I am sure of it

 

Multitasking cartoon

Unlike the brain fog of this cartoon, I am going to get well.  I am sure of it!

The second week into the use of an atypical chelating agent (Zeolite by Zeo Health)  for very high mercury levels has brought more moments of mental clarity than I can ever remember in my entire life.  Oh sure there are ongoing seizure attack episodes yet they are generally 50% improved overall!!!!!!  I could not say this after any other treatment protocol attempted these past 3 years.  I could not say this even after the initial relief from high CBD hemp oil (the industrial hemp counterpart to cannabis oil).  I could not say this after antibiotics or Rife treatment with the Beam Ray.  I did not say this after (27) IV infusions of magnesium last Fall.  I could not say this after extensive and expensive mold remediation in 2013.  Even after aggressive treatment for candida over 2 years, I could not say this.  But I will say it again:

I AM GOING TO GET WELL!!!!!!

There is only one person to thank for this new direction:  the Lord, Jesus Christ.  At a time when multiple factors have come together at last, the path has cleared and hope is restored over here because of His mercy and grace.  A key factor in this process is humility.  More on that in a moment.  I also want to thank my chiropractor:  Dr. Lee Nagel at DeKalb Chiropractic Center in Waterloo, Indiana.  He had a hunch early on in my care that I was suffering from mercury poisoning.  After all, two hair analysis tests revealed mercury and other heavy metal toxicity in the year 2000 and again in 2011 but both times my respective Family Practice Physician (FPP) minimized the results.  Both times the Dr. thought I would be unable to tolerate a special type of detoxification protocol called chelation that would be required to remove heavy metals.  So off we went each time in another direction instead until my life of hell began with viral hepatitis October 11, 2011 and escalated into daily seizures beginning in March of 2012.

Dr. Nagle had high mercury levels discovered by his cardiologist.  His health improved after treatment thus placing mercury issues on his clinical radar.  Dr. Nagle, father of three, is one of the most adventurist and athletic people I have ever met (behind my beloved Stevers of course!).  His chiropractic practice rarely includes medical testing but he made an exception with me.  Thank you!  It took a month to get the testing protocol right then the results revealed the shocking reality of a probable root cause of illness for me:  very high mercury levels.  (Please refer to this excellent summary to learn more about this devastating substance.  Original citation available upon request.)  After a false starts with a quack-y Dr. who claimed to provide chelation, my current FPP is guiding me in the use of chelation and increasing other gentle methods of detoxification that have worked well for me.  By the way, my FPP has also recovered from mercury poisoning that almost took his life!

All of this is very humbling after 3 wretched years of illness and 23 years of chronic pain aka fibromyalgia.  While I do recognize that I have a new, long course of treatment ahead of me, I am exceedingly grateful to discover a root cause of much of my suffering.  Holy cow!  A successful outcome could help more than the seizures.  Yeah God!  Both Steve and I are really hopeful this time.  And it is with mental clarity at 4:30 in the morning that I write this to you!  So grateful for the 3-hour nap earlier tonight.  Yeah, the weird sleep schedule continues a bit!

And now about humility.  These entire three years have presented challenges requiring me to trust God for everything up to my next breath.  I submitted to the loving care of my gracious husband as he needed to carry me to the toilet a hundred times; help me to shower, feed or dress me when I could not about once per week; carry me to bed often so he would be near as he tried to catch some sleep before work,  rush me off the emergency room FIVE TIMES, and so much more.   Oh Gentle Reader, have you sensed that I am a recovering Type A personality?  A first born of my siblings in my family of origin?  That I started working when I was 16 years old with babysitting jobs before then?  That I am capable of taking care of myself thank you very much?  This is the longest and most extreme period of need that I have ever experienced.  I have had to let go of everything during these past three years.  At another time I will write about facing death when my breathing would freeze multiple times during seizure attack episodes.  And with all of this, I did not die of embarrassment or lack of oxygen.  My Heavenly Father and earthly husband have carried me through to this next season of recovery.  I AM HUMBLED!  Thank you seems too small.  I love you both!

Briefly, there were two other tasks I believe needed to be completed during this time:  1) learning to depend completely upon my husband for material needs and 2) realizing that the little activities I got to do here and there would become new skills, new relationships, and new activities that would become my future.  Both were tasks that probably would not have come without grounding in Jesus Christ or needing to cope with the crises of severe illness.  I probably would not have seen so clearly and (hopefully) fully submitted to the incredible character strengths of my beloved had I not become so broken.  Steve is my spiritual leader and head of household and I am grateful.  Long before we met I know what it took when my life fell apart in 2003 to soften me into the kind of woman that my beloved would choose to love.  I now see more clearly what kind of man the Lord has provided for me to love in return.  I AM EXCEEDINGLY BLESSED!

So join me, if you will, for an amazing adventure of recovery from serious illness.  IT IS HAPPENING!  So much fun awaits!  Thank you for riding along with me.  May we both praise the Lord for the good that is here now.

Hope is a good thing, eh?  I am sure of it.  JJ

Psalm 62:5-8 (NIV)

Yes, my soul, find rest in God;
    my hope comes from him.
Truly he is my rock and my salvation;
    he is my fortress, I will not be shaken.
My salvation and my honor depend on God;
    he is my mighty rock, my refuge.
Trust in him at all times, you people;
    pour out your hearts to him,
    for God is our refuge.

 

High CBD Hemp Oil: 2nd UPDATE. PLEASE READ!

Yesterday I posted the following blog.  If you have already read this, scroll down to the bottom for the latest update as of Sunday, March 23, 2014.
I have been instructed in another forum to check the United State’s Drug Enforcement Administration (DEA) for the ruling on industrial hemp intended for human consumption.  High CBD hemp oil is not medical marijuana (MM), however it does contain trace amounts of THC:  a controlled, Schedule 1 substance.  Evidently the ruling in 2003 has not been significantly altered by recent case law (although I do not have access to more recent decisions to check this myself).  Below is the original ruling.  In non-MM states (or when out of compliance with state laws where MM is legal), the use of substances for human consumption that contains natural or synthetic THC at any level is considered ILLEGAL!  Below is an excerpt from the final rule.  Each of us will have to decide how we will handle the use of high CBD hemp oil whether or not you reside in a medical marijuana-legal state here in the United States.
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[DEA-206F] RIN 1117-AA55 Exemption From Control of Certain Industrial Products and Materials Derived From the Cannabis Plant AGENCY: Drug Enforcement Administration, Department of Justice. ACTION: Final rule. SUMMARY: The Drug Enforcement Administration (DEA) is adopting as final an interim rule exempting from control (i.e., exempting from all provisions of the Controlled Substances Act (CSA)) certain items derived from the cannabis plant and containing tetrahydrocannabinols (THC). Specifically, the interim rule exempted THC-containing industrial products, processed plant materials used to make such products, and animal feed mixtures, provided they are not used, or intended for use, for human consumption (and therefore cannot cause THC to enter the human body). DATES: This final rule becomes effective on April 21, 2003.
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Since I live in a State where products containing any amount of THC has not yet been legalized, I have some very important decisions to make.  I am in shock.
And my Lord, Jesus, is still on the throne.  Headed to prayer . . .
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Update Sunday, March 23, 2014
Just found the following ruling from a 9th Circuit (Federal) Court that would supersede the ruling of a federal agency such as the Drug Enforcement Agency:
The DEA’s Final Rules purport to regulate foodstuffs containing “natural and synthetic THC.” And so they can:  in keeping with the definitions of drugs controlled under Schedule I of the CSA, the Final Rules can regulate foodstuffs containing natural THC if it is contained within marijuana, and can regulate synthetic THC of any kind.   But they cannot regulate naturally-occurring THC not contained within or derived from marijuana-i.e., non-psychoactive hemp products-because non-psychoactive hemp is not included in Schedule I. The DEA has no authority to regulate drugs that are not scheduled, and it has not followed procedures required to schedule a substance. The DEA’s definition of “THC” contravenes the unambiguously expressed intent of Congress in the CSA and cannot be upheld.   DEA-205F and DEA-206F are thus scheduling actions that would place non-psychoactive hemp in Schedule I for the first time.   In promulgating the Final Rules, the DEA did not follow the procedures in §§ 811(a) and 812(b) of the CSA required for scheduling.   The amendments to 21 C.F.R. § 1308.11(d)(27) that make THC applicable to all parts of the Cannabis plant are therefore void.   We grant Appellants’ petition and permanently enjoin enforcement of the Final Rules with respect to non-psychoactive hemp or products containing it.
So as of this date, in the interest of Gentle Readers in all 50 states (where marijuana is legal and where it is not), the tide is moving back towards my original statements:  high CBD hemp oil (containing trace amounts of naturally-occurring THC for synergistic benefits) is available in all 50 states.  I have a few follow up calls to make to ensure that my statements here are accurate.
So exciting.  Please forgive the confusion.  Trusting the Lord in all that He will direct my paths for His glory alone.  (Proverbs 3:5-6)

CBD Hemp Oil and Seizures

Personal Update:  I continue to experience a 40% overall improvement in seizure activity and related noxious symptoms just 16 days after starting high CBD hemp oil (HCBDHO).  After 2 1/2 years of serious complications to Lyme, mold, Candida and biotoxin illness:  I am amazed!

Here’s the research that I found that led me to discovering this LEGAL alternative to medical marijuana (more on that in a moment):

http://www.ncbi.nlm.nih.gov/pubmed/7413719

http://www.ncbi.nlm.nih.gov/pubmed/7028792

http://www.ncbi.nlm.nih.gov/pubmed/22696383

After seeing that there was authentic clinical research supporting the use of “cannabis” for epilepsy, even though I was diagnosed with non-epileptic seizures, I wondered how I might obtain it.  Purchasing medical marijuana when it’s not legal in your State is a complicated process and risky.  Some persons have obtained State I.D.’s in the state where MM is legal, set up post office boxes and even used the addresses of friends or family who live in the MM state.  I did not feel comfortable with this, even though I was suffering tremendously on a daily basis.

The story of Charlotte changed everything.  Charlotte was 5 years old when her parents became heartbroken over the hundreds of daily seizures their precious daughter had as part of Dravet’s syndrome.  Her father researched alternatives to the myriad of medications that were not working and found CBD medical marijuana.  Finding some to try was difficult even in Colorado where MM is legal since CBD is generally in concentrations too low to make a difference.  CBD can reduce the “high” and confound the benefits of THC found in MM; it was long ago cultivated out of most strains.  The parents found the Stanley brothers who had high CBD hemp, were willing to grow it for Charlotte, and were willing to sell it to them with the proper orders from two pediatricians as required in Colorado.   Charlotte’s seizures stopped for days after the first dose!  She is now gaining in all developmental milestones and reclaiming her young life much to the delight of her parents.  Other parents around the world are flocking to Colorado to get on the waiting list for Charlotte’s Web:  the high CBD cannabis.

I believe it is the Lord who allowed me to ask the question of whether or not CBD (cannabidiol, a type of cannibinoid) is available in other types of cannabis.  While medical marijuana and hemp are the same genus of cannabis but the species containing mostly THC is generally cannabis sativa and the species containing mostly CBD is generally cannabis indica.  From here I will call CBD/cannabis indica:  hemp.  Industrial Hemp is another term for non-psychoactive cannabis.

Industrial hemp is grown outside of the USA and imported for hemp fiber products, oil with elevated essential fatty acids, and more.  When cultivated for high CBD, hemp oil has more physical effects and can be sedative as it acts upon the endocannibinoid system of our cell walls.  There’s a lot of technical stuff here so I’ll save that for another post.  THE TAKE HOME MESSAGE is that you do not have to use MM to get the benefits of high CBD hemp oil:  HCBDHO can be extracted from hemp plants as a nutritional product and that product is LEGAL in all 50 of the United States of America!

Industrial Hemp is grown outside of the USA for fiber, cleaning up soil contamination, fuel, clothing, paper, oil high in essential fatty acids, and CBD oil.
Industrial Hemp is grown outside of the USA for fiber, cleaning up soil contamination, fuel, clothing, paper, oil high in essential fatty acids, and CBD oil.

From here I set out to figure out how a person takes HCBDHO, how is it dispensed, who sells the best products for me, and what companies are reputable.   I did not want a product from a start-up company with an inferior product laced with flavorings, fillers, and sweeteners.  I needed a concentration that would be effective and cost-effective as pure oils can be pricey.  I wanted a company who could answer my questions and had sound business practices to indicate that it would still be there for me next month and next year when I got well.  I believe I have found that product and that company.  (For more information and information on how to obtain a discount, contact me via the Facebook page:  www.facebook.com/seizurefreezone)

Today I just wanted to share that for persons with seizures and seizure-like episodes, there will be hope for many in the use of high CBD hemp oil.  It’s been here all along, running under the radar of controversial medical marijuana.  Who knew?  Now you do too!  Please share this information with others who might be interested!

P.S.  Relief for persons with seizures is just the beginning.  Just Google any of the key words written here “and” a medical condition or symptom (for example CBD and fibromyalgia). You just might be delighted with what you find!

P.P.S. Watch an informative video by Dr. Sanjay Gupta, a former White House Fellow under the Clinton Administration at:  http://www.youtube.com/watch?v=B4GUkzTnFG0   Remember to watch for the mentioning of CBD, THC, or ratios of the two together.   Of course, preparations with THC will require purchase in a State where MM is legal!  :J

Recovery is a jagged line

Today my words came back to me.  My beloved Steve was comforting with his encouragement that there can be many setbacks even when on the road to recovery.  Ah yes.  The old, “recovery is a jagged line” speech.  I have let those words fly many times when working with my patients as an occupational therapist.  There was the cardiac patient who was frustrated with having to restrict his activity level to basically mope-ing around the house for his first week home from the hospital.  I also recall a lady practically quarantined in a back bedroom of her home with a great view of the surrounding woodlands.  She had a portable refrigerator, phone, laptop, accessible bathroom, hospital bed, wheelchair, walker and many conveniences to help her recover from a knee replacement surgery.  I had to encourage her to push up her jagged line a bit lest she become too comfortable in her hospital room at home!

occupational_therapy_no_limitsOne of the many reasons I enjoyed working in home health care was the ability to use the person’s real-life situations, supplies, and responsibilities as part of his or her occupational therapy.  The role of an O.T. is to evaluate the daily activities of an individual and the skills needed to complete those activities.  When there is a breakdown due to an illness, surgery, mental health problem, developmental delay, disability, or disease process, the O.T. works with the patient and his or her resources to restore function.  I was always amazed at how “resourceful” some patients could be!  I think the farmers were the best.  I’ll never forget the industrious wife of a patient suffering after several failed back surgeries.  The lady of the house had built from scrap wood a rolling cart with a seat on top and rope attached to move it along the floors in her home.  What was she moving?  Well her husband of course!  He was eligible for a wheelchair rental but evidently the subject never came up.  I don’t think they even wanted one when it became available.  The downside:  the gentleman would not likely become independent in household mobility and related activities when sitting on a cart that had to be pulled by others.  Recovery is sometimes a flat line too:  no true recovery at all.

As for me, the recovery is moving forward.  I am 12 days into using high CBD hemp oil to attempt to control daily seizure-like tic episodes.  Today I had a setback for about 2 hours but at least the episode was low grade without a severe neck headache or pain.  And when night time rolled around to my bewitching hours of 9-11:00 p.m. there were pre-tic symptoms and nothing else.  This is the second night in a row with relief!  Every night prior to this and for the past 8 months I have had 2-4 hours of intermittent seizures.  Virtually every day or night for the past 2-1/2 years I have had intermittent waking seizures.   Praise the Lord, the pattern is changing!  At either set intervals or when noxious symptoms start I take a full or partial dose of high CBD hemp oil and get relief.  Nothing has ever done this before!

It’s not like I haven’t prayed, submitted, waited, or tried more diets/supplements/drugs/manual therapies/technologies/chiropractors/testing/remediation than, as they used to say, “Carter has got pills!”  I am actually still preparing to see methylation and biotoxin illness specialists in Michigan later this month.  It is likely that the cause of illness is related more to exposure to biotoxins than Lyme disease.  All that may be clearer sometime down the road.  At this time my husband and I are rejoicing for the relief from our hellish nights.  He just might start getting a full night of sleep before too long!  That is if we don’t stay up for other reasons . . . ;J

If you are curious about high CBD hemp oil then I offer this informational website:  www.mycbdresearch.com  and join the discussion on Facebook at:  www.facebook.com/CBDhempandseizures  There’s hope here for many with seizures and other neurological, intractable health conditions.  For all of us there is one ultimate source of hope that will sustain us whether recovery is a straight, jagged, or invisible line:  a relationship with the Lord, Jesus Christ.  To find Him we only need to get on our knees and open our hearts to His enduring love, His love letters to each of us in the Bible.  I would have never made it this far without my Jesus.  I am humbled and grateful for many aspects of these past 2 1/2 years:  I’m working on accepting the wretched parts.

Meeting you, Gentle Reader, along the way is a sweet gift.  Thank you for being a part of my recovery too.  JJ