Sure has been a wild ride of late. Here’s a treatment update.
After almost 4 months of treatment, I have improved 28 points on the Multiple Systemic Infectious Disease Syndrome Questionnaire of Lyme Literate Medical Doctor (LLMD), Dr. Richard Horowitz! Thank you Jesus.
Lord willing, later this week I will transition from IV infusions of antibiotics from an outpatient clinic to home health care. Our insurance company denied treatment beyond 28 days, leaving us with a massive bill if my secondary insurance will not cover ongoing treatment. Since it will take several weeks to find out the verdict, we cannot keep paying $900 per treatment, 3 times per week while we wait! Hiring nurses (from a home health care agency and one in private practice) on a private pay basis plus ordering supplies and medications online will reduce the price to around $300 per visit. Planning this transition has required considerable time, stress, attention to endless details, and work! The orders are in process with many steps to follow in the next 2 1/2 days. A LOT HAS HAPPENED IN THE PAST 5 DAYS to make this happen. Thank you, Lord, that my brain has come back online just in time. Whew!
I just found out that DNA testing from Fry Labs shows that I do have the FL 1953 protomyxzoa rheumatica (a fungal infection) that can be found in 50% of patients with chronic illness. This parasite survives in the body in the impervious gel-like biofilms that also make Lyme bacteria difficult to eradicate. My LLMD has recommended a combination antifungal (prescription) and biofilm-busting (nutraceutical) protocol that he says could render me very sick for a minimum of 4-5 weeks. Most patients have tremendous recovery thereafter; gratefully I am hoping that the binding agents I have discovered will be an effective adjunct to this treatment plan and reduce the die-off or “herx” reactions. Steve and I are prayerfully considering how to proceed as we were hoping to visit family for an important event out-of-State in a few weeks now that I am “not as bad.” Please pray too! I am soooooo ready to start living again!
Working with a brilliant naturopathic physician via Skype to review my epigenetic data, lab tests to date and medical/treatment history has finally led to some nutraceuticals that I can actually tolerate. Soon I hope to add specifically formulated IV and injectable nutritionals to the home infusions (instead of driving to a clinic we were considering far from home twice per month). And the excitability of my central nervous system is starting to come down at last: generally fewer and shorter convulsive episodes every day for the past 2 weeks. This has not happened in the past 4 1/2 years until now! PRAISE THE LORD! Experimentation with an Iodine Loading Protocol has further enhanced my results. I have to think that I am on the road to recovery at last . . .
Steve and I are encouraged, humbled, grateful, and watchful as the events of these past few weeks have unfolded. I have been able to get out for a walk once per week and work in the gardens around our home some. Some of the pain and headaches that I battle every day have improved; I don’t really complain when it’s related to digging in the dirt as the sun is going down . . . I feel blessed to have had the friendship and support of a couple of friends here for rides to-and-from the hospital for treatments lately too. And we are starting to plan some of the activities again that we used to take for granted in the past: think Steve’s kayak races, the Tin Can Ranch (travel trailer), and the pup in tow as well.
Enjoy this lovely song that reflects the hope that is becoming clearer for me. I hope that if you are struggling, you will lean on the Lord, Jesus Christ to see you through and keep your eyes on the goal what ever that may be for you. He knows and loves you, cares for the desires of your heart too, Gentle Reader. There are sprinkles of His goodness all around us no matter what the circumstances. Let not the first time we recognize this as only when the healing comes. Let today, this moment be a reminder that the waiting, the “pressing on” as Lisa sings, is an important part of the journey too. Praying for you this night. JJ