I gotta change my teeth!

Alright.  It’s a few decades too soon in my life to be fussing over fake teeth in a restaurant but that is exactly where I have landed.  Or an acrylic mouthpiece of sorts, that is.  Then there’s the one with metal wires in it.  Aaaargh!  This is all kinda gross, especially with bits o’ lunch in thar!

It’s not your average bear that carries around a bottle of mouthwash in a gallon Ziploc freezer bag with 2 paper towels, a funny little brush and a clam-shell plastic box with air holes in it with a spare mouthpiece in tow.  Gentle Reader, you knew I was not undergoing a normal treatment plan when I signed up for this next phase in my recovery from a serious illness.  After all, who said that specialized dental appliances would stop almost 7 years of daily seizure attacks?

The answer:  no one really.  Persons with Tourettes Syndrome, dystonia, and tics have found relief in addition to persons with severe TMJ or Temporal Mandibular Disorders.  Only one expert mentioned “atypical seizures” and another “movement disorders.”  It was the Lord who led me to  examine my own pattern of symptoms and triggers, led by an observation from an ENT in a recent exam, and extensive research that seemed to indicate that I, too, might benefit from this highly skilled approach within the dentistry profession.  It made sense to me that a Craniomandibular Disorder Specialist would be able to relief pressure on my aching jaw.  If it relieved pressure on cranial nerves in the surrounding tissues as well, then there would be a good chance that many of the episode triggers and the convulsive episodes themselves could go down.  So I interviewed thirteen professionals in the USA  then said, “sign me up!”  My beloved agreed.  Graciously, many wonderful folks helped make it happen.

And I am glad that it did happen.  The convulsive episodes are now EIGHTY PERCENT IMPROVED!!!  Yeah God!  Praise the Lord!  Holy cow!  Cool beans!  Plus every other exclamation of joy I have ever used on this here blog.  Just Julie is going to get well!  I can now lie down and get up from bed most of the time without 30 or more minutes of convulsive episodes.  THIS IS HUGE!  Bonus:  my reactivity to noxious sensory stimuli is also down.  My posture is better.  I am able to eat a few more foods that I have been able to in many, many years without triggering a seizure.  Other symptoms have come and gone yet even the nagging jaw pain is also reduced.  I am looking forward to seeing what will happen over time as the improvements continue . . .

The battle is not yet won, however, as my devices will need adjustments and I’ll possibly need new dental appliances as time goes forward.  This will require significant travel to my Doctor out of State, a leap of faith in the Lord’s provision, and a massive testing of my health status to travel by myself.  Am I up to the challenge?  Absolutely.  We will plan carefully and proceed with caution.  Looks like I am on a good path for recovery at last.  I am humbled and grateful beyond what I can put into words.  Thank you Jesus!

Here are a few pictures from the process from my first week on this new journey.  I look a mess in most of them yet that is because I was very sick going into these appointments.  I had six violent convulsive episodes just trying to do the 5 hours of evaluation and was quite depleted by the time it was over.  Afterwards, my hubby and I were so trashed that we stood in the parking lot late that sunny afternoon and ate every snack and drop of water we had with us!  It took days for me to recover yet somehow I knew that my life was about to change very soon.  Three days later I had another very long appointment to receive my mouth splints.  The changes began within a day and continue three weeks later!  Stay tuned for more good news as this story develops.

Gentle Reader, if you are struggling with serious health issues, I encourage you that the Lord sees your suffering, grieves for you, and promises to be there for you for each and every breath, now and forever.  Call upon His name.  There is “hope beyond” what we can see.  Consider trusting the person of Jesus Christ Who will see you through, carry you this day and always.  I would have never made it this far without Him.  I hope we can share in my joy together someday Gentle Reader.  Our God is good!  JJ

xray, dental, appliances, TMJ, TMD, specialized, dystonia, seizures, atypical, tics, Tourettes, Dr. Ralph Garcia, craniomandibular, disorder, treatment

Assistant Josh took about a dozen x-rays to start the evaluation process.

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Dr. Ralph Garcia takes a detailed history; the smell of acrylics from the lab requires wearing a mask.

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EMG testing of the face and jaw

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Bite evaluation by Dr. Ralph Garcia

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Assistant Julie takes photos with and without the new dental appliances.

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Multiple impressions are taken with soft polymers that triggered episodes when the material was cold. Trying to stay calm to get the proper fitting was challenging.

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Waiting room in Dr. Ralph Garcia’s office! We definitely are not in Indiana!

Sunset Beach, Florida, Tampa Bay, wife, husband, couple, married, sunset, sunrise

A little shy first time out in public wearing the smaller of the two dental appliances so I could have a snack while watching the sun go down on Sunset Beach. So grateful that my Dentist’s office was in sunny Tampa, Florida!

Frequent Flyer Miles

Hospital Christmas Tree, hospital, medical, ID, identification, patient, band

Travel frequently with any major airline and before long you will accumulate Frequent Flyer Miles.  Gather enough points and you can start planning a getaway weekend to someplace warm or maybe remote enough to forget the cares of everyday life.  Oh how I want to cash mine in soon . . .

So I walked into our neighborhood hospital for a test and the gal at the reception desk greeted me by name!  She had my red radiology folder already in-hand, clearly expecting me at any moment (with most of my “HIPPA” paperwork already started!).  Talk about customer service?  Er, no.  More likely it’s a function of my frequent visits to medical practitioners and departments within the past week:  SEVEN OF THEM!

It’s the week before Christmas so I thought I would photograph a few hospital I.D. bands within the bright green branches of a Dwarf Mugo Pine.  Kinda looks pretty, doesn’t it?  Ugh.  I digress. I’m alright, Gentle Reader.  The choking coupled with increased nightly seizures turned out to be symptoms of a sinus infection and all are gradually subsiding with a course of antibiotics.  I’m getting back to baseline.  Too bad they don’t award Frequent Flyer Miles for taking care of yourself or enduring a bumpy flight!

Overall, I am grateful to have these healthcare “destinations” to guide me along my journey towards recovery.  Various medical appointments are my daily occupations of late, mixed in with wrapping a few gifts and trying hard to focus on serving others in this season of giving.   It really does help to put your eyes on the needs of others to help lessen the burden you may be carrying.  I was reminded of this in the middle of this past week, sitting alone in the chapel of our local hospital.  Ever visit one?  They are a sweet oasis when needed.

Thank you my Lord, Jesus Christ, for meeting me there in my own time of need.  So glad you always take a flyer on me when I call . . .  JJ

 

You not Me

If my eyes can gaze upon you not me

To care, to serve, to pray, to worry some

Then maybe my burdens will soften a bit

For I have fixed my angst off my tender frame.

If I can plan my day to give more away

My time, talent, and resources to you not me

For a new challenge that maybe stretches me a bit

Then we shall both emerge stronger when tomorrow comes.

For what good is a man if he gains the whole world

And weakens his soul by burying it deep in self-pity

When we can travel together for awhile

You and I, carrying your bags then you lifting mine.

Seems like a better deal dontcha think

For the moments when I do return home to rest, to reflect

Will find new meaning in what it means to live

When the Lord dwelling in my heart spills over to you.

He is the One Who makes all these things possible

These ups, these downs, these trips veering off that away

We must but trust in His gracious plan, every detail

As He is the reason for you, for me, for glory and goodness too.

Request for Personal Assistance

Dear Gentle Readers:

I am most blessed to be in touch with you through this wonderful world of blogging.  Today I am asking for your help!

Last week I started some baby steps in a new treatment protocol (called a Pretox Treatment Protocol) for mercury toxicity.  The program is based upon the brilliant  work of Dr. Chris Shade and Quicksilver Scientific.  I am exceedingly grateful that my family doctor attended a conference where Dr. Chris Shade had presented on mercury toxicity.  Dr. Shade developed mercury speciation testing and specific treatment regimes to open elimination pathways in the body of inorganic- and methyl-mercury.  I completed several lab tests including their  Tri-Mercury test and their Blood Metals Test is now in process.  After suffering nearly 3 hellish years with daily seizure attacks and numerous failed approaches, we finally have hope for complete recovery.

The only problem is that I am having difficulty tolerating the Pretox Treatment Protocol!  No surprise there:  I react to everything these days.  So here is my request:

Would you kindly contact Quicksilver Scientific and ask for a special consultation for me with Dr. Chris Shade?  The company is exceedingly busy with expansion and Dr. Shade’s speaking schedule so a little extra noise might be helpful.  Here’s the link to their website and where you can leave a message with my name and email address ( be sure to convert to an email address the following with numbers instead of words and “yahoo.com”:  psalmthree4eightonezero@yahoodotcom):

http://www.quicksilverscientific.com/about/contact-us

I made this video for Dr. Shade to illustrate exactly what mercury poisoning has brought into our lives over here and my dilemma:

My husband Steve and I are hopeful that I am going to get well!  We are exceedingly grateful for prayers and support of everyone and look forward to the day when we can celebrate together all that the Lord has done in this season of our lives.  He is good.  All the time.  He is good!

Thank you for your consideration.

Take care,

Just Julie

Six Common Misconceptions About The Chronically Ill

A fast read on some things to keep in mind when interacting with a loved one battling an ongoing illness. Grace and mercy are helpful companions too. JJ

My Color Is Lyme

A friend of mine shared this today and it is right on the money!!!

psychology today article

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