Treatment Update: The Beasts Within

If you follow as many of the various functional medicine forums as I do, you probably have noticed the topic of parasites coming up more often these days.  In fact, there is a free “Parasite Summit” coming up in September.  This topic became a personal one for me within the past month.  Allow me to explain.

A friend and her sister were receiving some complex treatments for serious health issues that they have been battling most of their lives.  Shortly after their focus turned to testing and treatment remedies from outside the United States, my friend suggested I look into parasites as the potential cause of the seizure attacks I have been battling for over 5 years.  I looked into it.  Their provider would not be for me yet the topic launched me into some new research about the time my hubby and I were set to leave on an extended vacation.  Imagine realizing during your first day away from home that you have a new infection that requires attention IMMEDIATELY!  Yeah, well when your bum itches making you crazy insane, ya gotta fix it FAST!

So right before heading out to my River Bear’s kayaking nationals 2 States away, wifey-poo requests hubby-poo stop at a local drug store for an over-the-counter medication.  Thank the Lord he said yes!  My symptoms diminished within hours!  The problem was not a yeast infection but a nasty pinworm/parasite infestation!  How did I get it?  Who knows?!  Pinworms are highly contagious and you can pick them up almost anywhere.  The big shocker was that the seizure attacks virtually disappeared for the next 24 hours after treatment!  I wasn’t expecting that!  No episodes falling asleep or waking up; barely a little tic-zip broke through here or there.  What was going on?

Three weeks have now passed and I have repeated the OTC remedy a couple of times.  I found that clove essential oil with coconut oil provides some topical relief with the added benefit of killing the parasite eggs.  Who knew?  And now my Functional Medicine Doc is testing me a couple of different ways with a couple of different lab tests to see if we can capture all the critters that may be wreaking havoc “down there,” in my body, and brain.  Yes:  in my brain.  Parasites can move to any tissue in the body once they hit the bloodstream or lymphatic system.  My MRI and CT scans have been negative for typical markers that would suggest Central Nervous System involvement, however, allergies to contrast dyes have prevented use of same in diagnosis.  In the end it really doesn’t matter to me if tests show anything or not.  The idea of parasites just makes sense to me.

Simply stated, parasites develop a symbiotic relationship with their human “host.”  They can actually help the body by balancing blood sugars or harboring heavy metals/toxic chemicals (that would be toxic if left to circulate freely).  Parasites are not a good thingy though.  They can also harbor infectious elements (some have suggested Lyme disease bacteria) setting up resistance to treatment, to eradicating the infections.  And I thought it was the cysts and biofilms that were the biggest issues in treatment resistance!  As they continue to live in our bodies, they drain nutrition and mineral resources in addition to creating a host of negative symptoms that mimic a wide range of diseases.  Gut dysbiosis is a big example to which I can relate:  my Doc wonders if parasites are causing my belly pain which has not changed much after two different treatment protocols for Small Intestinal Bacterial Overgrowth.  He says that worms/flukes/bugs can favor the right lower quadrant and where the trouble lies for me.

But the Palo Alto Toxoplasmosis Serology Lab testing was negative.  Pinworms don’t typically cause neurological problems.  Stool testing hasn’t found anything in the past even when I put a WORM in the sample cup!  Oy vey!  Maybe these two new tests will yield something useful?  In the meantime, I am taking lots of anti-parasitic herbal formulas with a concoction of binders with gratitude that neither trigger seizure episodes as they have in the past.  Lord willing, I am going to get well!  Indeed there are parts of days where I feel some positive changes for the better as a result of these additions to my care.

If you have followed this blog for awhile then you know I am always looking for answers, for hope.  I do hope to get well and am working every day towards that goal.  Overriding everything however is this guiding principle:  that my true hope is in my Lord and Savior Jesus Christ who will one day make me whole, here with you or when we meet in heaven.  Nothing will change that.  He is gracious and good to me even on my worst of days.  I am so humbled to feel His presence on my bed of sickness as well as the moments where I can have a little fun here and there.  Speaking of fun, did I tell you about white water rafting 2 weeks ago?  Yeah, you heard me!

Stay tuned Gentle Reader.  Pictures and more stories to follow that will blow your socks off . . . or at least get them a little cold and wet!  The Snake River is about 60 degrees even in August dontcha know!  More on that one next time.  Gotta take some stuff and get to bed.

Take care, JJ

white water rafting, Snake River, white water, rapids, Class II, Class III, raft,trip, Mad River, living, in the moment, one day at a time, break, chronic illness, fun

Snake River, Jackson Hole, Wyoming

 

Into the clearing

When a calming washes over me with which I am unfamiliar

I wonder if it could be here to stay?  Oh my merciful Lord, please!

The headache barely whimpers anymore and her pain cousin screams less

Making me wonder if something real is happening:  “is it live or Memorex?”

Napping fills my afternoons, pill counting still dominates my days, overnights

With fewer medical appointments I can listen to my own body better

And experiment with all that I have learned, all my Great Physician has taught.

Some little sewing projects have kept me going through this stage of recovery

I’ll share it with you if I ever get them done with scraps of stuff from here and there,

Just like life isn’t it when putting pieces together then ripping out the crooked ones?

Maybe someday it will look pretty or be useful somehow . . . until then my Maker “sows.”

What will I reap when the seizures finally stop?  Will life become filled with color and smiles?

Alas until then, Gentle One, watch this space with me for I am hopeful again, not as bad,

Yes at last, I am hopeful again.  JJ

Bumbling Along

The days are meaningless yet pass anyways

Wanton for a focus, a point, a reason why

So I wander through the rooms, this one and that

Waiting for my moment to arrive:  today or the next?

Ever seeking for answers over here, over there

That email tells me, “watch this!” for new keys

I don’t think anyone really knows how to help me

Sans my Heavenly Father who ordained this journey.

I trust my Lord who sustains me no matter

The segways that come again, again, again

Each one a little different so mindful I must be

Lest I miss the point of this seemingly wretched tragedy.

Pray tell the suffering goes on and on for years

Yet somehow I am not the same for having hung on

My needs provided for with a few wants in there too

Just gotta find some things to hold onto while I dwell in limbo.

For wherever we are going, my Lord Jesus and me

Will be worth it when I am with him always with no more weeping,

Maybe a blessing will come for being faithful or who really knows?

Only in His strength will goodness come as I bumble along til one day I am finally free.

sigh.

Until then, hang in there Gentle Reader.  And do take care, k?  JJ

She remains silent

The Jane magnolia remains silent at the birth of April’s Spring

Her violet blooms resting beneath garments of fuzzy gray pods

Waiting, tempted to peek into the sunshine, then waiting some more

For emerging too soon would be to her peril and loss of beauty, my dear.

Oh if I but could rest not by angst but by design like my friend

Knowing the Divine timing and trusting therein better than I have

That loveliness would come in the fullness of my time as well

Instead of deadness, jagged edges of pain, the tazoring of my mind.

Will there come a day when I shall join you in the sunshine of morn’?

When I unfold to freedom of spirit, of movement as in song so sweet?

Where there is little thought to my comings and goings:  I will just go

Just live and give and do and think, knowing all is right with the world?

I do not think it is right that I should suffer so day in then day out

With hope only of heaven when my hopes are dashed 10,000 times and more

The seeking compels me for hours:  pouring over records, research, and facts

Only to be smashed against the wall of my limits, my fate, the unanswered prayer.

What will my own senescence bring?

There is no patience left in me to endure.

No resolve carries me through.

Tears from deep caverns gush forth . . .

But breathe I shall for time shall march forth into the Spring of each new day

Life will go on as our Lord promises His love will go with us along the way

Perhaps one day I shall “bloom where I am planted” as the ol’ poster exhorts

Ever loud, ever quiet, ever true for having stepped out in faith ever simply,

and even ever small.

JJ

 

Jane, magnolia, poetry, Christian, gardenng, Spring, pink, flower

The Space Between

Perhaps this was a movie title or that of an old business card

Ah, the lingering spaces between events good, bad, or ugly

Do hold some value despite their lack of measurement on scale.

I spend them wandering through the hallways of our home by day by night

From bed to couch to chair to bed, ahhhhh not much going on here

When sickness marks the hours wanting for an answer, something new.

Antibiotics are on hold from now til whenever as this past year ends

With little change beyond fewer hours of the worst of the hell, I guess

And the unwelcome addition of thirty-four new diagnoses to boot!

I have learned so much of what to do and what not to do as well

My stack of papers tell a long tale witnessed by ERs, a few friends,

A weary husband, and scores of medical peeps paid by someone to care.

My goal to find meaning in these places between crises, visits to hell

Has gone dry like a wellspring once filled with life now bone on bone dry

Stained with spent tears, one worn-out puppy, and a purse now threadbare.

The money went away with five years of living the, uh, alternative life:

Don’t call me “disabled” for there still is a bit o’ fight within me, down deep

To endure this long “medical leave” on my way to a makeover not yet revealed.

So as I breathe in the goo between the more defined places of this life

I take note that here is where energy can move along unencumbered

And one day may bring me to my own railway “Station” or at least my next big stop . . .

Gentle Reader, I hope you will be there waiting for me, won’t you?  JJ