A couple of years ago, I ordered my first bottle of CBD oil from Bluebird Botanicals. My hope is that it would take away the seizure attacks that I experienced on a daily basis as part of a serious and complex illness. The preliminary research showed that CBD oil made from industrial hemp would be legal for me to purchase in Indiana, was effective for intractable seizure disorders affecting children, and would bear few if any side effects.
I tried it. I slowly increased my dose over the next 3 weeks to the level indicated in the testimonies and research that I had found online. Then things went terribly wrong. I started to have frightful nightmares. They increased in vividness and horror then were joined by waking night terrors. These are the kind that don’t stop when you wake up! I was scared to continue. I backed down my dose, took a break, re-started and nothing seemed to bring relief. The benefits of halting or preventing seizure attacks did not outweigh these horrible side effects. Eventually I abandoned CBD oil altogether.
While medical marijuana has Cannabidiol (CBD) as an ingredient, you don’t need to live in a State where medical marijuana is legal to obtain CBD oil by itself. Medical marijuana also contains THC which is a schedule 1 controlled substance in the United States. CBD oil from industrial hemp only contains .3% THC. This allows sale of pure CBD oil in all 50 States. For me the .3% was still too much. I would later understand that I don’t even have a genetic disposition in my opiate receptors to explain my hypersensitivity to THC. Heck, I smoked pot occasionally as a young adult without any ill effects. There would simply be no explanation for my intolerance of legal CBD oil from industrial hemp.
Flash forward 3 years. I became acquainted with a company who manufactured pharmaceutical grade liposomal products. When they introduced a CBD oil product made from industrial hemp, I decided to try it again. I still suffered from daily convulsive episodes although the number of hours lost per day to them had decreased after beginning IV antibiotics for chronic Lyme disease. Seizures, tics of organic origin, non-epileptic seizures (or whatever you want to call them) were a definite neurological complication of latent Lyme disease. The episodes were less per day but not gone. I ordered a bottle.
I did not get past a single dose of the new product before suffering another waking night terror incident. Dang! The only difference this time was that the superior liposomal nanoparticle size delivered the CBD more quickly to my brain than the Bluebird Botanicals product — and for me that was not good. I returned the bottle to the healthcare professional from whom I had ordered it. And then I waited. There would be no other compelling rescue remedies to reduce my suffering when the nightly episodes came. No doctor would order medication for me to even try; I have been to the Emergency Room 10 times over these past 4 1/2 years because of wretched convulsions! Even over-the-counter Benedryl would leave me unable to function very well the next day if it did stop them (and render me too sleepy to care about anything the next day). A few herbal antibacterial supplements offered temporary relief on occasion and the reason for that will be another blog post about Small Intestinal Bacterial Overgrowth (SIBO). Neurotransmitters and hormones that can give rise to seizures are manufactured in the gut dontcha know . . .
I learned that one of the better manufacturers of CBD oil was preparing to introduce a THC-free CBD oil so I contacted the owner. I leveraged everything and asked to try a beta version of their new product. Within 2 weeks the bottle arrived in the mail. It took around 15 drops to get a significant response: their THC-free CBD oil definitely helped reduce the intensity and duration of the nightly seizure attacks. Yeah God! This benefit happened even when herxing (or reacting) to a new antibiotic used in the treatment of SIBO. Some relief came at last! I am optimistic for the benefits that I might receive when the first round of antibiotics for the treatment of SIBO are completed in 5 more days. Perhaps healing my gut will help everything as well. In the meantime I have contacted the owner again to see if I might obtain additional product; my hope is to transition from using it as a rescue remedy to having enough for regular dosing that can help prevent the episodes altogether. I may need to switch brands to get this accomplished. We’ll see.
CBD oil is legal for purchase in all 50 States of the USA. If you are frustrated with noxious symptoms especially tics, seizures, pain, depression, or anxiety, there may be hope in the use of CBD oil from industrial hemp. Please do significant research on the track record of the manufacturer, look for independent lab testing of purity/potentency/concentration of active ingredients and absence of unnecessary fillers before making your purchase, especially if online. Very likely you will not find a superior product at your local health food store as hemp seeds and hemp oil contain too low a concentration of CBD to make much difference for a serious health condition. Here is one brand that is available only from healthcare practitioners nation-wide: Colorado Hemp Oil. And this website has some good general information although note that it used to be funded by a manufacturer of industrial hemp products: Project CBD. I am not sure of its current status.
This is my story and I’m sticking to it! I am not an expert by any means just a gal trying to find some relief in an ethical, legal, and medically sound manner. Feel free to share pertinent information below. Please don’t try to sell me anything!
Take care, JJ