And there he was

Dr. David Jeremiah, life beyond amazing, tour, Fort Wayne, coliseum, event, Christian, Blackhawk Church, believer, inspiration

My husband, Steve, and I recently attended Dr. David Jeremiah’s A Life Beyond Amazing event in our town.  I enjoyed Dr. Jeremiah’s presentations:  first to get acquainted with his family life then his message on enduring life’s challenges as unto the Lord.  However I must say that the fundraising prayer by one of his staff was tacky!  The music was loud, motivating, and moving.  Overall I must say that it felt good to be worshiping and learning in the company of fellow believers in Jesus Christ again.

I really wanted to meet Dr. Jeremiah after the event.  No problemmo as just one of about 10,000 people in attendance, right?  Very carefully we made our way to show center from the nosebleed section of the Allen County War Memorial Coliseum.  My balance was a bit off from the sensory overload from many directions as I still battle Chronic Inflammatory Response Syndrome.  Nonetheless, I was a woman on a mission and soon found ourselves in front of the stage talking to the gifted musicians still lingering around.  I complimented Dr. Jeremiah’s granddaughter who sang in the worship team and asked where I might find her grandfather?  “He had to leave for a fundraising dinner,” was all she said.  I was disappointed but understood.  Fort Wayne, Indiana was the starting place for Dr. Jeremiah’s ministry and many members of the church he had founded here were in attendance; surely there were special activities going on to which Steve and I were not invited!

We tried to find some restrooms that were not swamped by the crowds still leaving the arena.  Having been there for shows many times before, when we headed down an open hallway where some smaller meeting rooms were located.  We encountered the vocalists again and saw a meeting room bustling with people just before we found our destination.  The hallways were virtually empty except for a few late-comers headed to what looked like a reception.  Then just before I turned to go into the lady’s room, I saw him!  Dr. Jeremiah was walking with his wife headed for that same room and it was becoming clear that we had just passed the room where his post-event activities were to take place.

This was my moment and I stepped up to it.  I walked up to Dr. David Jeremiah with my arm outstretched to shake his hand.  He accepted it and looked into my eyes briefly as I said what I had rehearsed in my mind ever since I had expressed a desire to go to the event days beforehand.  It went something like this:

Hi.  My name is Julie ____.  Several years ago you gave a message that included the teaching that God’s man in the middle of God’s will, will not perish until the Lord God ordains it.  I wanted to tell you how much that message has meant to me as I have battled a serious illness with seizures every day for the past 5 years.  Thank you.  Keep doing what you are doing!

His spoke words that followed mine as I finished the sentence from his audio tape, as if he had just given the message yesterday and not over 10 years ago!  He thanked me and quickly continued to his destination with his wife.  I continued to my own destination with a sense of wonder and amazement.  That moment was ordained by God for sure, just for me, just for him.

My spirit was calm and full as I thought about all that had transpired over the past 2 1/2 hours.  Steve and I drove home lightly chatting along the way, mostly quietly in our own thoughts.  I would be very sick with convulsive episodes within the hour of returning home and showering.  My senses were completely overloaded from the loud music, close proximity to other people, and the effects of some new treatment ramping up.  For the first time I did not feel traumatized by the serious illness that I have been selected to endure.  My own words provided the comfort I needed to get through the darkness of the night.

God’s woman, in the middle of God’s will, will not perish until the Lord God ordains it.  He has a plan and purpose for our lives even in the midst of suffering.  And should I finish well, the tasks before me no matter how difficult, there may be reward someday but first there certainly will be a closeness to my Lord and Savior Jesus Christ, that transcends my understanding.  I want that.  And touch points in life like these will help me to craft my own life beyond amazing.

I’m up for that.

JJ

 

The Long and Winding Road

Paul McCartney wrote the famous ballad entitled The Long and Winding Road when inspired by the farmlands around his Scottish home.  He wrote it during a time of tension between band members of the Beatles and then it was published in 1970, just after the break up of the band.  I remember being very upset that they were no longer together after changing the popular music scene forever.

This is a sad song.  Tonight I understand the many sentiments expressed within the lyrics that go with this sweet melody:  melancholy to a sense of unmet longing:

When the road goes on too long before you reach your destination or you never really reach the destination you set out to find . . .

Where the twists and turns push you beyond the roadways onto the rough gravel, shaking you up quite a bit . . .

Who comes along with you sometimes wishes they were not there at all then comes around to being alright in your company after all the weary miles together . . .

What you find dashes the dreams you once had, leaving you with emptiness before the Throne of Grace where all roads eventually will arrive anyways . . .

And you shed deeper tears than you ever knew before in your pain and anguish . . .

Such is the song in my broken heart tonight.  All I can say to the God above or beyond is, “I need you now more than ever.  Please lead me back to your door . . . let me know the way.” JJ

What is most important

What is most important?

This is a question that marks my days no matter what my state of mind or health.  Every day for as long as I can remember, I got up and set goals for my waking hours.  Even if I have to modify them over and over again before the day is done, I have a mental list of what I hope to do.  It’s just how I am wired.  Some things get written down and some do not.  Before long I meet with the Lord and we go over things.  Usually some changes follow!

Proverbs 16:9 New International Version (NIV)

In their hearts humans plan their course,
    but the Lord establishes their steps.

If I’m not sure what to do (when overwhelmed or facing a barrier of some sort) then I stop and ask the Lord about it.  He knows my situation in addition to the desires of my heart and usually answers in a way that draws me closer to Him.  Sometimes I am challenged in obeying His leading.  That is always a mistake.  Things always go better if I follow the leading of the Holy Spirit, usually to read my Bible or listen to Bible teaching.  The day that follows always goes better that way.

When we are battling an illness or caring for a loved one our personal resources are limited.  Additionally, we may never know when that reservoir of energy or cognitive capacity will run out so we must make our best guess and proceed accordingly.  Will new demands change everything?  It is really hard to be flexible when our hopes are dashed over and over again, less gets done, and we become overwhelmed. So we strive to keep our spirits high and go with the flow, right?  “Let go, let God” as the 12-Steppers teach? There is always tomorrow, right?

Plans changing repeatedly over the course of the day or night has dominated my past 5 years so much that I practically numb out when it happens again.  I am not sure if this is a good idea or not?  What follows for me is pursuing smaller and smaller tasks after answering the question:  what is most important?  Often what has happened next fits the category more of survival than enjoyable:  get that rescue remedy from the frig . . . I will help you walk to the kitchen . . . trust me and push yourself up to get your legs working again.  Don’t worry, you won’t fall.  I tell you, this principle of setting priorities gets REAL really fast when in a time of crisis!

That may be an extreme example for you, Gentle Reader, so I will just say this a different way.  We both will be o.k. if we set our plans before the throne of grace and let the Lord guide is in all things big and small.  He cares for the details of our lives.  As He orders our steps He also gives us the power to take those steps too.  What is most important always gets done this side of heaven.  We didn’t die because the bathrooms didn’t get cleaned or we had to eat canned meat for dinner!  Dwelling in the presence of my Savior is the best food, fitting for my soul anyways.  And that dwelling happens best when completely in the arms of our Heavenly Father who loves us so!

As my brother, Mike, has often said:  just keep moving forward.  Yup.  When I can I do.  And sometimes that means staying right where I am for a while.  Rest is important too ya know . . .  JJ

scripture, Bible, Christian, to do list, list, priorities, important, Proverbs 19:9

 

Dealing with the trauma of illness

Not that I have a total handle on this topic or anything but hey, I have learned a few things worth sharing . . .

Every day for over 5 years I have suffered waking seizure attack episodes of varying duration and intensity.  For over a year (ending last year) they averaged 2 to 5 hours per day!  At least once per month they would spike up to 12 hours on and off in a single day, sometimes requiring an Emergency Room intervention.  I have been to 3 different emergency rooms a total of FIFTEEN TIMES including once by ambulance.  After nearly a year of IV antibiotics for chronic Lyme disease these episodes are generally less than an hour per day now with some positive changes in triggers and patterning.  Significant testing and other treatments, research, and patient “networking” remain my primary occupation.  I am grateful for the improvements that have come including overall less pain from the repeated physical trauma of “head-banging” and wretched writhing movements (thanks to  periodic intervals of physical therapy and periodic chiropractic adjustments).

The journey is hell at times.  At my worst times I have questioned if I could endure this level of suffering one more moment.  My breathing has stopped numerous times and there has been one significant near-death experience with visions of “white lights.”  I have had to pray many times for the Lord to give me the strength to get to the bathroom when alone during hours of convulsive episodes.  Every type of healthcare provider I have ever seen and most close friends and family has witnessed them.  My husband is a saint, having cared for me often late into the night then getting up and going to work the next day.   A total of probably a hundred times he has had to carry me across our home when I could not walk, feed me, take me to the bathroom, assist me with bathing, take me to the emergency room, run urgent errands, and the like as my primary caregiver.  Probably a thousand times he has volunteered to bring me some type of “rescue remedy” to attempt to get the seizures to stop (generally at night or upon waking in the morning).  He never complains.  He is my hero for sure.

In other blogs you will read about all the avenues we have pursued to try and get me well:  chronic Lyme disease, heavy metal detox, mold remediation, obscure infections, dietary restrictions, neurology workups, dental issues, nutritional deficiencies, epigenetic testing and coaching, electrosmog, gut issues, yada, yada, yada.  I spend hours per week researching, managing my healthcare, dealing with extreme mold avoidance and other preventative strategies, and accessing my support system online or by phone.  Church worship is also online to minimize triggers from environmental stimuli, however this strategy also increases my social isolation.  Trips away from home are generally focused on essentials during my best times of day and occasionally with transportation help from a couple of sweet gals from church.  I wear a mask in their cars and sit on a towel covering the passenger seat but we find a way to connect anyways during those trips when help is needed about once per month.

As you can see, there is much abby-normal stuff during my days.  Social isolation and the ongoing seizure attacks are my biggest heartaches.  The latter causes both physical and emotional trauma when they are severe which still happens two of the seven days per week still marked by ongoing episodes.  The two this week included:  1) a violent reaction to an ingredient in an new injected medication that I need to treat osteoporosis and 2) a new strategy to treat severe Small Intestinal Bacterial Overgrowth.  Both of these conditions very likely are complications of ongoing illness as they were not present before I got sick on October 11, 2011.  Each new diagnosis will bring its own special kind of discouragement if I don’t keep my worries in check with my hopes placed in the redemption promised with belief in Jesus Christ.  Already I mentioned a few of the strategies I use for managing the social isolation.  What about the trauma?

I manage the trauma of severe, ongoing illness by trusting in my Lord and Savior, Jesus Christ.  This used to mean that I trusted in the promise of Jeremiah 29:11:

11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.  (NIV)

Surely if there is a purpose for all of this suffering then it won’t be wasted.  It becomes part of a greater plan, encouraging me enough to endure even the worst of the pain and anguish I am enduring.  This viewpoint has helped me cope during the first 5 1/2 years of this illness.  It carried me through the decisions to spend the rest of some savings with the hope of a cure and to endure the side effects of such treatments.  I can look back and point to the skills and information that I have learned, write about them here, take to heart the remarks of others encouraged by my stories, and note the Divine sequencing of many things that have happened along the way.  The Lord has provided so much for my care that gratitude has replaced temporary doubts, frustration, discouragement, intractable pain, and so on.  Seeing some meaning in what I am going through or shortly thereafter, gave both me and Steve enough hope to keep moving forward no matter what the “cost” may be.  But what about when the process stopped?  The money ran out.  I am not recovered.  There was no where else to go this past Winter when I got to the bitter end of my proverbial rope with worse symptoms than I could ever imagine!  Yeah, that was the onset of facial shingles in December.  More hell and a hospitalization too.

That’s when I needed to learn to trust whether there would be a purpose I could see or if there would be no purpose or direction at all.  I discovered that complete trust in our Heavenly Father builds faith and the strength to carry each of us through ANYTHING and EVERYTHING.  It’s a supernatural gift bestowed upon believers in God Almighty who trust Him.  For those of us chosen to travel a path of excruciating suffering, we must find our way to this level of trust in the Lord our God.  Our faith will grow as a result and both will carry us through the dark times no matter how dark they become.  Did I tell you that frightful demonic attacks have come during the worst of the waking seizures?  Yes.  It’s more terrifying than I can describe but may try to do so another time.   At those times only the spiritual armor of God (see Ephesians 6:10-18) and this reassurance spoken by the apostle Paul will quiet my spirit.  God is greater than any threat in this world, in my world, period.

2 Timothy 1:7  (NKJV)

For God has not given us a spirit of fear, but of power and of love and of a sound mind.

Because what is my worst fear anyways?  Dying?  For me it is probably not dying but suffering even more with dying as the end result.  So finding peace when dealing with the trauma of physical and mental suffering must be accompanied by the reminders of Who overcame death, in Whom have I placed my trust, and in Whom will I find victory over my fears.  To extinguish the fearful thoughts I must again turn to the “sword of the Spirit” as described in Ephesians 6:17 as the word of God.  In the Book of John we find Jesus comforting a grieving friend when:

John 11:25-26 (NIV)

25 Jesus said to her, “I am the resurrection and the life. The one who believes in me will live, even though they die; 26 and whoever lives by believing in me will never die. Do you believe this?”

Not only did Jesus overcome the grave when He rose from the dead on Resurrection Sunday (Easter), He gave those who believe in Him the promise of a glorious eternal life in His presence where there will be no more weeping, no more sorrows.  There will be rewards for the faithful too.  There will be perfect peace, love, and joy forever.

the cross

I may never see healing this side of heaven.  I may see healing this side of heaven.  I really have no idea which one it will be or when it will happen.  In the meantime I will simply trust in Jesus Christ who knows my name and sees my suffering (Psalm139) and ordains it somehow for good.  He will be here with me always.  I ain’t dead yet so I trust that He will add His grace and power to see me through to my last breath.  Until then Gentle Reader I ask you,

Do you believe this too?

Our God Reigns!

Seeing this sweet perching of morning doves is such a mixed blessing this morning.  They are able to sit there because yesterday I was able to cut down the massive out branching of a clematis from lower on the trellis.  Also washed the flagstone patio of dirt and some algae.  I should have worn a mask for both projects.  Acute sickness and violent convulsive episodes followed within the hour and at the beginning of a sweet Skype call with my hubby’s son and family.  So sad.
However, the experience was diagnostic in that I am dealing with biotoxin illness now more than anything else.  Also I am tolerating targeted treatments for this for the first time in 4 of these 5 1/2 years of illness.  Lord willing, I am going to get well!
Gentle Reader, let the morning doves portray the hope that I have each new day in my Lord and Savior,  Jesus Christ.  No matter what may come, our God reigns!  Very fitting the week before Easter don’t you think?

JJ