativa and the species containing mostly CBD is generally cannabis indica.  From here I will call CBD/cannabis indica:  hemp.  Industrial Hemp is another term for non-psychoactive cannabis.

Industrial hemp is grown outside of the USA and imported for hemp fiber products, oil with elevated essential fatty acids, and more.  When cultivated for high CBD, hemp oil has more physical effects and can be sedative as it acts upon the endocannibinoid system of our cell walls.  There’s a lot of technical stuff here so I’ll save that for another post.  THE TAKE HOME MESSAGE is that you do not have to use MM to get the benefits of high CBD hemp oil:  HCBDHO can be extracted from hemp plants as a nutritional product and that product is LEGAL in all 50 of the United States of America!

Industrial Hemp is grown outside of the USA for fiber, cleaning up soil contamination, fuel, clothing, paper, oil high in essential fatty acids, and CBD oil.
Industrial Hemp is grown outside of the USA for fiber, cleaning up soil contamination, fuel, clothing, paper, oil high in essential fatty acids, and CBD oil.

From here I set out to figure out how a person takes HCBDHO, how is it dispensed, who sells the best products for me, and what companies are reputable.   I did not want a product from a start-up company with an inferior product laced with flavorings, fillers, and sweeteners.  I needed a concentration that would be effective and cost-effective as pure oils can be pricey.  I wanted a company who could answer my questions and had sound business practices to indicate that it would still be there for me next month and next year when I got well.  I believe I have found that product and that company.  (For more information and information on how to obtain a discount, contact me via the Facebook page:  www.facebook.com/seizurefreezone)

Today I just wanted to share that for persons with seizures and seizure-like episodes, there will be hope for many in the use of high CBD hemp oil.  It’s been here all along, running under the radar of controversial medical marijuana.  Who knew?  Now you do too!  Please share this information with others who might be interested!

P.S.  Relief for persons with seizures is just the beginning.  Just Google any of the key words written here “and” a medical condition or symptom (for example CBD and fibromyalgia). You just might be delighted with what you find!

P.P.S. Watch an informative video by Dr. Sanjay Gupta, a former White House Fellow under the Clinton Administration at:  http://www.youtube.com/watch?v=B4GUkzTnFG0   Remember to watch for the mentioning of CBD, THC, or ratios of the two together.   Of course, preparations with THC will require purchase in a State where MM is legal!  :J