Gathering medical records and other documents, making travel arrangements that accommodate my sensitivities, and putting together a timeline of the serious illness I have been battling for 8 1/2 years has been an emotional process for me. Just surviving to this day has been a traumatic experience. The blessings are there too yet not as clear right now with the hundreds of sheets of medical records behind me as I type this post.
I have endured so many dead ends and dashed dreams for recovery, physical damage from thousands of convulsive episodes, tens and tens of thousands of out-of-pocket expenses, and so many losses on every front of our lives. One truth is clear that I would not have survived this far without my faith in our Lord, Jesus Christ. He was my Rock when my breathing would not start in the darkness of night or my legs would not move to get me to the bathroom. Both my beloved Steve and my Lord carried me through it all to this moment in time.
Regardless of what has gone before us, Steve and I are pressing forward, hopeful for a good result at an upcoming consultation at the Mayo Clinic. For the first time since the onset of this serious illness, I get to see one of the top Doctors in neuroimmunology at THE top medical facility in the country. That is humbling. I am grateful.
Now is the time to pray for a cure to the daily convulsive episodes. Lord willing, I will be well! Thank you for your love and support, Gentle Reader. Love to you, JJ
Staying on track during the recovery from a chronic illness requires faith in the Lord for sure. From there are the little strategies that keep me sane like writing in a treatment journal. With so much going on from ever-changing meds., supplements, Rife programs, OTC remedies, nutritional strategies and the symptoms that follow, I would be lost without my handy Crayola PosterMarkers! This also helps during appointments with my LLMD when he asks about the course of illness and treatment responses (or lack thereof).
Here’s my simple color key that helps me on track:
Bright pink = nightmares
Blue = headaches
Orange = tic or seizure attacks (thin line for tics; bold line for attacks
Yellow= new treatments
Green = pain, burning, movement anomalies
Red = overall sickness, sweats
Purple = new stuff
Brown = elimination, detox
Then there’s the traditional yellow highlighter = Beam Ray Rife Treatments and Duration
So there you have it. I’m on my second box of markers and the green one is running out of ink again. I thought it would be the orange marker pooping out first but it’s got the staying power I did not expect! So glad the bright pink and purple ones haven’t seen any activity for the last month. Those colors are best portrayed in my garden right now, thankfully! I got to retire the brown one a couple of months ago too. I’m sad that the blue one gets used most days and especially since physical therapy ended 2 weeks ago. I had improved and needed to use the blue and green markers less when P.T. was weekly but the insurance company doesn’t want to play nice with my Crayola buddies. Geez!