They should be alright after about a week in the heat, right? Ugh.
Usually when “the bus driver” and I come home from a camping trip, we empty the travel trailer of all food that very night. Of course it may be 3 in the morning but it all comes out nonetheless. Not this time. This time was very different. The unopened bags of chips are still in the storage compartment underneath the bed and we have been home for SIX DAYS! Gratefully the ants on the driveway have not found them yet!
I really don’t know where to begin to tell the story of our attempt to bring a family member here from out of State to visit, to maybe live with us. This was a huge undertaking for all three of us: a journey that began over 6 months ago that was actually cancelled the first time around. Perhaps it will be best to unpack the situation in a few blog posts over time as I begin to recover from what was largely a failure. But there is good news: my Aunt is healthier, stronger, more mentally sharp, conversant, happier, and overall functioning significantly better than when my hubby, Steve, and I picked her up in Florida 8 days ago. As for me, not so much.
Last night was one of the most horrific scenes of recent memory. After a total of 12 hours finally getting some errands done with a late night Doctor appointment too, I had the most frightening convulsive episode imaginable. My threshold of reactivity had been plummeting with each passing day that my Aunt was travelling or living with us. We had taken extreme mold avoidance procedures and she was wearing all new clothing that I had specially prepared for her. Her belongings from Florida were cleaned and secured in plastic storage bins in our garage; only doubly-freezer-bagged supplements and medication were in the house in a remote closet. She lived in an inadequately maintained and moldy living environment laden with the fragrances that most women like. We took extreme measures with her stuff but never considered the detoxing of her body to be the toxin most noxious to me; her skin scent reflected several different problems beyond hygiene and no amount of bathing or washing of linens/clothing was helping me fast enough. I crashed fast. She, on the other hand, (in our very clean and climate-controlled home with exceedingly healthy meals, rest, and loved ones nearby) quickly regained skills and energies she had lost in the past year.
I was unpacking groceries from our local Meier when an odd feeling hit me. The warning signs that I learned to recognize in the past when at my sickest with this complex/biotoxin illness had changed. The odd symptoms ramped up so quickly into involuntary full-body shaking episodes that I barely had a time to get to a safe position to prevent injury. These kinds of episodes are very dangerous! So I was standing in front of a counter filled with plastic bags of groceries when my eyes drew in to close and all I could do was kind of lean-and-cling to the edge of the refrigerator as the convulsions began. They went on and on for at least 20 minutes until my husband would discover me and carry me to the bedroom. The repetitive oscillations injured my spine from one end to the other. I could not move my body and was terrified of falling. Trying to relieve the cramp in my right calf triggered a rebound, a worsening of the episode. I just held on . . .
Things were no better once lying down. The involuntary shaking traumatized my neck and my body temperature began to drop. I could not speak when I needed to and breathing was difficult. Time either stood still or passed along quickly, I have no idea which one. I couldn’t even cry out my angst until much later. Then the visual anomalies began of swirling shadowy circles on the ceiling of our bedroom. Steve left and returned a couple of times as he tried to help figure out just what caused this and more importantly, what to do to make it stop. He sniffed my clothing and found them to be musty. That discovery pointed to my hours trying to get special requests for everyone at the grocery store — a water-damaged building that was problematic for me before their remodeling. I guess it is still a problem! My Beloved removed my soiled clothing and the amplitude of the shakes lessened. But by then the weird, demonic-like writhing and vocalizations had already begun. It is terrifying to endure this hell. I prayed for the Lord to take me. I searched for the white lights but did not find any. Three hours went by before I could function again . . . what was left of me, that is.
Repeated biotoxin exposures had lowered my threshold of reactivity. I was at the lowest point, last night, after doing significantly better these past 5 months. Looking back it all makes sense: cumulative exposures began when helping my Aunt for five hours on each of two days to do laundry and then pack for this trip in her moldy State of Florida. It rains there every day now and she has had water damage in her condo several times without remediation. I wore a charcoal mask during our time there but the conditions were still unbearable. (Even Steve agreed and had some symptoms.) Have you ever had to wear a mask in 90 degree heat and humidity while doing physical and emotionally exhausting work? I had a stress rash on my chest, at least 12 irritated mosquito bites, soreness from dental adjustments from my Craniomandibular Specialist in town, and to deal with a cognitively impaired and severely anxious family member who still struggles in facing her brain disease. The process was exceedingly painful, frustrating, exhausting.
In another post I will outline the procedures that we used to attempt to implement extreme mold avoidance to be able to care for a family member in crisis. We simply could not leave her in Florida any longer. For today, I am grateful that I did survive last night because I got to see a miracle in action. No, it’s not only the organic lime corn chips that are alright tonight. I am completely exhausted yet stable and have not had any episodes since she left our home around 10:00 p.m. (and I cleaned, tossed bed linens and other things out of course). This is the first time I have been stable in 4 nights. The miracle is that when I was able to get out of bed at 5:00 p.m., my Aunt’s friend from Michigan had arrived and was sitting with her on our patio outside. Well hello Dean! He was offering to drive her back home to Florida. While I disagree with many aspects of this arrangement, I was in no position to decline a solution that could help stabilize me: her now former caregiver in crisis. She left with him after some dinner, some packing, some very sad goodbyes. Our visit wasn’t supposed to end this way!
Looks like the chips and me are going to be fine in a little while (as the bags are still out there in the Camplite in the driveway). Steve is grateful for the possibility of a full night of sleep. We shall recover. I am grieved that things didn’t work out with my family member and for the torture I had to endure trying to care for her. I am glad that we could give her the gift of renewed health; that I discovered where I am at with this ongoing illness; and that our Lord is there to carry us, to act, to make His presence known no matter how hot things get in our lives. Please join me in praying for my Aunt. Dean won’t be staying with her very long and . . . I had to let her go from our care.
Alright. It’s a few decades too soon in my life to be fussing over fake teeth in a restaurant but that is exactly where I have landed. Or an acrylic mouthpiece of sorts, that is. Then there’s the one with metal wires in it. Aaaargh! This is all kinda gross, especially with bits o’ lunch in thar!
It’s not your average bear that carries around a bottle of mouthwash in a gallon Ziploc freezer bag with 2 paper towels, a funny little brush and a clam-shell plastic box with air holes in it with a spare mouthpiece in tow. Gentle Reader, you knew I was not undergoing a normal treatment plan when I signed up for this next phase in my recovery from a serious illness. After all, who said that specialized dental appliances would stop almost 7 years of daily seizure attacks?
The answer: no one really. Persons with Tourettes Syndrome, dystonia, and tics have found relief in addition to persons with severe TMJ or Temporal Mandibular Disorders. Only one expert mentioned “atypical seizures” and another “movement disorders.” It was the Lord who led me to examine my own pattern of symptoms and triggers, led by an observation from an ENT in a recent exam, and extensive research that seemed to indicate that I, too, might benefit from this highly skilled approach within the dentistry profession. It made sense to me that a Craniomandibular Disorder Specialist would be able to relief pressure on my aching jaw. If it relieved pressure on cranial nerves in the surrounding tissues as well, then there would be a good chance that many of the episode triggers and the convulsive episodes themselves could go down. So I interviewed thirteen professionals in the USA then said, “sign me up!” My beloved agreed. Graciously, many wonderful folks helped make it happen.
And I am glad that it did happen. The convulsive episodes are now EIGHTY PERCENT IMPROVED!!! Yeah God! Praise the Lord! Holy cow! Cool beans! Plus every other exclamation of joy I have ever used on this here blog. Just Julie is going to get well! I can now lie down and get up from bed most of the time without 30 or more minutes of convulsive episodes. THIS IS HUGE! Bonus: my reactivity to noxious sensory stimuli is also down. My posture is better. I am able to eat a few more foods that I have been able to in many, many years without triggering a seizure. Other symptoms have come and gone yet even the nagging jaw pain is also reduced. I am looking forward to seeing what will happen over time as the improvements continue . . .
The battle is not yet won, however, as my devices will need adjustments and I’ll possibly need new dental appliances as time goes forward. This will require significant travel to my Doctor out of State, a leap of faith in the Lord’s provision, and a massive testing of my health status to travel by myself. Am I up to the challenge? Absolutely. We will plan carefully and proceed with caution. Looks like I am on a good path for recovery at last. I am humbled and grateful beyond what I can put into words. Thank you Jesus!
Here are a few pictures from the process from my first week on this new journey. I look a mess in most of them yet that is because I was very sick going into these appointments. I had six violent convulsive episodes just trying to do the 5 hours of evaluation and was quite depleted by the time it was over. Afterwards, my hubby and I were so trashed that we stood in the parking lot late that sunny afternoon and ate every snack and drop of water we had with us! It took days for me to recover yet somehow I knew that my life was about to change very soon. Three days later I had another very long appointment to receive my mouth splints. The changes began within a day and continue three weeks later! Stay tuned for more good news as this story develops.
Gentle Reader, if you are struggling with serious health issues, I encourage you that the Lord sees your suffering, grieves for you, and promises to be there for you for each and every breath, now and forever. Call upon His name. There is “hope beyond” what we can see. Consider trusting the person of Jesus Christ Who will see you through, carry you this day and always. I would have never made it this far without Him. I hope we can share in my joy together someday Gentle Reader. Our God is good! JJ
As an occupational therapist trained in therapeutic exercise and as someone who taught aerobic exercise in clinical settings years ago, I have always watched the trending in the health and fitness industry. I recently explored various fitness certification opportunities as part of my continuing education requirements as an OT, including those oriented toward low impact dance and yoga. ROM Dance was part of my repertoire years ago when working in mental health settings. Match these interests with keeping a close eye on the alternative health industry that came on the heels of the New Age movement of the 1990s. Early on I decided to match all of these observations against the available clinical research and especially the truth of Biblical scripture as guiding lights.
So is there a back-story? Yes, there’s more! I am seeking a gentle, supportive movement practice, ideally consistent with my Christian faith, to aid in my recovery from serious illness. The trauma of this serious illness has left me with several medical complications, deconditioning, weakness, physical limitations, and an altered body awareness that I believe can get better. I had been exploring and pursuing some possibilities in the world of dance, exercise, massage, and traditional occupational and physical therapies when along came Holy Yoga: a “community of believers on mission to bring the Gospel to the ends of the earth through the modality of yoga.”
In a few blog posts, I will explore Holy Yoga and come to a personal decision about whether or not I will pursue it at this time. I started my research at the Holy Yoga website then jumped right into some challenging viewpoints but not from the Christian or even medical communities. Instead I listened to a lengthy YouTube video of Hindu philosopher, Rajiv Malhotra’s, interview of Holy Yoga Founder Brook Boon. Talk about what the political world calls “opposition research!” Below is the feedback I posted after viewing the interview. My next steps will be to research the response of the Christian community and probably attend a class locally.
Here’s Part 1. Stay tuned for Part 2!
Nice job Brooke Boon! I might clarify to Mr. Malhotra that Jesus is God, the Holy Spirit is God, the Father is God: the God of the Bible and NOT a manifestation of God. Each person of the Trinity is one God, 3 persons. Liken this to the fact that I am one human being but a wife, sister, and daughter or 3 person-alities. Not an exact analogy but it can help understand that the one true God is a clear, Biblical distinction from the plethora of Hindu gods that are dead, powerless manifestations of their “god.” But more on that theology is a discussion for another time.
Further, I really wish Mr. Malhotra would have had the decency to give Ms. Boon his interview questions beforehand, especially if he intended to debate the nuances of Hinduism and Islam in contrast to Christianity. He said the interview was to be a “dialogue” however his theological questioning and word choices indicated otherwise. His agenda to discredit Holy Yoga was polite yet clear. For example, he said at the end of the video that Hindus must “be aware” and essentially wake up to what Christians were doing with Holy Yoga; he also claimed that Holy Yoga’s purpose was to evangelize. Seems like evangelism may come with the Foundation’s outreach to victims of sex trafficking but wasn’t this an interview about the story, benefits and beliefs of Holy Yoga classes not the Foundation? Might want to differentiate the two sir.
It was important for me as a born-again believer in Jesus Christ who is exploring Holy Yoga, to view this interview. I saw clearly how someone who is not a Christian cannot fully understand the tenants of the Christian faith from, for example, literal translations of scripture. These literal interpretations weaken Mr. Malhotra’s subtle challenges, arguments, and warnings about Holy Yoga. Specifically, his references to “the law” were not about Roman law as he claimed but God’s law given to Moses (as documented in the God-inspired Old Testament) to help guide the nation of Israel. The Mosaic law helped define right and wrong to a lost people, lost society, and provide guidance as to how to live. It also instructed them on how to relate to God and atone for sins or wrongdoing. This law was later replaced with the death and resurrection of Jesus Christ, indwelling of the Holy Spirit, and New Testament teachings from Christ and His disciples. Persons of various “religious affiliations” or “denominations” outside of Christianity seem to like to focus on “the law” concept instead of Christ’s concept of grace because they are used to the structure and constraints of rituals . . . as if it is the rituals themselves that make them somehow right or wrong: better people or worse yet, right before their definition of God. And their definition does not match that of the single God of the whole Bible. Christians who are born-again believers are free to express themselves with various traditions, cultural garb, etc. (and even try on the dressings of others) but never look to them for salvation. Cultural traditions/trappings have no inherent power. Only faith in Jesus Christ alone can save: bring us eternally into a right relationship with The One True God and eternal life. It’s simple really:
John 3:16 New International Version (NIV)
16 For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.
Of course we want to share our faith with others as our joy and calling as believers in Jesus Christ. (Matthew 28:19-20). Looks like a lot of fun to me, to find an established method of breathing an exercise while praising God! Wish they didn’t use the Hindu words though, as it will be confusing to many who think that Holy Yoga is completely Bible-based. There are gray areas for sure. Holy Yoga borrows many traditions of Hinduism. I hope that the classes clarify this for participants. But is that enough to avoid it? Or not find a way to enjoy its benefits? Perhaps the earthly “gurus” of Hindu yoga could view the adaptation of the breathing and exercises of their yoga traditions as more of a compliment than a threat. Such is the nature of humanity to not want their invention changed. I am sure that the major drug companies don’t like competitors making generic copies of their drugs either! But hey, children often imitate the characteristics of their parents and hopefully a lot of times this is a good thingy! Imitation can be an expression of flattery, friendship, even love.
Because of the prevailing pull of the world on Jesus’ own disciples and their need to overcome it, Christ petitioned for divine intercession to keep his disciples “not of the world” by being sanctified through the word of God, which is truth (see John 17:16–17 below*). Believers must guard our hearts in all pursuits with the truth of Scripture, spiritual armor (Ephesians 6), prayer, heeding the conviction/discernment of the Holy Spirit. Mr. Malhotra quoted the apostle Paul extensively in his post-interview analysis. Perhaps the apostle Paul just wanted to be friendly as he adopted some behaviors and garb of the people groups he was trying to reach out to with the hope found in Jesus Christ? Surely we can understand this today. Don’t we bring a gift a friend would like to his or her birthday party even if it is not our own favorite hobby, taste, brand, or preference? Or let a co-worker listen to a CD of our music in hopes he or she will enjoy it and share it with others? Let’s be clear, however, that the lovely cultural trappings or activities that make life sweet are never equal to the incredible gift of salvation that comes from belief in Jesus Christ.
Please look beyond the rituals, the cultural trappings, the methods of exercise and breathing, the physical stuff of this world as you evaluate the practice of Holy Yoga. Each believer in Jesus Christ must decide for him or herself, how to apply the real substance of the Bible (and of life for the believer) is the Word and the truth it professes to our daily lives. Explore Holy Yoga with knowledgeable believers. Pray about it. Examine the world view of your particular instructor too. And if everything checks out o.k., enjoy a really cool exercise/meditation class in the meantime.
*John 17:16-17 New International Version (NIV)
16 They are not of the world, even as I am not of it. 17 Sanctify them by the truth; your word is truth.