The Nurse Who Wore Perfume

 

Nurse Ratchet from One Flew Over the Cuckoo's Nest
Nurse Ratchet from One Flew Over the Cuckoo’s Nest

After about 4 hours breathing fresh oxygen being pumped with fluids, I revived after a most bizarre episode.  The Benedryl made things worse yet brought about 12 hours of slumber on and off into the next day.  Whew!  What an ordeal it was . . .

Such is life when battling biotoxin illness, multiple chemical sensitivity, mycotoxicosis, Chronic Inflammatory Response Syndrome, or what-is-formerly-known-for-me-as Chronic Lyme Disease.  On Saturday I was counting the dollars and quarters from the neighborhood girls who bought friendship bracelets at our garage sale.  I noticed a familiar perfume scent on the money that reminded me of a houseguest not long ago.  Perhaps it was Flora by Gucci again?  Anyways, no sooner had I zip-locked everything into a sandwich baggie when I started to feel sickly.  Bizarre and violent seizures followed, ramping up and ramping down over the next hour.  Holy crap!

I knew I had overdone things somewhat working the garage sale and doing some yard work the day before.  But hey, we had some things to get rid of and were delighted to pass some items along for free.  The girls who bought the bracelets were adorable!  I couldn’t resist letting my initial Trinity Jewelry by Design originals go for 1/6 the original asking price just to see the smiles on their faces.  Of course the older sister next door would need and extra one for her sister who was away at a dance competition so 2-for-1 would be the best deal for her.  Same thing applied to her sister’s best friend who was in the midst of a little object lesson about not taking money from her mother’s purse to buy bracelets!  Lesson was learned and we had smiles all around.  I was so delighted to send them along and tell them the significance of the 3-bead design (for the Father, Son, and Holy Spirit!).  They looked down at their bracelets like they were hearing it for the first time.  That’s cool.  As they wear them each day I pray that the Lord brings more promptings of His love and gift of salvation through the Holy Trinity.

It’s Monday, I am breathing better today, and I feel reasonably stable.  The windows have remained closed as every-other neighbor seemed to be getting their lawns treated today with fertilizer and pre-emergent weed killers.  Ah the scents of Spring!  All fragrances don’t seem to bother me but I am not taking any chances one day after an imaginary trip to the ER.  Imaginary?  Oh sure, it’s all in my head you see.  They gave me a repeat psychiatric diagnosis probably leftover from the last time I was there over a year ago.  It didn’t matter that my biotoxin medical doctor from Michigan graciously called the hospital on my behalf with an update.  Chronic Inflammatory Response Syndrome just isn’t on their radar.  The ER Doc seemed to give the impression that he was understanding that the difficulty breathing, obvious seizure attacks, and intolerance to the cold hands of the admitting nurse were related to CIRS.  It has its own ICD-9 code don’t you know?  I guess they do not.  Out came the “non-epileptic seizures” and “feeling nervous” diagnoses.  I never said I was feeling nervous!  The third diagnosis was “tremors.”  Yeah, tremors that make your head bang aren’t really tremors are they?

Non-epileptic seizures have TWO causes:  1)  biological and 2) psychiatric.  Most medical professionals ignore the first cause.  If they were psychiatric they would happen only when I am under stress or have a need for secondary gain (like attention or control).  Sorry Doc.  These episodes happen unannounced, unprovoked, and at happy times.  They started with an exposure to a cyanobacteria when kayaking in a local reservoir with my beloved and some fun people.  I love my life with Steve and in general.  I am so blessed and grateful for so much even during this time of illness.  Armchair psychiatry without a work-up is wrong.  Test me.  I have nothing to hide.  So frustrating.

Shortly before the completion of the IV fluid and Benadryl treatment, a nurse came into the room to announce that the nursing shift had changed.  She checked the monitor and recorded my vitals before leaving the room in a puff of noxious and cheap perfume.  WHAAAAT?  Why do you think I am in the EMERGENCY ROOM NURSEEEE POO?  When she returned I gently but firmly asked her to leave and not return due to the same.  She said she had received “report” and knew why I was there.  HELLO?  ANYBODY HOME?  Two other nurses came in a bit later and before the IV pump alarm was set to go off (another sensory trigger).  I appreciated their timing and thanked them.  A bit roughly they disconnected the IV, removed the IV in my arm, and began to hurry us along.  Time to go!  I had to ask them to wait a moment as my body started seizing from the shock of the needle coming out of my arm.  Hey, it happens every time a needle goes in or out don’t you know? I really can’t make this stuff up don’t you know?  It simply isn’t worth it and would take too much energy anyways.  Just look at the outpatient records from the 21 IV magnesium treatments at that same hospital this past October and November.  Same reaction.

I felt numb on the way home.  My incredible husband made sure I was settled and quickly got outside to mow the lawn before dark.  I ate a light dinner as fast as I could to gain some strength before giving into the incredible fatigue.  Tic attacks woke me up several times as I slept for about a half of a day total.  The ordeal was over.  My third trip to the ER since becoming ill October 11, 2011 was over.

What do I do now, I wonder?  I mean there are binding agents that I can’t tolerate (chlolestyramine and Welchol) and one that I can (activated charcoal) tolerate but the latter doesn’t register on Dr. Richie Shoemaker’s biotoxin illness protocol.  During a wretched episode earlier last week the Lord gave me some insight that the activated charcoal might work better for me.   So a few grains of AC is all I am doing for treatment in addition to my own election for a mold-free, Candida, low oxalate diet.  Oh yes, and our home will become a safe-zone to reduce exposures.  Sadly there will be no more monthly home group.  I spent the last one in my bedroom with seizure attacks while the group worshipped, prayed, and fellowshipped in our living room.  Even the hint of fragrance amongst them was too much for me.  Sigh.  I  need the fellowship Lord!  And what about the friends and family who will be in town for my husband’s son’s wedding next month?  This is a heartache for both of us right now.  I love Steve’s adult children and his family.  I am grateful for them.  I guess I’ll be Skyped into the bridal shower . . .  And I doubt that I will be able to enjoy playing hostess to family that has not seen our home beautified since they were last here for our wedding 7 years ago.  It’s just so very risky.  Maybe it will be warm enough to visit on our lovely patio.  Hope so.

Oh well.  We’ll figure out something.  We always do.  Better leave that one for a future blog.  More prayer is needed before then fer shur.  JJ

Industrial Hemp: Future Medicine and More

Industrial hemp is the legal cousin to medical marijuana.  While legal in all 50 states, it has not been legal to grow in the United States for decades.  It has to be imported then processed into the products noted below.  Here’s a little summary of the possibilities:

Hemporium-The-Global-Benefits-of-HEMP-Tony-BuddenAs it turns out, the cannabinoid, CBD (cannibidiol), has tremendous health benefits for persons struggling with serious medical challenges.  Who knew that a plant grown with only trace amounts of THC (the compound that creates the high in marijuana, a different type of cannabis) could help so many?  This is not medical marijuana.  For the medically minded, here’s a Scientific Review of the literature on the medical benefits of cannibis including high CBD oil.  To continue the discussion, “Like” the “Seizure Free Zone” page on Facebook and let’s chat!

So why am I so fascinated by high CBD hemp oil?  Well just last night in the middle of a wretched flare up of seizure attacks (brought on by unknowing noxious fragrances of house guests) about 30 drops stopped the episode.  Since the exposure would not end until morning, my husband and I did the best we could to get me through the night when the tic attacks re-flared thereafter with less intensity.  In the past I would have endured a hellish night:  all night long with no relief.  While I would prefer to be cured with this substance, I know that it will not be that easy.  There are methylation and biotoxin illness issues yet to be resolved; gratefully I’ll be seeing some doctors in a new clinic to address them very soon.  Usually a new treatment creates convulsions for me.  That has not happened here.  Where would I be if I had nothing at all to arm myself in this battle?  More living hell indeed.

I am grateful to the Lord for any relief at this time.  The overall pattern of suffering is broken.  The Lord is at work even in this confusing situation.  To say more about that might sound like I know what the Lord is up to so I won’t because I’m not quite sure!  Faith in the promises of the Lord, Jesus Christ will sustain me.  Let’s just say this that I am reasonably at peace in this recent situation and am grateful for the endurance granted to get myself to the appointment on Monday!   Others have had life-changing experiences with new treatments such as CBD.  My prayer is that any of the episodes of my life not be wasted and if it is the Lord’s will, I will be healed.  Everything is usually not resolved overnight anyways . . . unless there is a miracle.

My miracle happened decades ago when I found hope in Jesus.  I would be dead in my sins today if He had not called me to his throne of grace.  That is more important than my health.  Perhaps, Gentle Reader, He can be of some importance to you too?  What good will it do to gain our health and lose the battle for our souls?  We won’t always be here battling the trials of living in a fallen world.  Someday we will die.  The Bible tells us that the decisions we made during our lifetimes will determine what will happen after our lives are over.  I’m holding out for the party in heaven, free of pain and suffering.  I can say that with confidence having believed the truths of Proverbs 3:5-6, John 3:16, and John 14:6.  This suffering is temporary.  I am not home yet.  When I am home, all suffering of every kind will be over.  Cool beans, man.

In the meantime I share a tool that may be of interest to you.  But make no mistake, nothing is more important than the eternal question.  If you stop with the first and never get to the second then this blog is of no value to you.  “Hope beyond” is about looking beyond what we can see to that in which we can believe without a shadow of doubt.  If you would like to have the confidence that your life is in the hands of the God whose thoughts of love and compassion towards you exceeds the grains of sand on the earth (Psalm 129:18), then I invite you to humble yourself and cry out to Him today.  He is waiting to hold your cares, your tears in the palm of His gentle hands  . . .