From the Do It Sick Chef: Let’s make something that resembles lunch!

The first video of my Do It Sick Chef series is now available on Vimeo!

In “Let’s make something that resembles lunch,” I literally get out of bed to make real food in a real kitchen that includes:  a veggie-n-meat entrée, ghee butter, and roasted turnips.  Roasted turnips?  Yes, you got that right!  Special diets require new and sometimes unusual food choices.  Just Julie will show you not only how to make these dishes but how to prepare the food saving money, time and energy.

Future videos that are already in the works will cover the topics of freezing foods for easier meal planning, a stand-alone segment on ghee butter, kitchen organization to save energy, and more.  You are invited to “Like” my Hope Beyond Facebook page to keep up with future videos and share your meal planning, preparation, sanity tips too.

Take care, Gentle Reader.  Lord willing, those of us battling serious illness are going to get well!  JJ

A Nice Overview of a Nasty Toxin Called Mercury

mercury, mercury toxicity, mercury poisoning, amalgam, dental amalgam, neurotoxin, neuro, seizures, convulsions, dentist, root canals, dangers of, extraction, mercury freeSince I’ve been affected by the neurotoxin called “mercury” and have invested considerable time and resources into this topic, it seems appropriate for me to provide some resources here.  I have blogged about my own health issues related to mercury poisoning.  My beloved husband saw my telling test results, witnessed the process of detoxification, and has championed the benefits in improved health that have followed.  Then I realized that there is some background information that I may not have shared with him or in Hope Beyond.  Steve still has questions.  Maybe you do too, Gentle Reader?

Let’s start with a basic video from a scientific perspective of a lab.  Looks like mercury is indeed toxic and gives off dangerous vapors:
 
Now apply the information to a tooth in a human body and the typical scenarios people experience when it is in their mouth.  Note that other studies show body burden increasing within hours not just 30 days:
 
Here’s more detail about dental amalgams, its effects, and how the rest of the world has addressed mercury toxicity; this one is older and a little quirky.  They call for more research (and that research is now available):
 
But how can mercury affect the body?  Here’s another genteel overview from a dentist with some studies cited and an explanation of the general mechanisms of action.  She is one of many, many who have published videos on this subject.  Note the opening remarks about the lungs (which is where most mercury enters the body via vapors):
 
The dentist noted above also has a video series that is well thought out, easy to understand, and contains nice graphics with no hype graphics.
What has been discussed in the videos above is inorganic mercury.  To round out this introduction I must add another form which is “organic” or methylmercury from fish.  Check out this case study from a city devastated in Japan by mercury from industrial waste.  If you watch my videos on YouTube you will see how I can relate to the wretched convulsions of Minamata Disese.  Skip to other videos in the series on Minamata Disease for additional history too:
 
In the future I will chronicle my own discovery of mercury poisoning, the best treatment for me, and how reducing toxicity affected my health.  Just recently I have found that detoxing from mercury is the largest part of my restoration to health.  For the treatment approach that I would recommend as a fellow sojourner (not as medical advice!), please see the Mercury Toxicity Overview  page of this website.
And please be encouraged, Gentle Reader.  We are going to get well!  JJ

Get this book!

Gentle Readers:

If you are dealing with chronic or unexplained illness, I encourage you to get this new book by Suzanne Sommers:

Tox-Sick

Mrs. Sommers uses her interviewing style to cover topics that are usually more difficult to understand when it comes to the complexities of serious illness.  She includes a broad range of diseases, treatments, and types of practitioners, only occasionally mentioning her other best-selling books!  I especially appreciate the index for locating topics of interest.

This book might have shortened my learning curve if it had been available 3 years ago.  May it shorten yours!

Take care,  JJ

The Extended Forcast is Good!

Cast your burden on the Lord, and He shall sustain you; He shall never permit the righteous to be moved.  Psalm 55:22

But I want you to know, brethren, that the things which happened to me have actually turned out for the furtherance of the gospel.  Philippians 1:12

I am 2 days post surgical removal of 2 root-canaled teeth and THE CONVULSIONS ARE GONE!!!  Yipppeeee and praise the Lord!  This 3 years of daily hell for me and my beloved husband, Steve, is finally over!

While there is still much work to do to detox mercury toxicity and re-evaluate chronic Lyme and mold illnesses, I feel more optimistic that I will be able to tolerate those treatments someday.  Until this week, I was failing.  I was bedridden most every day with convulsive episodes.  The grief and impact was huge on everything from our finances to my aching neck.  My husband no longer got a full night of sleep and this illness had changed virtually every activity inside/outside of our home.  How would Steve find me when he came home from work?  Would he have to make me my pureed dinner and feed me again before bed tonight?  Carry me to the toilet?  Our hearts were weary after 3 years of this living hell.

Nine months ago I began investigating how two sore molars in the upper left section of my jaw might be impacting my health.  Four dentists and three oral surgeons, a cone beam CT, MRI, and pano plus regular x-rays later (including a consultation out of State) we had no objective data to guide us.  Everything looked “fine.”  The teeth had bothered me for over 13 years!  Fifteen years ago I had all my amalgam fillings removed but was never guided to chelate for mercury.  Were there silver filings containing mercury remaining underneath the crowns over these two teeth?  We will never know the answer to that question.  My saliva had started tasting metallic.  Eating started triggering the convulsive episodes.  With Steve’s support, we took an expensive leap of faith and pursued a dental solution.

Additionally, seven weeks before what would become the big day, I started eating only on the right side of my mouth.  Two and one-half weeks later I started a pureed diet to eliminate the chewing action that seemed to make things worse; all this was quite a feat since my struggle to get well led me to eat low oxalate, virtually dairy-free, and completely sugar/sweetener-free, gluten-free, and mold -free foods too!  Another two weeks later and 1 week before the surgery I noticed that using plastic utensils delayed the onset of convulsions after eating.  Even drinking my foods through a straw helped initially then ultimately triggered episodes.  I feared eating anything at all!  The only problem with that was hunger and thirst could also trigger convulsions or make them worse.  I felt trapped!

Three and one-half days before the dental surgery my doctor recommended trying an EMF deflecting device.  “It might help” he said, like so many other recommendations I had received all over the spectrum of traditional and alternative medical care.  After one such technology (a Rife machine called a Beam Ray) I tried 3 years ago to treat “Chronic Lyme,” the daily tic attacks started.  Within a year these episodes would escalate to waking seizure attacks then convulsive episodes lasting 2 to 5 hours per day.  We had tried to shield me from wireless technology in our home in the past yet the results were initially helpful then inconsistent.  This time the GEOMACK from Spain reduced the intensity of the convulsions 50%.  That reduction gave me a tiny boost of strength that I needed to physically and mentally prepare for surgery.  My husband got some much needed sleep as well!  Could their be an electrical cause after all?  (See this blog for more anatomy and discussion.)

The morning of the surgery went as usual.  Convulsive episodes began shortly after opening my eyes and periodically as we prepared to leave the house.  Seizure zips ripped through my hungry and thirsty frame as my beloved drove us to the hospital.  We were still reeling from the large check we had to carry with us since the oral surgeon insisted on performing the extractions near a crash cart, I guess.  And after some prayers, many silly jokes and one last shake/rattle/and roll with placement of the IV in my arm, the time had come to let go and not look back.  We reviewed my situation with the anesthesiologist and oral surgeon, surgical tech, and several nurses.  They were not to abort the mission if I seized under anesthesia!  Just wait a moment and get the job done.

I’d like to say that I woke up in a calm, blissful state but that simply was not the case.  I became nauseous and pain management was a problem over the next day and one-half.  Oh well.  One thing was certain:  THERE WERE NO SEIZURES OR CONVULSIONS!   The “battery effect” of dissimilar metals in 2 adjacent crowns over root-canaled teeth WERE FRICKIN’ GONE!  No more tazoring of my brain would continue.  And hey, if there was hidden infection in the root-canaled teeth then the problems caused therein are now also “history.”  The hell is over.

My job now includes retraining my brain to relax when falling asleep instead of bracing for impact.  My job now includes remembering all of the relaxation techniques I used to train my patients in psychiatric hospitals to deal with anxiety.  I need to rework those memory pathways and feelings of impending doom that followed me, waited for me every night, every morning, every time when I was exposed to noxious stimuli, or even on the clothing or breath of my beloved anytime, anywhere.  Hey, no problemmo.  I am ready to live and the extended forecast is good!

Thank you and big hugs to those of you who have followed my story for any length of time,  You have been an important part of my lifeblood to go on when I could not.  Sometimes my husband could not be home with me and I was alone, feeling terrified mostly of even greater suffering and it came.  The worst episodes were never captured on YouTube videos because my warrior husband was needed to hold me tightly to keep me from greater harm instead of holding onto a camera.  Sometimes the Lord was silent even when I cried out to Him when breathless, facing death again and again when my breathing stopped.  When He did speak I gained the courage I needed to face the next trial.  In the end, death was not my greatest fear.  Dying without my Heavenly Husband was.

But you know what?  I made it through.  Steve made it through.  A new chapter in our lives is about to begin.  I’m going to take some time now and regroup.  I am very weak.  An infusion of my Jesus is needed.  The warmest embrace with my beloved must follow.  And really good food cannot be far behind.  After tomorrow the putty d’ jour will be history!  Yeah God!

Pureed Tri-Color Carrots, Cauliflower, Bacon, Ground Round, Potato Chips, Homemade Broth, and Sea Salt
Pureed Organic Tri-Color Carrots & Cauliflower, Bacon, Organic Beef & Potato Chips, Homemade Broth, and Sea Salt in the Recovery Room!

With love, JJ

But the Lord was my support. He also brought me out into a broad place; He delivered me because He delighted in me.  Psalm 18:18b-19

Cast your burden on the Lord and He shall sustain you; He shall never permit the righteous to be moved.  Psalm 55:22

UPDATE:  The holiday from convulsive episodes did not last, unfortunately.  There were many benefits from having these two infected teeth removed:  significantly less mouth pain, less congestion in the upper shoulder and neck, decreased TMJ symptoms, decreased auditory anomalies, reduced ringing in my ears, and more.  Then there was a miracle:  our insurance company covered most of the $10,000 bill.  Amazing!  :J

If I get to see you . . .

 

If I get to see you in the coming year, please understand that I will be singing songs of joy in my heart!  Social isolation has been one of the most devastating effects of serious illness from these past 3 years.  Should the Lord allow the circumstances for me to get out for an activity other than medical or a trip to the grocery store, I CELEBRATE!!!

So if I might ask for a few accommodations when we get together and you graciously oblige and I still get sick then blame any negative symptoms you may witness in me as the consequence of illness and not you!  Very few folks live in a “clean room” like we have here at home.  I did not clean at this level either until it was a matter of survival.  Steve did not engage in my extreme mold/contaminant behavior strategies until two years ago.  These strategies are necessary for this season of our lives together.  Overall I do better when we follow certain guidelines resulting in less reactivity, the worst of which are fewer seizure-like and convulsive episodes which continue daily.  We are implementing some “due diligence” from what we have learned to reduce my suffering with the goal of eliminating this illness altogether.  We believe that the Lord has allowed these trials for mysterious reasons and ultimately His glory.  He is good!

Both Steve and I recognize that there are definite signs that I am getting better.  We have trained our eye to search for even tiny changes in the pattern and intensity of episodes, pain, and reactivity to keep us hopeful that one day I will be well.  It is happening!  So please don’t be discouraged when either one of us might mention that I had a rough night or you witness a significant setback.  Recovery is a long, jagged line of progress, setbacks, and lateral “bunny trails.”  The overall trending is positive!

The most important accommodations that would be helpful if we get together are as follows.

Meeting in a public place:  Select a place with less noise and less loud music.  Newer buildings are generally better than older ones; please no historic buildings or ones with known basements or crawlspaces and history of flooding.  Restaurants that make their own food with fresh ingredients are better able to modify dishes to meet my food sensitivities.  This rules out most fast food places!  Letting me know the name and phone number of the establishment ahead of time will allow me to contact them with my needs and make the experience of ordering food more pleasant for both of us!  Please do not wear cologne or perfume that day.  I will need to greet you and depart with a “virtual hug” to avoid exposures to hidden elements that might be on your clothing or coat.  Forgive me if I sometimes forget this step in the joy of the moment when I see you!

Meeting in your home:  This is still a situation that I avoid since there are too many variables at this time that may cause serious problems.  I cannot come over if you have 1) ever had flooding in your home of any kind from a leaky toilet to a wet basement or 2) have older carpeting.  If you are willing to have me then please remove all fragranced products at least the day before we are scheduled to be together (such as plug-in or spray air fresheners, candles whether lit or not, potpourri, etc.)  Keeping windows cracked open in cooler weather or open in warmer weather to allow fresh air inside always helps (unless someone is burning something nearby outside!)  I prefer to visit in the area of your home without carpeting and sit on non-upholstered furniture.  Wood, plastics, and leather are best.

Staying overnight:  If we are invited to stay overnight then we will either bring our own linens, blankets and towels, or ask that you wash and dry everything in fragrance-free detergent and softeners (including dryer sheets).  Please replace a moldy shower curtain liner with a new one!  I will bring most of my own food and hand soap where possible.  Providing non-cured, non-smoked meat cooked only with salt, plain oatmeal, plain salad-type vegetables or zucchini/cauliflower without seasonings will be a HUGE treat!  I will always bring the extra condiments and food that I can tolerate.

Yeah, I know that this is a lot for a busy household to prepare!  Thank you for helping us out with this stuff.  Steve and I are exceedingly grateful to have recently obtained a travel trailer which has helped manage all of this tremendously well.  (It is a lot of work for us too, I tell ya!)  Both of our families and many close friends now live out of State so travel is necessary to see them.  This single change in our mode of travel has allowed me to leave our home overnight much more safely and go places from which I have been cut off for most of the past three years.  We are humbled and blessed!  I really like having a mobile safe house that has already opened up my world, provided privacy during setbacks on the road, and aided sleep with a really comfortable bed that can be hard to find when away from one’s own humble abode at home.  Thank you Jesus!

Visiting Daniel and Elizabeth in Alabama
Visiting Daniel and Elizabeth in Alabama

 

We are hoping that the ongoing extreme avoidance and dietary strategies are temporary; some level of precaution albeit more relaxed than the current level will likely continue for some time.  How long will we need to do all of this?  We simply do not know.  We believe the Chronic Inflammatory Response Syndrome (or Multiple Chemical Sensitivity) is due to mercury toxicity and we finally have the correct treatment protocols to get me well.  I have excellent medical guidance and a proven treatment plan to follow.  We are hopeful that I will be in better health within this year!  I AM GOING TO GET WELL!!!

And that Gentle Reader, is much to celebrate!  JJ