When I was working in my career as an Occupational Therapist, I coined the following phrase to describe my role to my patients and their families:
An Occupational Therapist takes a look at how a person occupies his or her time and the skills needed to get through the day.
This definition worked well, given the diversity of populations, conditions, and treatment interventions utilized in O.T. Having a simple, quick definition helped me better communicate my 30+ years of licensed and skilled interventions from a variety of treatment settings that might be called upon at any stage over a course of therapy. Together we then crafted a course of action to get the person back into his or her life as best as possible. Funny how the person that may have benefitted the most from all of this is the one writing to you this evening . . .
Recovery from a serious illness has been a case of the phrase “therapist heal thyself” coupled with the expertise of a few other licensed professionals. My part was to study, research, document, evaluate, revise, manage, and just hang in there by my fingernails to get through these past 4 years. However I will credit the Lord, Jesus Christ for providing the courage and hope that my husband, Steve, and I needed to actually start seeing some progress. And guess what, it is starting to happen! The Lord has allowed recovery to begin!
Six weeks ago I began an ongoing, intensive course of IV antibiotics for the treatment of chronic Lyme disease. In the interim I experimented with liposomal melatonin, 5-HTP (a precursor to serotonin), and now CBD oil (from industrial hemp). I believe it is that latter that have helped to move my sleep/wake cycle from that of a brown bat to a gal that is just slightly a night owl. I am starting to dream again and have a little more energy, clarity of thought. Also the years spent chasing down mercury toxicity, mold illness, dental issues, and secondary infections have prepared me to tolerate this level of intensive treatment. Are you ready for the biggest change of all?
The two to five hours per day of violent convulsive episodes is diminishing in intensity and duration! This has been consistent for about two weeks now. PRAISE THE LORD!!!!!!!!!!
We are thrilled for some positive change in my condition! We are now hopeful that the powerful doses of antibiotics will help kill the Lyme bacteria and co-infections likely causing the seizure attacks and other noxious symptoms. Whoa. So how do I fill my days? I am continuing my full time job of daily detoxing, preparing a specifically crafted diet, maintaining a detailed treatment log, medical appointments averaging daily, supportive relationships, study-and-research, medical treatments (some complications came with the IV treatments), connecting online to forums critical to these efforts, the “stuff of life,” and taking a walk at least once per week. Maybe this week it will be twice? Yeah God, the pup will love that one!
Like in the past, right now I am just doing my job. I am grateful that the Lord saw fit to lead me into the profession of occupational therapy as it provided me the skills needed to manage the mechanics of this illness. Along the way my beloved Steve has been the greatest friend, confidant, witness, and spiritual leader that I could have ever asked for to walk this road with me. He has labored tirelessly night and day for me, for us. Thank you Jesus for Steve. There are many unknowns and many more months of treatment yet to follow for sure. No problemmo. With my Lord and Savior at the helm, I will be fine. Lord willing, I am going to get well!
Just thought you might like some good news from the “Hope Beyond” blog, eh? Take care Gentle Reader. And thank you for your support. You rock! JJ