Full Moon Follies

My beloved qualified as my “Night in Shining Armour” last night.  If only it were for a victorious time instead of quite the opposite . . .

One would hope that significant interventions to quiet my inner storm would start working already.  Or at least tame the tempest beast when challenges such as noxious exposures and the mysterious workings of a full  moon come along.  I have read a hundred or more testimonies of the latter:  that for persons battling chronic disease, symptoms can worsen around the time of a full moon.  Perhaps it coincides with the life cycle of various bacteria or parasites?  Who really knows?  What I do know is that the worst of everything came forth and both of us are pretty beat up today from the lack of sleep along with the emotional and physical trauma.

  • Continuous convulsive spikes of every dimension
  • Headache, joint and muscle pain, ringing in my ears, dysarthria, bradykinesia, left-sided parasthesia, hypersensitivity to sensory stimuli
  • Visual anomalies (spots of bright lights when my eyes were closed)
  • Cognitive slowing
  • Difficulty breathing and communicating
  • Incredible frustration and discouragement leading to hysterical crying and anguish
  • Neurological collapse requiring maximum assistance with feeding, toileting, and dressing
  • Eventually passing out in bed around 2:30 a.m., partially dressed with no recollection of falling asleep

The 100% THC-free CBD oil provided a temporary pause in seizure attacks as did a large dose of liposomal Biocidin.  The entire episode finally ended shortly after taking my (3rd) nightly dose of Low Dose Naltrexone.  I must add that the only positive part of this experience was when I could open my eyes and saw my hubby in his night clothes as he cared for me.  I liked that!

Please pray for us.  We are exhausted.  The demands of life go on just the same.  My MRI with NeuroQuant study our of State will be delayed due to severe weather expected tomorrow; I am hoping to reschedule the appointment for later in the week.  Let’s hope that the NeuroQuant and the updating of multiple medical tests this month will be fruitful, Lord willing.  My Jesus goes before us and sees us through it all.  I trust in His timing, His plan for our lives.  Thank you for praying.

And thank you Steve for your heroic love and care.  May the Lord carry you today.

We wait on the Lord this day and always as we try to figure this out!  This illness is killing us. JJ

A Well-Balanced View of Cannibis

Since “high CBD hemp oil” was the most widely read topic in my Hope Beyond blog, I’ve decided to post these helpful resources!

Here is a well-balanced article that includes the definitions of 1) legal high CBD hemp oil (HCBDHO) or cannabis sativa from industrial hemp that I tried over a year ago and 2) medical marijuana.  The two are different.  Versions that are legal in all 50 states have a 3% or less concentration of THC:  the substance that creates the “high” in addition to other medical benefits.  Medical marijuana may only be sold in the United States where it is legal and is of a strain called cannabis indica.

http://www.sophiahi.com/cannabis-crucial-in-lyme-medical-marijuana-and-overcoming-chronic-illness-by-dr-tristin-wallace/

By the way, I did trial the use of HCBDHO for about a month then discontinued it.  While I initially received a reduction in seizure attack episodes, I had to keep increasing the dose to receive these benefits.  As my dose increased to the therapeutic level cited in clinical research, the benefits stopped.  Then I started to have waking and sleeping night terrors!  I suspected that the trace amount of THC in the product (from Bluebird Botanicals), was too much for me.  Sadly, my trial ended.  The owners of Bluebird Botanicals assured me that their product was tested for purity and absence of mold mycotoxins.  They were most gracious with their time in guiding me in the best use of their product.

Flash forward almost 2 years and I have become familiar with the exemplary work and products of another company, Quicksilver Scientific.  Should I desire to try HCBDHO again, here is the source that I would recommend.  The delivery system of liposomal nanoparticles facilitates the absorption of CBD directly into the bloodstream within a minute making it comparable to a medical intravenous infusion!  Quicksilver Scientific requires that you buy Liposomal CBD through a healthcare practitioner; the site has a Practitioner Locator on the home page.  Please contact me for more information locating a practitioner if needed.

CBD1sheet
Available at:

https://www.quicksilverscientific.com/solutions/purx-cbd-Cannabidiol