The Gray Beast

Half a ton carries a lot

So we are set should I ever have the need,

At least until next week

When my puddle jumper returns.

The deer’s fate I have no knowledge

Except that Bambi got flung into the darkness

Certainly more shook up than I was

That night headed to the shop for an oil change.

Surprised me how attached I’d become

To my guy-ish version of wheels

Once from the land of the subcompact

And originally that of motor heads.

You just can’t beat having a truck

When you’ve got a load of stuff to haul

‘Cause you’re only as good as your dirt

So I craft it like a 7-layer salad in June.

That manual tranny Frontier of my Dad’s

Got me hooked after he passed his on to us

That 4 on the floor got reincarnated

Sitting high, left foot free, cruising on down the road.

I guess she’s enough for me in a 4 x 4

Kinda basic as today’s beasts go

With room for the pup in the King Cab

Now that’s motoring ‘specially with a trailer in tow.

But alas the “21” has work needed too

A little recall to reinforce the tongue

Looks like soon all our wheels will be super duper

Even my beloved’s tires are new!

Thank you Lord for the Gray Beast

Although we never really bonded, it’s true

Since you smelled like a cheap hotel

Just like that song ’bout lovin’ in a Chevy van?

Tee hee.  Or more like that Chevy commercial, you rock too!  JJ

2018 Chevy Silverado: Like a rock!

The best in paddling

As the wife of a kayak, now canoe racer, I have been spoiled with the best paddling gear a gal could love.  Or want.  And it makes her look more “abled” than she could be.  Actually, having carbon fiber Epic kayak and outrigger paddles with boats made of kevlar have made it easier for my non-athletic frame to pull those beauties through the water.  The overall effect has been to be cool at last!

Want to see them?  My River Bear is having a Happy New Year Sale at his company:  River Bear Racing.  Check it out and drool a bit or contact me for a test drive when you are here in the Midwest.  There’s even some paddling life jackets to complete your ensemble!

Dunes Harbor, Sleeping Bear Dunes, lighthouse, just julie writes, Julie Horney

The Stellar S16S surf ski paddles like a breeze on the clear waters of Lake Michigan. Get your own at: River Bear Racing

Treatment Update and Anniversary

Six years ago tonight began a journey that has tested me in every way possible; brought me closer to my Lord and Savior, Jesus Christ, than ever before; deepened my love and gratitude for my beloved Steve; and helped me to grasp the incredible resilience of the human body/human spirit.  Thank you Lord for your sustaining grace through it all!

Rather than go into the details, I will simply refer you, Gentle Reader, to my story here.  Briefly, I got deathly sick with viral hepatitis after kayaking in a local reservoir and never fully recovered.  Seizure attack episodes began on a daily basis within a couple of months and have yet to resolve.  This serious illness has had many names, required extensive treatments at considerable expense, and rendered me unable to work in my profession of occupational therapy.  I miss working.  The social isolation, sense of loss, grief, and various disabilities have changed my daily life considerably.  Without my faith in Christ I would not have made it this far.  I do have hope for a better tomorrow which brings me to my quarterly treatment update as follows:

Recent lab tests found extremely high pesticide toxicity.  I immediately increased Far Infrared Sauna and various detox treatments until I could meet with my functional medicine Doctor.  Now after two intense weeks of exhausting research, medical appointments, and enough follow-up that would make the great T.V. detective Colombo proud, I am hoping that my Doctor’s office has processed a referral to a State Toxicology Center.  I found a neurologist that specializes in seizures related to toxicity and I want to see her as soon as possible!

In the meantime, I try to function as best as I can.  Sadly the very difficult titration of a new medication either keeps me up most nights or wakes me up with breakthrough tic attacks every two hours.  (I still spend most weekends in and out of bed with sickness.)  The focus now is to inhibit acetylcholine that we hypothesize is causing the seizures because of damage from organophosphate poisoning (OP).  Acute treatments for OP are well known but not for long term effects; we simply do not know how long I have had this toxicity.  The medication is an interim measure.  I am wondering if various Lyme, fungal, viral, and even parasitic infections have sequestered OP like these organisms can do with other toxic agents.  We know that detoxification can increase feelings of sickness called “herxing” (from release and recirculation of mycotoxins for example) when we either detox too fast or our liver or kidney pathways are blocked.  I now use bitter herbs with various binding agents in a “push-catch” protocol that helps to better tolerate the process.

organophosphate poisoning, round-up, pesticide, herbicide, toxicity, toxic, clonidine, seizures, treatment,acute

So here we go again with another new treatment direction!  At least this time I have concrete lab values to help explain what is going on along with a new, promising treatment direction.  In the meantime I’ll be hanging out as the “chick in the box” (as Steve says) at about 124 or more degrees, trying to literally “sweat it out” in our sauna. There will be no anniversary celebration per se for enduring six years of hell albeit with some sweet moments sprinkled in here and there.  There will be humility though as I try to be a godly steward of this journey my Lord has entrusted to my care.  I do have hope for a better tomorrow.  That is where this blog began 6 months into this 6-year journey and I hope that is where I will remain beyond that too.

Thank you for sharing the road with me Gentle Reader.  When I see my stats ticker go up a notch my spirit gets a little lighter, knowing you are there.  Thank you.

With love,  JJjer, 29:11, jeremiah, hope, future, plans, says the Lord, Christian

Where to go from here?

More testing, more phone calls

Why did I ask for preliminary results?

Wouldn’t you knowing my next appointment was so far away?

Two hours of seizing.  Every day now.  Of course I asked!

Sigh.

Full report due next week.

The findings of acute toxoplasmosis will be clarified.

Will PCR or the summary mean more antibiotics

To challenge my innards, still reeling from IVs last year?

I cried when I should have been glad

To know there was something there after all —

The test will cost over a grand

And we have no idea what insurance will do.

So for now I wait.

The specialty lab is delivering on time

Hoping the Lab Director talks to my Doc

And none too soon . . .

Hold me Jesus.