Treatment Update: The Beasts Within

If you follow as many of the various functional medicine forums as I do, you probably have noticed the topic of parasites coming up more often these days.  In fact, there is a free “Parasite Summit” coming up in September.  This topic became a personal one for me within the past month.  Allow me to explain.

A friend and her sister were receiving some complex treatments for serious health issues that they have been battling most of their lives.  Shortly after their focus turned to testing and treatment remedies from outside the United States, my friend suggested I look into parasites as the potential cause of the seizure attacks I have been battling for over 5 years.  I looked into it.  Their provider would not be for me yet the topic launched me into some new research about the time my hubby and I were set to leave on an extended vacation.  Imagine realizing during your first day away from home that you have a new infection that requires attention IMMEDIATELY!  Yeah, well when your bum itches making you crazy insane, ya gotta fix it FAST!

So right before heading out to my River Bear’s kayaking nationals 2 States away, wifey-poo requests hubby-poo stop at a local drug store for an over-the-counter medication.  Thank the Lord he said yes!  My symptoms diminished within hours!  The problem was not a yeast infection but a nasty pinworm/parasite infestation!  How did I get it?  Who knows?!  Pinworms are highly contagious and you can pick them up almost anywhere.  The big shocker was that the seizure attacks virtually disappeared for the next 24 hours after treatment!  I wasn’t expecting that!  No episodes falling asleep or waking up; barely a little tic-zip broke through here or there.  What was going on?

Three weeks have now passed and I have repeated the OTC remedy a couple of times.  I found that clove essential oil with coconut oil provides some topical relief with the added benefit of killing the parasite eggs.  Who knew?  And now my Functional Medicine Doc is testing me a couple of different ways with a couple of different lab tests to see if we can capture all the critters that may be wreaking havoc “down there,” in my body, and brain.  Yes:  in my brain.  Parasites can move to any tissue in the body once they hit the bloodstream or lymphatic system.  My MRI and CT scans have been negative for typical markers that would suggest Central Nervous System involvement, however, allergies to contrast dyes have prevented use of same in diagnosis.  In the end it really doesn’t matter to me if tests show anything or not.  The idea of parasites just makes sense to me.

Simply stated, parasites develop a symbiotic relationship with their human “host.”  They can actually help the body by balancing blood sugars or harboring heavy metals/toxic chemicals (that would be toxic if left to circulate freely).  Parasites are not a good thingy though.  They can also harbor infectious elements (some have suggested Lyme disease bacteria) setting up resistance to treatment, to eradicating the infections.  And I thought it was the cysts and biofilms that were the biggest issues in treatment resistance!  As they continue to live in our bodies, they drain nutrition and mineral resources in addition to creating a host of negative symptoms that mimic a wide range of diseases.  Gut dysbiosis is a big example to which I can relate:  my Doc wonders if parasites are causing my belly pain which has not changed much after two different treatment protocols for Small Intestinal Bacterial Overgrowth.  He says that worms/flukes/bugs can favor the right lower quadrant and where the trouble lies for me.

But the Palo Alto Toxoplasmosis Serology Lab testing was negative.  Pinworms don’t typically cause neurological problems.  Stool testing hasn’t found anything in the past even when I put a WORM in the sample cup!  Oy vey!  Maybe these two new tests will yield something useful?  In the meantime, I am taking lots of anti-parasitic herbal formulas with a concoction of binders with gratitude that neither trigger seizure episodes as they have in the past.  Lord willing, I am going to get well!  Indeed there are parts of days where I feel some positive changes for the better as a result of these additions to my care.

If you have followed this blog for awhile then you know I am always looking for answers, for hope.  I do hope to get well and am working every day towards that goal.  Overriding everything however is this guiding principle:  that my true hope is in my Lord and Savior Jesus Christ who will one day make me whole, here with you or when we meet in heaven.  Nothing will change that.  He is gracious and good to me even on my worst of days.  I am so humbled to feel His presence on my bed of sickness as well as the moments where I can have a little fun here and there.  Speaking of fun, did I tell you about white water rafting 2 weeks ago?  Yeah, you heard me!

Stay tuned Gentle Reader.  Pictures and more stories to follow that will blow your socks off . . . or at least get them a little cold and wet!  The Snake River is about 60 degrees even in August dontcha know!  More on that one next time.  Gotta take some stuff and get to bed.

Take care, JJ

white water rafting, Snake River, white water, rapids, Class II, Class III, raft,trip, Mad River, living, in the moment, one day at a time, break, chronic illness, fun
Snake River, Jackson Hole, Wyoming

 

The decision to be tooth-less?

It’s not like I am planning another wedding or something.  I’ve done that twice and twice is enough!  If a couple of teeth are missing I just can’t smile or laugh really BIG so the void in my mouth is noticeable.  Not that anyone would be looking at my molars anyways!  I suppose there are the exceptions for some of you out there . . .

Then my beloved teased me that I might have trouble eating bacon and potato chips.  Not!  I grew up with a GIANT bag of Better Made potato chips on the refrigerator and a dad who had to have a generous helping every day plus ice cream.  When we visited his parents where they lived in the Irish Hills, between the view of the lake and the country kitchen was another HUGE bag of Better Made potato chips on the frig.  So if I have two opposing teeth anywhere in the yard then there will be Unsalted Kettle Chips too!  And bacon, just because we can.

Don’t you love Facebook?  Or maybe you hate Facebook?  Perhaps you would love to hate Facebook a little more since it can be such a “time eraser” extraordinaire.  Well anyways, I have joined many groups who have the answers to this or that ailment I have faced over the past few years.  Recently I joined the “Bottoms Up” group to learn more about digestive health, only to realize that I did not want pictures of worms in feces gracing the screen of my smart phone if I were to check it when dining out somewhere.  Yuck!  TMI for sure.  Delete!  The mercury, root canal, mold avoidance, Lyme disease, methylation, candida, etc. peeps have all greatly contributed to my vast brain swell of mixed anecdotal/psuedo research information.  There’s a cause and cure for everything right there in my newsfeed.  Even business opportunities, rudeness and meanness fit in where pretox/detox really should dwell.  But I digress.

These forums have been part of my lifeline too.  I have made some sweet friendships with gals who run in the same groups.  Members have helped shorten my learning curve and evaluate relevant research, news articles, and success stories.  Many folks really do get well!  Then they drop out of the group and the rest of us left behind try to figure it all out before we also leave the comfort of the group nest as well.  Hey, I won’t mind moving on if I can take a few happy FB Friends with me, eh?  Currently they are helping me navigate the potentially painful decision of whether or not to have two teeth with root canals extracted.  These puppies may be a source of years of discomfort from hidden infection, possibly contributing to some of my chronic health issues.  I am already in the preparation stage of mercury chelation which certainly wreaks havoc in one’s brain and body.  Gratefully my brilliant functional medicine Doc is leading the way along with acute spiritual discernment from the Lord and my beloved hubby.

This treatment crossroad is more confusing than some others.  Extensive testing has not revealed hard data on the need to extract two teeth (yet it just doesn’t seem like complications of a sinus infection or trigeminal nerve inflammation either).  Travel would be needed to a skilled biologic dentist who can meet my needs for extra TLC should we decide to proceed.  The requirement for all of this extensive screening became extremely clear this afternoon after a very bad appointment with a recommended, local oral surgeon in a musty office!  Bad, bad.  Steve and I prayed about all of this as we navigated a particularly rough evening for me tonight, placing our trust again in the Lord to guide us.  I’ll make a few more phone calls tomorrow.  At least a dear friend gave me the tip of a concoction with cloves to manage the moderate pain in my gums.  Cool beans.  It worked quite well!

So for now I’ll be eating bacon and potato chips on the right side of my mouth and cutting up other delicacies into small bits so as not to trigger seizure attacks or pain.  Thank the Lord for our VitaMix which chops, whips, cooks, and practically washes the dishes for you afterwards!  Like teeth, little things can mean a lot to a gal like me.  See how good my Jesus is:  providing for my every need and heart’s desire too.  Avocado-coconut smoothies anyone?

As I close I must profess that through it all God is good.  All the time.  God is good!  JJ

Toothless smile girl