A second trip is now behind me to see my Craniomandibular Specialist in a southern state and the problems plaguing me for 6 1/2 long years are significantly less and yet my progress has plateaued. Maybe it’s still the fatigue of travelling alone for the first time in 11 years? Holy cow, I did it! And ugh too. It was hard. Regrouping and resting now, changing up a few things, and I am noticing that those changes are already helping, for example, to reduce the daily headaches to a trace level. Amazing!
I am tempted to be discouraged about the plateau in progress and some setbacks but I will choose not to be so. Both happen in the jagged line of recovery from serious illness.
Life goes on and the care of a family member in that same southern state began before the first medical trip. Looks like the Lord had more planned than we originally thought when my hubby and I took a leap of faith to seek treatment 1,000 miles away from Indiana! We are now preparing to welcome my Aunt into our home for 2 months this summer after many hours of preparation, work, and communication with multiple parties. There is much to do!
Seems that the Lord wants me to keep moving forward as he has created a new role for me with increasing responsibilities: caregiver. I never thought that it would be harder to care for one tiny lady than the TWENTY I served in a day in my professional role as an Occupational Therapist. Right now it is!
My Doctor’s office cancelling 7 medical appointments already this year due to chaotic scheduling issues confirmed my pursuit of a new integrative medicine specialist. My Doc is upset and I am proceeding to transition some of my care to her anyways. The change is refreshing and creates hope in some areas not addressed of late.
Steve and I have several decisions to make should my family member decide to move in with us later this year after her summer visit. Some parts of our life could accommodate her easily, others not so much. We will have some financial decisions to make involving vehicles, housing, and several lifestyle choices. Could be good? We are exploring many options and leaning on the Lord as we go . . .
I am a bit overwhelmed with the new modalities that have come since pursuing specialized Temporal Mandibular Disorder treatment, from application of a TENS unit to switching out dental appliances every time I eat or sleep. Wonder where I have been instead of writing updates on the Hope Beyond blog? I am still here, flossing my teeth 4 times per day! Spitting mouthwash into a baggie in my truck after eating between appointments when away from home is not that unusual for me now . . . from the back of the parking lot where no one can see me of course! Oh my!
The biggest change of late is having a bit more energy and mental capacity to do a little more a few days per week. I am exceedingly grateful for this. Thank you Lord! We anticipate a lot of changes, projects, and the need for both physical and mental stamina this coming year and looks like it is coming little by little. I hope the finances for everything will follow as my Go Fund Me campaign has also plateaued! We will figure it out, so no worries. The first of the two medical trips is now covered, gratefully. God is good and the Great Provider has always cared for our needs. I can see a possibility of working some within a year a so depending upon the needs of our “new” family member; she may move in with us permanently or choose to live closer to her adult children in Michigan. Just not sure yet.
I am tired. Healing takes sooooo much energy from healthy food and rest, good supplements, time with the Lord, and restoration activities with my beloved Stevers. Sunday was my birthday so we did that last one. A simple day was a great gift with my bestest buddy. I love him so much. I am so very glad that you are still here too. I could never have made it today without you Babe. Thank you Jesus for Steve. Please bless him this week and encourage him as he works so hard for both of us. Infuse him with your Spirit to lead us through this maze of life in which we bumble along. Help me to love him, respect him better and better too.
I know that the Lord has gone before me and been with me, drawing me to Himself and bringing me to the moments He planned for me yesterday, today, and tomorrow. I lay everything named here in your mighty hands as I prepare to go to sleep. I know that You are still here too.
And on that promise all of us here may rest. You too. Godspeed Gentle Reader, JJ
Those of you in treatment for a serious illness know what this title is all about: trying to figure out what will bring recovery or remission without making you feel worse! Oh yeah. Patients battling chronic illness talk about “herxheimer reactions.” That is where either die-off or some kind of healing crisis brings on worsening of symptoms and even new, noxious symptoms. Not fun. So what is a person to do? Unless otherwise advised by your trusted healthcare practitioner, here are some things that have been helpful for me:
Slow down your treatment protocol or take a break in treatment.
Try only one new thing at a time and at a lower dose if possible.
Take binders such as benonite clay, activated charcoal, chitosan, and binders of heavy metals (e.g. Intestinal Metals Detox).
Drink extra fluids especially pure water.
Add some hot lemon water first thing in the morning on an empty stomach.
Eat bitter foods which help support liver and kidney drainage channels (such as select herbs, radishes, dandelion root tea).
Do what you can to keep your bowels moving at lease once every day, minimally!
Step up your preferred method of detox such as salt water baths, infrared sauna, colon hydrotherapy, and exercise as tolerated. Even massage, physical therapy, and chiropractic care can help release waste products trapped in your tissues.
Add nutritional supports for detox as you can such as glutathione (or precursor of lactose-free whey powder), vitamin C-rich foods, and minerals (such as magnesium, Dead Sea salt baths, Celtic sea salt, Quinton Quintessentials, and the like).
Make rest a priority! Healing takes a lot of energy!
Pray. The Lord cares, hears, and will lead you unto Himself if we but call upon His name: Jesus Christ. There is no greater comfort than this Gentle Reader.
So this is where I am at these days. Last month I had to take a nasty antibiotic for the same infection and it hurt me badly so I ended it at the short end of the recommended treatment range. Then I stepped up nutritional supports before adding a new treatment. I tried to add a new biofilm-buster when treating a gut infection and reacted poorly, so I will take a break from it for now. This month I was able to tolerate hot lemon water with manuka honey which is a combo I have not tolerated in years! Changing brands of glutathione helped me to start taking this critical element in the 3 phases of detox, yeah God! Also, using a combination of binders has helped slow down some overnight convulsive episodes. I hypothesized that killing infections released toxins inside of the bacteria and fungi targeted, contributing to an increase in episodes. So these days I am really glad for the leading of the Holy Spirit, and a myriad of webinars from really smart researchers who suggested binders. “Yeah God” for the relief that has followed.
I guess then it is time for a nap. No matter that it is a beautiful day outside. Naps are a beautiful thingy too ya know. Lord willing, I am going to get well!