If I get to see you . . .

 

If I get to see you in the coming year, please understand that I will be singing songs of joy in my heart!  Social isolation has been one of the most devastating effects of serious illness from these past 3 years.  Should the Lord allow the circumstances for me to get out for an activity other than medical or a trip to the grocery store, I CELEBRATE!!!

So if I might ask for a few accommodations when we get together and you graciously oblige and I still get sick then blame any negative symptoms you may witness in me as the consequence of illness and not you!  Very few folks live in a “clean room” like we have here at home.  I did not clean at this level either until it was a matter of survival.  Steve did not engage in my extreme mold/contaminant behavior strategies until two years ago.  These strategies are necessary for this season of our lives together.  Overall I do better when we follow certain guidelines resulting in less reactivity, the worst of which are fewer seizure-like and convulsive episodes which continue daily.  We are implementing some “due diligence” from what we have learned to reduce my suffering with the goal of eliminating this illness altogether.  We believe that the Lord has allowed these trials for mysterious reasons and ultimately His glory.  He is good!

Both Steve and I recognize that there are definite signs that I am getting better.  We have trained our eye to search for even tiny changes in the pattern and intensity of episodes, pain, and reactivity to keep us hopeful that one day I will be well.  It is happening!  So please don’t be discouraged when either one of us might mention that I had a rough night or you witness a significant setback.  Recovery is a long, jagged line of progress, setbacks, and lateral “bunny trails.”  The overall trending is positive!

The most important accommodations that would be helpful if we get together are as follows.

Meeting in a public place:  Select a place with less noise and less loud music.  Newer buildings are generally better than older ones; please no historic buildings or ones with known basements or crawlspaces and history of flooding.  Restaurants that make their own food with fresh ingredients are better able to modify dishes to meet my food sensitivities.  This rules out most fast food places!  Letting me know the name and phone number of the establishment ahead of time will allow me to contact them with my needs and make the experience of ordering food more pleasant for both of us!  Please do not wear cologne or perfume that day.  I will need to greet you and depart with a “virtual hug” to avoid exposures to hidden elements that might be on your clothing or coat.  Forgive me if I sometimes forget this step in the joy of the moment when I see you!

Meeting in your home:  This is still a situation that I avoid since there are too many variables at this time that may cause serious problems.  I cannot come over if you have 1) ever had flooding in your home of any kind from a leaky toilet to a wet basement or 2) have older carpeting.  If you are willing to have me then please remove all fragranced products at least the day before we are scheduled to be together (such as plug-in or spray air fresheners, candles whether lit or not, potpourri, etc.)  Keeping windows cracked open in cooler weather or open in warmer weather to allow fresh air inside always helps (unless someone is burning something nearby outside!)  I prefer to visit in the area of your home without carpeting and sit on non-upholstered furniture.  Wood, plastics, and leather are best.

Staying overnight:  If we are invited to stay overnight then we will either bring our own linens, blankets and towels, or ask that you wash and dry everything in fragrance-free detergent and softeners (including dryer sheets).  Please replace a moldy shower curtain liner with a new one!  I will bring most of my own food and hand soap where possible.  Providing non-cured, non-smoked meat cooked only with salt, plain oatmeal, plain salad-type vegetables or zucchini/cauliflower without seasonings will be a HUGE treat!  I will always bring the extra condiments and food that I can tolerate.

Yeah, I know that this is a lot for a busy household to prepare!  Thank you for helping us out with this stuff.  Steve and I are exceedingly grateful to have recently obtained a travel trailer which has helped manage all of this tremendously well.  (It is a lot of work for us too, I tell ya!)  Both of our families and many close friends now live out of State so travel is necessary to see them.  This single change in our mode of travel has allowed me to leave our home overnight much more safely and go places from which I have been cut off for most of the past three years.  We are humbled and blessed!  I really like having a mobile safe house that has already opened up my world, provided privacy during setbacks on the road, and aided sleep with a really comfortable bed that can be hard to find when away from one’s own humble abode at home.  Thank you Jesus!

Visiting Daniel and Elizabeth in Alabama
Visiting Daniel and Elizabeth in Alabama

 

We are hoping that the ongoing extreme avoidance and dietary strategies are temporary; some level of precaution albeit more relaxed than the current level will likely continue for some time.  How long will we need to do all of this?  We simply do not know.  We believe the Chronic Inflammatory Response Syndrome (or Multiple Chemical Sensitivity) is due to mercury toxicity and we finally have the correct treatment protocols to get me well.  I have excellent medical guidance and a proven treatment plan to follow.  We are hopeful that I will be in better health within this year!  I AM GOING TO GET WELL!!!

And that Gentle Reader, is much to celebrate!  JJ

Christmas Letter 2014

Our theme for 2014 has to be, “moving from darkness into the light.”  While the year was filled with many of our usual travels and activities, the frustration of worsening illness for me had tested everything I believed about love, faith in the Lord, and hope.  Persistence paid off, standing firm in my faith in the Lord Jesus Christ despite incredible suffering, and we are now encouraged beyond measure.  I AM GOING TO GET WELL!!!  And how about my beloved Steve?  Well he is wonderful, as always.  Here’s our 2014 briefing:

Competitive kayaking within the United States Canoe Association and related delegate activities filled the warmer months of my beloved’s calendar and provided opportunities to travel within our home state of Indiana as well as the South.  We took an annual trip for the January USCA meeting and got to see family and friends along the way; Steve travelled and camped alone for the National competition in August, bringing home a respectable finish in his surf ski and outrigger canoe despite an extra swim or two during the surf ski race!  Steve also became one of the primary firearms safety instructors this past year for classes held at our church (yes church!).  His work has been rewarding with lots of interesting projects and the promise of continued work well into next year, gratefully.  And during the lunch hour if it’s snowy, he’s leading the Exelis cross country ski pack of adventurist engineers around the grounds.  If the pavement is dry no matter the temp, he’s trading the lead in challenging cycling workouts at top speeds uphill or down . . .  On land and sea:  Go Steeeeeeve!

Quick Update on Steve’s Kids:  Christina is thriving in her work assignments in Thailand despite enduring a train wreck, adventures with her motorbike and truck (as in shifting left-handed whilst driving on the left side of the road!), and learning two new languages:  one for daily communication and another for translation work.  She is amazing!  Patrick and Kate welcomed baby Warren James Horney into the world in September and we are looking forward to meeting him this Christmas.  Two year old big brother Jackson Rees is simply adorable:  talking up a storm and even driving his own motorized vehicle around their home in North Carolina.  Yes, the car bug is definitely in the Horney genes!  (See this video for details!)  Rebekah continues her Masters studies in international education and recently got engaged to Pancho/Daniel/Francisco Anaya Diaz (don’t ya love the Spanish culture?).  She is exceedingly excited for their Chicago wedding in May of 2015; we are happy for both of them and look forward to getting to know Pancho too.  Daniel and Elizabeth are finally living in the same locale since getting married in June of this year!  Daniel successfully completed his tenure in the Marines (North Carolina) and Elizabeth graduated from West Point (New York).  They are together now in Fort Rutger, Alabama as she begins helicopter training in the Army while Daniel begins college for Physical Therapy Assistant in January.  As you can see, our hearts are full with all the goodness shared here . . . now just come and see us a bit more ya hear?  J

While much of my year focused on doctoring, testing, new treatments, and complications therein, in September my astute chiropractor from a small town practice encouraged me to get tested for mercury toxicity.  The results came back as very high.  Whoa.  We were stunned.  Additional testing has confirmed these results and helped my family doctor chart a course of treatment that should relieve most of the symptoms that have been so challenging each day of these past 3 years.  PRAISE THE LORD!!!  And just when the isolation of staying home much of the time to mitigate symptoms was taking its toll, two lovely ladies and I have joined together in a weekly Skype Bible Prayer Group.  We laugh as much as we pray, oh yeah!  I am also grateful to have continued some gardening activities in our own landscape and in the Everlasting Garden at the Allen County Cooperative Extension Office.  Keeping dirt under my fingernails from March to October is the best therapy of all sometimes!

So as we prepare to celebrate with loved ones the birth of our Lord and Savior, we are humbled and grateful for so many blessings this past year.  Even the serious stroke that my brother had in April has renewed our personal relationship as well as his walk with the Lord.  Every part of our story is ending this year with a brightness that simply was not there last year.   How fitting this is and symbolic of the Light of the World Who entered our midst two millennia ago to redeem us, to bring us into fellowship with Him for all time.

We hope you are encouraged by our Christmas Letter 2014.  We hope that you too will celebrate all the possibilities of the most important relationship in which we are invited to partake.  The love of Jesus Christ can transcend all things and bring everlasting joy to each one of us.  Oh yes!

Merry Christmas with love, Steve and Julie

Steve and Julie at Drive Austin, Texas
Steve and Julie at Drive Austin, Texas