31, 23, and 6:13

Never could I have ever imagined that I would spend the better part of the 5th decade of my life battling a serious illness. Then on cue from the Masterful Maestro, Jesus Christ, a few tweaks in 1 type of medication and 2 supplements began to turn things around. What has transpired seems miraculous to me.

31 symptoms aren’t as bad right now as they were when I wrote them down on December 29, 2018. A few more are gone.

23 triggers of sometimes violent, convulsive episodes have diminished in severity as they were when I wrote them down on December 29, 2018. A few more are gone. A few days per week I have none.

And in a matter of a few hours from now, at 6:13 a.m. to be exact, I will be able to board a plane all by myself to head back to Rochester, Minnesota and the Mayo Clinic. An aggressive schedule awaits me for my follow-up treatment and medical visits. I’ll stay in a special condominium that will accommodate any ongoing chemical sensitivities; I’ll even learn to Uber and Lyft. Yay!

I am hopeful that things will turn out alright. I am slowly getting stronger and pain levels are coming down with various therapies that are finally working! Master Gardening activities are ticking up and I have a sewing project that I work on in the hours when I am feeling better. Call it my transition back into life.

What a good feeling. Thank you Lord for seeing me through to this day. Thank you also to my beloved, Steve, who has faithfully walked with me during thousands of dark days and nights. I am so blessed. Restoration is coming at last and I am as humbled as I am grateful.

Lord, please hold my heart and my hand as I make this trip. Let’s go! JJ


And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast.

1 Peter 5:10

Prayer Request

Gathering medical records and other documents, making travel arrangements that accommodate my sensitivities, and putting together a timeline of the serious illness I have been battling for 8 1/2 years has been an emotional process for me. Just surviving to this day has been a traumatic experience. The blessings are there too yet not as clear right now with the hundreds of sheets of medical records behind me as I type this post.

I have endured so many dead ends and dashed dreams for recovery, physical damage from thousands of convulsive episodes, tens and tens of thousands of out-of-pocket expenses, and so many losses on every front of our lives. One truth is clear that I would not have survived this far without my faith in our Lord, Jesus Christ. He was my Rock when my breathing would not start in the darkness of night or my legs would not move to get me to the bathroom. Both my beloved Steve and my Lord carried me through it all to this moment in time.

Regardless of what has gone before us, Steve and I are pressing forward, hopeful for a good result at an upcoming consultation at the Mayo Clinic. For the first time since the onset of this serious illness, I get to see one of the top Doctors in neuroimmunology at THE top medical facility in the country. That is humbling. I am grateful.

Now is the time to pray for a cure to the daily convulsive episodes. Lord willing, I will be well! Thank you for your love and support, Gentle Reader. Love to you, JJ

The knife in the soup pot

Just when I thought I could get my act together and get a little cooking done, some absent-mindedness took over.

It’s not that I meant to cook the paring knife in my stock pot filled with bone broth.   Oh no, that would not enhance the flavor or nutrition at all! Tee hee.  It’s just how it goes sometimes.  It fell in after cutting up the one carrot allowed on my low oxalate diet and I was too foggy in the head to pull it out.  “I’ll do it later,” was my thinking and later came in about 5 hours.  Sish.

Ever have a day like this?  Sure, we all have.   You find the salt shaker in the frig or your boots in the car.  After travelling with TWO 15+ hour stretches  plus another 10+ hour jaunt these past 8 days, this issue was actually our “new normal!”  Where is the hair blow dryer?  Well it’s behind the driver’s seat in the truck of course, attached to an extension cord.  (And this saved everything when multiple locks froze on the camper more than once!)

Sometimes a little insanity is just what a person needs.  Keeps things fresh, right?  Here’s an extreme example that is my reality today.  When I start convulsing it might just be due to a need to clear some satanic warfare and not the mold residuals from my husband’s breath and trip to a known water-damaged building.  After all, when the convulsions continued this afternoon it wasn’t long before we discerned that he had already de-contaminated and more was going on here.  We probably had chatted a little too soon after the exposure to the mycotoxins I cannot tolerate.  Yet I love talking with my beloved River Bear!  It’s so easy to forget the insane myriad of details that must be followed  in the normalcy of everyday life actvities.

This time there was a battle going on.  Not just at stake was a fluke of mismatched tasks in following our protocol.  This was real.  We knew from other episodes that Satan has used this illness to temp us with divisiveness, to misplace anger and bitterness, to doubt God’s soveignty and more.  Praying through it, keeping me from harm in the process, citing scripture verses, and singing hymns set me free once again.  We deal with this NOT because I am not indwelt the Holy Spirit by the way.  I belong to Jesus.  The Lord will always be the victor for those who believe.  Even Satan cannot snatch us out of His hand.

Spiritual warfare can sway us from the hope we have in Jesus Christ. So that is the test here.  Yet I will never be moved.  (Ephesians 6:13)  No amount of hassle, suffering, horror, or weirdness will ever change my mind. Such is the power of faith in the One who will trash Satan and his demons into the lake of fire someday.  Jesus remains THE VICTOR on the throne and delivers us from evil.  I just get extra doses that strengthen this spiritual gift needed for the life crafted for me.  And then you get to read about it!

Hey thanks, Gentle Reader.  And be encouraged.   THERE IS NOTHING that can separate you from your Heavenly Father’s love either:  no matter what happens on this earth.  (Romans 8:38-39)  Come into a personal relationship, a closer relationship with Him through His Son and dwell in His house forever.  And don’t worry.   While things will never be perfect here, they will be in heaven.  No knives in the soup pot!  Just bliss, joy, peace, love, happiness, and the spiritual food of the angels as we sit at the feet of Jesus taking in His glory.

Oh yeah.   And the Bear who loves me will be there too.  So glad.  :j