Be true to who you are

This song will make the point of this post more clear.  Have fun as you listen to this upbeat tune from the Beach Boys!

<img class=”alignnone size-full wp-image-4432″ src=”https://justjuliewrites.files.wordpress.com/2015/12/beach-boys.jpg” alt=”Beach Boys” width=”480″ height=”360″

“Just like you would to your girl or guy.  Be true to your school.  Rah rah, shish boom bah!”  And Gentle Readers I submit that this also applies to US TOO!

In a recent trip to the Emergency Room (yeah same story, different day) I was received by the male nurse who did my initial evaluation less than a month ago.  I remembered the gooley, inappropriate look on his face as he handed me a hospital gown and asked me to change clothes then waited for me to do so right in front of him.  He had the gown opened just below his eye level.  His eyes were staring at my chest.  The expression on his face was blank.  And I didn’t buy it one bit.

I really don’t know how I had the presence of mind in the middle of non-stop convulsive episodes and a struggle to breathe to ask him for some privacy.  He paused for a moment then looked up at me.  “Of course,” he said or something similar and handed me the gown.  He pulled the hospital curtain and continued typing on the portable computer just beyond what is also called the “privacy curtain.”  My beloved husband, Steve, assisted me in changing my clothing thank you very much!  My dignity in an extreme moment of vulnerability was spared.  Thank you Lord.

I know that this nurse is a medical professional.  He has probably seen thousands of naked bodies and women a lot better endowed than yours truly.  In a time of crisis, the medical professional assists a patient in changing clothes as a part of the procedures.  Yeah but they are not to do so while acting in an unprofessional manner.  He was not going to help me in that moment unless I was dead!  Period!  The rest of that visit went more cordially and more appropriately.  I changed clothing on my own after the assessments and treatments were completed about four hours later, thank you very much.

Flash forward to this past Tuesday night.  Mr. un-Wonderful was working the p.m. shift again in the ER and begins his nursing evaluation.  I cringe.  This time it was a petite, blonde nurse co-worker who asked me to donn a hospital gown.  The dude was within arm’s reach of the gurney upon which I am lying.  I felt his eyes upon me.  In that moment, shaking violently with convulsive episodes and struggling to breathe, I was glad that I had been trained as an occupational therapist and muttered as much.  As such I know more ways to dress and undress than the average person with virtually any disability that you can imagine.  I laid the gown over my clothing, covering my personhood, and struggled then succeeded to doff my own clothing and get into the approved garb.  Steve might have helped some; I don’t know as my eyes were closed.  The nurse  wasn’t happy but I was.  And in doing my own thingy, I remained true to myself.

The rest of the ER visit went as they usually do.  After about 750 cc of fluids, IV Rocephin, and a shot of Morphine (my first ever!) I was feeling better.  While the second bag of IV fluids diminished the severity of the episodes, the tremulous part of the episodes didn’t stop until after the Rocephin.  And that improvement lasted for about a day with barely a tic attack here and there.  Yeah God!

Now I am in the aftermath of trying to decide what to do.  The prescription Keflex (same cephalosporin drug class as Rocephin) has begun irritating my stomach.  While there were findings of a urinary tract infection in the ER, the urine culture was negative.  There are still fewer and less intense episodes overall:  the hell that plagues my life and keeps me clinging to the Cross of Christ for hours every day.  My Doc says to stop the Keflex.  I held the herbal Biocidin (anti-microbial) after the ER visit to avoid an interaction with the new prescription drug.  What shall I do now?  Hmmmmmmm.

I know what my gut is telling me to do:  be true to myself.  I will pray for the Lord to guide my very wise husband and me.  I will strive to be respectful to those trying to care for me with as much courtesy as I can muster in any given situation while protecting my own privacy and integrity when it is all that I have.  In due time we will figure all of this out and be much better for the journey the Lord has allowed for His purposes and our good.  Of this I am still sure.

And if anyone tries to tear down my alma matter, Mott High School and the mighty Marauders, well then I will be “true to my school” as well.  “Go team,” I will shout on high!   Lord willing, we are going to win!  JJ

 

 

It Takes Time: My Wife Is Crazy!

Thankfully my beloved Steve never said this to me.  I wondered it myself many times though!

Check out this husband’s perspective  on mold and how it can affect your life.  You may search the words “mold” and “biotin illness” for more on this topic from Hope Beyond.

And hang in there fellow sojourner.  Praise the Lord that I am getting well!  JJ

http://moldrecovery.blogspot.com/2012/05/my-wife-is-crazy.html?m=1#.VmdYd4SFbzJ

True Love, He Says

1 Cor 13, 1 Corinthians 13, true love, love, husband, Christian, marriage, crisis, enduring, strengthening, wife, chronic illness, love through trials,

Looking into his eyes in the dim light this eve

Knowing how he carried me through the hour gone before,

I had to wince in disbelief then fall more deeply into the blue

He demonstrated his heart once again with eyes that shone on me once more.

How did I ever earn the affections of a heart so pure?

I wondered then left him sleeping, hoping to wind out what was left

As my evening had more hours to go, my To Do list already trashed

No matter the weakness of my days to discover that this part of living is best.

My love understands what it really means to care

When to be strong, to lie within reach, to call just to say, “hi;”

He slays the dragons out there by land and by sea

Then rescues this damsel as needed (no matter how many times)!

To say that I am grateful

Would be too tiny when I am humbled more than that:

A real man has chosen to love me forever

May the Lord bless us both for the journey:  true love magnificat.  JJ

The knife in the soup pot

Just when I thought I could get my act together and get a little cooking done, some absent-mindedness took over.

It’s not that I meant to cook the paring knife in my stock pot filled with bone broth.   Oh no, that would not enhance the flavor or nutrition at all! Tee hee.  It’s just how it goes sometimes.  It fell in after cutting up the one carrot allowed on my low oxalate diet and I was too foggy in the head to pull it out.  “I’ll do it later,” was my thinking and later came in about 5 hours.  Sish.

Ever have a day like this?  Sure, we all have.   You find the salt shaker in the frig or your boots in the car.  After travelling with TWO 15+ hour stretches  plus another 10+ hour jaunt these past 8 days, this issue was actually our “new normal!”  Where is the hair blow dryer?  Well it’s behind the driver’s seat in the truck of course, attached to an extension cord.  (And this saved everything when multiple locks froze on the camper more than once!)

Sometimes a little insanity is just what a person needs.  Keeps things fresh, right?  Here’s an extreme example that is my reality today.  When I start convulsing it might just be due to a need to clear some satanic warfare and not the mold residuals from my husband’s breath and trip to a known water-damaged building.  After all, when the convulsions continued this afternoon it wasn’t long before we discerned that he had already de-contaminated and more was going on here.  We probably had chatted a little too soon after the exposure to the mycotoxins I cannot tolerate.  Yet I love talking with my beloved River Bear!  It’s so easy to forget the insane myriad of details that must be followed  in the normalcy of everyday life actvities.

This time there was a battle going on.  Not just at stake was a fluke of mismatched tasks in following our protocol.  This was real.  We knew from other episodes that Satan has used this illness to temp us with divisiveness, to misplace anger and bitterness, to doubt God’s soveignty and more.  Praying through it, keeping me from harm in the process, citing scripture verses, and singing hymns set me free once again.  We deal with this NOT because I am not indwelt the Holy Spirit by the way.  I belong to Jesus.  The Lord will always be the victor for those who believe.  Even Satan cannot snatch us out of His hand.

Spiritual warfare can sway us from the hope we have in Jesus Christ. So that is the test here.  Yet I will never be moved.  (Ephesians 6:13)  No amount of hassle, suffering, horror, or weirdness will ever change my mind. Such is the power of faith in the One who will trash Satan and his demons into the lake of fire someday.  Jesus remains THE VICTOR on the throne and delivers us from evil.  I just get extra doses that strengthen this spiritual gift needed for the life crafted for me.  And then you get to read about it!

Hey thanks, Gentle Reader.  And be encouraged.   THERE IS NOTHING that can separate you from your Heavenly Father’s love either:  no matter what happens on this earth.  (Romans 8:38-39)  Come into a personal relationship, a closer relationship with Him through His Son and dwell in His house forever.  And don’t worry.   While things will never be perfect here, they will be in heaven.  No knives in the soup pot!  Just bliss, joy, peace, love, happiness, and the spiritual food of the angels as we sit at the feet of Jesus taking in His glory.

Oh yeah.   And the Bear who loves me will be there too.  So glad.  :j

Oh What A Night

What a date we had tonight.

Dinner:  Parkview Hospital 24-hour grill.

Movie:  HGTV on the ER Suite flat screen.

Drinks:  Bottled beverages and 1114 cc fluids for me.

And a whole lot of shaking going on:  3 hours of seizure attacks, non-stop.

It’s as I have heard it said that life is either a daring adventure or nothing at all.

I am feeling much better now.  I love IV fluids!  (Weird, I know.)

We are sleepy!