I got to Walmart today

Days where I just exist

Give way to tears

More often than not

Everyday now.

Waiting no longer suits me

Although it is my garment

Worn through hopes dashed

Threadbare to no end.

I study like a school girl

Not sure where the letters lead

Thinking this is “it”

And it is not.

Surely it is darkest

Before the break of day

That is my hope I guess

And my Lord too.

So little do I do

As the grass grows tall

Alone too much too

At least I got to Walmart today!

Walmart, shower, Target, Meme, pajamas, old man, glasses

Treatment Update and Anniversary

Six years ago tonight began a journey that has tested me in every way possible; brought me closer to my Lord and Savior, Jesus Christ, than ever before; deepened my love and gratitude for my beloved Steve; and helped me to grasp the incredible resilience of the human body/human spirit.  Thank you Lord for your sustaining grace through it all!

Rather than go into the details, I will simply refer you, Gentle Reader, to my story here.  Briefly, I got deathly sick with viral hepatitis after kayaking in a local reservoir and never fully recovered.  Seizure attack episodes began on a daily basis within a couple of months and have yet to resolve.  This serious illness has had many names, required extensive treatments at considerable expense, and rendered me unable to work in my profession of occupational therapy.  I miss working.  The social isolation, sense of loss, grief, and various disabilities have changed my daily life considerably.  Without my faith in Christ I would not have made it this far.  I do have hope for a better tomorrow which brings me to my quarterly treatment update as follows:

Recent lab tests found extremely high pesticide toxicity.  I immediately increased Far Infrared Sauna and various detox treatments until I could meet with my functional medicine Doctor.  Now after two intense weeks of exhausting research, medical appointments, and enough follow-up that would make the great T.V. detective Colombo proud, I am hoping that my Doctor’s office has processed a referral to a State Toxicology Center.  I found a neurologist that specializes in seizures related to toxicity and I want to see her as soon as possible!

In the meantime, I try to function as best as I can.  Sadly the very difficult titration of a new medication either keeps me up most nights or wakes me up with breakthrough tic attacks every two hours.  (I still spend most weekends in and out of bed with sickness.)  The focus now is to inhibit acetylcholine that we hypothesize is causing the seizures because of damage from organophosphate poisoning (OP).  Acute treatments for OP are well known but not for long term effects; we simply do not know how long I have had this toxicity.  The medication is an interim measure.  I am wondering if various Lyme, fungal, viral, and even parasitic infections have sequestered OP like these organisms can do with other toxic agents.  We know that detoxification can increase feelings of sickness called “herxing” (from release and recirculation of mycotoxins for example) when we either detox too fast or our liver or kidney pathways are blocked.  I now use bitter herbs with various binding agents in a “push-catch” protocol that helps to better tolerate the process.

organophosphate poisoning, round-up, pesticide, herbicide, toxicity, toxic, clonidine, seizures, treatment,acute

So here we go again with another new treatment direction!  At least this time I have concrete lab values to help explain what is going on along with a new, promising treatment direction.  In the meantime I’ll be hanging out as the “chick in the box” (as Steve says) at about 124 or more degrees, trying to literally “sweat it out” in our sauna. There will be no anniversary celebration per se for enduring six years of hell albeit with some sweet moments sprinkled in here and there.  There will be humility though as I try to be a godly steward of this journey my Lord has entrusted to my care.  I do have hope for a better tomorrow.  That is where this blog began 6 months into this 6-year journey and I hope that is where I will remain beyond that too.

Thank you for sharing the road with me Gentle Reader.  When I see my stats ticker go up a notch my spirit gets a little lighter, knowing you are there.  Thank you.

With love,  JJjer, 29:11, jeremiah, hope, future, plans, says the Lord, Christian

A Call to Grace

10 Am I now trying to win the approval of human beings, or of God? Or am I trying to please people? If I were still trying to please people, I would not be a servant of Christ.  (Gal 1)

butterfly, Galations, serve, burdens, break free, servant, let go,Christian, heart, image

From the perspective of the supernatural power of grace bestowed by my Lord, Jesus Christ, I write to you this day.  For my flesh is more broken than before, hopes beaten up from the road, and spirit exasperated from the waiting.  Yet I am compelled to look beyond my angst to the call to grace . . .

If I have fallen short of praising my Lord then I am sorry.  Please forgive me.  The alms and adoration to my Savior is what shall draw me nearer to Him and lift my sorrows.

Should I have focused too much on my own needs and not those of others then my selfishness has thus blinded me.  The trials of life have more to do with our response to these trials (and more importantly to others) than to their resolution.  I cannot serve others when my mind is full of woe.  There is always room to love on others.

When I act to make my own plate o’ food and have not called upon God’s infinite power to feed my family then I have shorted all of us to the weakness of my own hands.  My Lord is sufficient for me, enables me to serve beyond my ability.

Where my face has turned to the shiny distractions of this life, pining after them (or worse coveting that which I have been blessed) then I have really made my world smaller.  Who knows the blessing that will come from sacrificial giving?  Gratitude?  And proper placement of my gaze to the Cross?

How much better it is to wait on my Heavenly Father than to cry out my need only to act thereafter in my own strength?  Oh Lord, help me to wait, to listen, to dwell and nothing more during these times.

That about sums it up right now.  Thank you to those who prayed for me last week and who remember me in your prayers.  Please let me know how I may serve you too, k?

JJ

Treatment Update: The Beasts Within

If you follow as many of the various functional medicine forums as I do, you probably have noticed the topic of parasites coming up more often these days.  In fact, there is a free “Parasite Summit” coming up in September.  This topic became a personal one for me within the past month.  Allow me to explain.

A friend and her sister were receiving some complex treatments for serious health issues that they have been battling most of their lives.  Shortly after their focus turned to testing and treatment remedies from outside the United States, my friend suggested I look into parasites as the potential cause of the seizure attacks I have been battling for over 5 years.  I looked into it.  Their provider would not be for me yet the topic launched me into some new research about the time my hubby and I were set to leave on an extended vacation.  Imagine realizing during your first day away from home that you have a new infection that requires attention IMMEDIATELY!  Yeah, well when your bum itches making you crazy insane, ya gotta fix it FAST!

So right before heading out to my River Bear’s kayaking nationals 2 States away, wifey-poo requests hubby-poo stop at a local drug store for an over-the-counter medication.  Thank the Lord he said yes!  My symptoms diminished within hours!  The problem was not a yeast infection but a nasty pinworm/parasite infestation!  How did I get it?  Who knows?!  Pinworms are highly contagious and you can pick them up almost anywhere.  The big shocker was that the seizure attacks virtually disappeared for the next 24 hours after treatment!  I wasn’t expecting that!  No episodes falling asleep or waking up; barely a little tic-zip broke through here or there.  What was going on?

Three weeks have now passed and I have repeated the OTC remedy a couple of times.  I found that clove essential oil with coconut oil provides some topical relief with the added benefit of killing the parasite eggs.  Who knew?  And now my Functional Medicine Doc is testing me a couple of different ways with a couple of different lab tests to see if we can capture all the critters that may be wreaking havoc “down there,” in my body, and brain.  Yes:  in my brain.  Parasites can move to any tissue in the body once they hit the bloodstream or lymphatic system.  My MRI and CT scans have been negative for typical markers that would suggest Central Nervous System involvement, however, allergies to contrast dyes have prevented use of same in diagnosis.  In the end it really doesn’t matter to me if tests show anything or not.  The idea of parasites just makes sense to me.

Simply stated, parasites develop a symbiotic relationship with their human “host.”  They can actually help the body by balancing blood sugars or harboring heavy metals/toxic chemicals (that would be toxic if left to circulate freely).  Parasites are not a good thingy though.  They can also harbor infectious elements (some have suggested Lyme disease bacteria) setting up resistance to treatment, to eradicating the infections.  And I thought it was the cysts and biofilms that were the biggest issues in treatment resistance!  As they continue to live in our bodies, they drain nutrition and mineral resources in addition to creating a host of negative symptoms that mimic a wide range of diseases.  Gut dysbiosis is a big example to which I can relate:  my Doc wonders if parasites are causing my belly pain which has not changed much after two different treatment protocols for Small Intestinal Bacterial Overgrowth.  He says that worms/flukes/bugs can favor the right lower quadrant and where the trouble lies for me.

But the Palo Alto Toxoplasmosis Serology Lab testing was negative.  Pinworms don’t typically cause neurological problems.  Stool testing hasn’t found anything in the past even when I put a WORM in the sample cup!  Oy vey!  Maybe these two new tests will yield something useful?  In the meantime, I am taking lots of anti-parasitic herbal formulas with a concoction of binders with gratitude that neither trigger seizure episodes as they have in the past.  Lord willing, I am going to get well!  Indeed there are parts of days where I feel some positive changes for the better as a result of these additions to my care.

If you have followed this blog for awhile then you know I am always looking for answers, for hope.  I do hope to get well and am working every day towards that goal.  Overriding everything however is this guiding principle:  that my true hope is in my Lord and Savior Jesus Christ who will one day make me whole, here with you or when we meet in heaven.  Nothing will change that.  He is gracious and good to me even on my worst of days.  I am so humbled to feel His presence on my bed of sickness as well as the moments where I can have a little fun here and there.  Speaking of fun, did I tell you about white water rafting 2 weeks ago?  Yeah, you heard me!

Stay tuned Gentle Reader.  Pictures and more stories to follow that will blow your socks off . . . or at least get them a little cold and wet!  The Snake River is about 60 degrees even in August dontcha know!  More on that one next time.  Gotta take some stuff and get to bed.

Take care, JJ

white water rafting, Snake River, white water, rapids, Class II, Class III, raft,trip, Mad River, living, in the moment, one day at a time, break, chronic illness, fun

Snake River, Jackson Hole, Wyoming

 

Trusting Jesus

The following is an excerpt from an article entitled, “The One Who Returned Home” by Naomi Zacharias on page 14 of the recent http://www.rzim.org quarterly newsletter (Spring 2017, I believe).  She quotes a letter that recounts a story from Donald Miller’s book Blue Like Jazz, about a friend who was a Navy SEAL.  The closing remarks are from Naomi.  I hope you enjoy this piece as much as I did!  JJ

(The Navy SEAL) was performing a covert operation, freeing hostages from a dark part of the world.  When they entered the room, it was filthy and dark.  The hostages were curled up in a corner, terrified.  The SEALs initially stood at the door and called to the prisoners.  They identified themselves and asked the hostages to follow them, but the hostages wouldn’t move.  Alienated and frightened, they instead hid their eyes in fear.

This particular SEAL put down his weapon, took off his helmet, and curled up tightly next to the other hostages.  He was trying to show them he was one of them.  After meeting their eyes, the Navy SEAL whispered that they were Americans and were there to rescue them.  “Will you follow us?” he said.  The man stood to his feet.  First one prisoner did the same, then another, until all of them were willing to go.

(The person sharing this story) reminded me that Miller concluded this:  “I never liked it when the preacher said we had to follow Jesus.  Sometimes they would make him sound angry.  But I liked (this story instead).  I liked the idea of Jesus becoming man, so that we would be able to trust him, and I liked that he healed people and loved them and cared deeply about how people were feeling.”

(The storyteller) shared that it reminded her of what Jesus has been for her.  But it struck me how she has embodied this message in her ministry.  (The storyteller’s name is Analise.)

When Analise hit rock bottom, the reason she found safety in (a program called) the Word Made Flesh is because they were willing to sit in that place with her; they remember their own lostness and the mutual need for a Savior who rescues us.  He did not choose to do this in grandiose fashion.  No, he chose the utter loneliness and pain of the cross.  And so it is he who beckons us by sitting down beside us, showing us he became one of us.  He tells us he is our Savior, and he leads us home — so that we may all be the one who returned home.