And then you just hope to move sideways

Here’s a brief update on my brother, Michael, and me with a prayer request:

At this moment Mike is moving from an acute, inpatient rehabilitation facility to one of the lowest-rated nursing homes in the city of Detroit.  The social workers claim that of the 35 facilities they have contacted, St. Francis is the only one who would accept him.  The reason?  He is “Medicaid Pending” and does not have any other insurance.  We are sad and concerned.

Today Mike’s rehabilitation stops until Medicaid is approved.  Today Mike learns how the indigent of our society are left behind in facilities located across the street from an abandoned buildings in scary neighborhoods.  Today Mike decides whether or not he is a FIGHTER.  I only got to talk to him briefly before the transport vehicle came to wheel him out of his private room and begin the next leg of his recovery journey.  He has made tremendous gains in cognition, swallowing, self care, transferring from one seat to another, and even walking.  Mike has had close monitoring of his medical condition, medications, and test results.  The plan to address a complex cyst on a kidney remains unclear as he moves away from his rehabilitation and medical specialists.  None of them go to the new facility.  It is unlikely that he will receive any rehabilitation therapies from this point forward until his Medicaid is approved.  We are sad and concerned.

We are hoping that this transfer is a move sideways and not the beginning of a downward slide.  At this point I do not believe that he knows that he will be receiving fewer services.  He is concerned about the facility location and the comfort level of his fiancé visiting him in an unsafe neighborhood.  Gratefully our cousin, Lisa, is an optometrist who sees patients there every 6 weeks.  She has known the staff there for 10 years.  We are hoping that this helps place Mike in a favorable light.  Lisa has also offered to accompany Mike’s fiancé, also named Lisa, on her first visit to the new place.  I am exceedingly grateful for this.  I wish I could be there too.  I cannot go at this time.

I had my own questionable “move” this past weekend.  Difficulty breathing and bizarre, violent seizure attack episodes landed me in the emergency room.  I received “treatment” and returned home; the last three days have been marginal yet better in some ways.  I saw my family practice physician yesterday and was able to put together a few plans to tighten up my treatment plan.  Unfortunately I had to escape outside for fresh air THREE TIMES due to the mold aerosols in his water-damaged office building!  Did I mention that I was already wearing a charcoal mask?  Geez.  I was re-reading the Clinical Summary this morning from my visit and collapsed at the kitchen table into a pile of seizure-like tics.  Perhaps the aerosols followed me home on the porous copy paper?  Who knows.  My gracious husband has seen me through it all, threw out the papers this morning and opened the bay windows to help me revive.  Thank you my beloved Steve!

Sometimes it looks like things are going downhill when actually we have just stepped a little to the side.  Many hidden blessings have come from my brother’s stroke:  developing a closer relationship with his fiancé, rekindling a friendship with my amazing cousin Lisa, and seeing a few family members step forth to love on my brother are wonderful.  And in my own situation I now have a biotoxin illness doctor who is willing to go to bat for me when headed to the ER on a Sunday in addition to an incredible husband who is my kinsman redeemer.  Steve is willing to love me, care for me, and defend my special needs when needed on my journey to wellness.  He believes me that this crap-ola-ski is NOT all in my head and is helping me overcome it too.  In both my brother’s and my own situation, I am seeing new expressions of love that have not been there in our lives before.  Cool beans.  Thank you Jesus!

Gentle Reader, would you kindly pray this scripture with me?  I pray that we will lean on the Lord, trust in the Lord, and have courage to move forward when-and-as the Lord leads these next few weeks.  I need to rest in the tender care of my Jesus and not get ahead of the work He is accomplishing in today.  After all, I do not want to miss the richness of His tender care, His presence in each breathing moment.  Such a joy it is to know that He is here carrying Mike this afternoon in that transport van.  Such a joy it is to know that He is here too with me and you carrying our thoughts and prayers to our Heavenly Father for His wise care according to His Divine plan for our lives.  Perhaps sideways is a good place to be right now.

Want some bulletproof coffee?  Let’s go out on the patio and sit for awhile.  The sun is shining this afternoon and the narcissus, tulips, hyacinths, and buttercups are blooming!

Proverbs 3:5-6
Proverbs 3:5-6

 

 

Sometimes you just know

13 But when he, the Spirit of truth, comes, he will guide you into all the truth. He will not speak on his own; he will speak only what he hears, and he will tell you what is yet to come. 14 He will glorify me because it is from me that he will receive what he will make known to you.  (John 16)

Jesus spoke these words as he was instructing the disciples about the Holy Spirit they would receive at Pentecost.  These words came hours before He was to be arrested, tried and convicted of crimes He did not commit.  He would be tortured, beaten and crucified in fulfillment of the scriptures that were written hundreds of years before He was born.  All of this happened so we could be saved from the consequences of our sin and live forever with Him in heaven.  For those who believe in Him, He dwells in their hearts, comforted and counseled by the Holy Spirit.  Call it supernatural intuition if you like.  Sometimes you just know something to be true, the right way to go.  For followers of Jesus Christ, walking in the Spirit of truth is a smidgen of heaven on earth:  one’s heart can be at peace at last.

I experienced this today.  A phone consultation with a second physician within a week brought hope.  I felt like my heart was at home in her care.  I was moved to tears when Dr. B. confided in me her faith in the Lord, shared how she had reviewed my records at length in preparation for our appointment, and led me through a plan that incorporated everything that has transpired in the past 2 years.  She has experienced biotoxin illness herself and has worked with the leading authority in the United States on this topic.  Her gentleness calmed my fears.  She listened.  Hey guys:  I am going to get well!

This next phase in my “Hope Beyond Lyme” journey will likely take another year.  The treatment steps will include baby steps such as 1/4 tablets of medication, micro nutrition, retesting at better labs, and plenty of out-of-pocket expenses.  At this point I am trusting the Lord to provide, to guide.  My husband has been a great spiritual leader during this time of illness and I know he will lead us in these next steps as well.  I am so glad I followed his advice not to fly across the country for medical consultations!  We could not have afforded it anyways.  And now the Lord has provided help from a clinic just a 2 1/2 hour car ride away.  Pure Michigan.  I’m going home to my home State for healing!

O.K. I don’t know if everything will be rosy but hey, I have hope again.  Gentle Reader, isn’t that just swell?  :J