No Place to Go

Steve pic of A Lori stuff 7.27.18

This morning as I watched my gracious husband take pictures of the items a family member had claimed were stolen, I realized I had no other place to go.

Who would understand the betrayal after having suffered a severe health setback trying to care?

Who would understand that every level of commitment virtually every day this entire year would end with them throwing my heart against a brick wall?

Who would know the many levels of loss that continue as I seek treatment to get my body back to baseline again?

Who would understand that grieving this failure, this dead end would rekindle the sorrow from heartaches in the not-so-distant past as well?

How does that come to any kind of closure when your heart is crying, your thoughts are heavy, your body is aching, your world is smaller, and there are piles of things to do around you?

There is only one place to go:  to the One Who grieves for my pain, Who grieved tears of living blood for the sorrows of us all:  more than I will ever know.

My Savior, Jesus Christ, faced ridicule, betrayal, torture, and unjust punishment that cost Him His life so that I may be free one day of lesser losses that come with this life.

Just gotta lie at the foot of His cross for as long as it takes until the burdens are lighter, so that I may go on even better somehow.

My joy is tiny today.  My Jesus is bigger than life itself.

Jesus, take the wheel.

JJ

The Chips Under the Bed

They should be alright after about a week in the heat, right?  Ugh.

Usually when “the bus driver” and I come home from a camping trip, we empty the travel trailer of all food that very night.  Of course it may be 3 in the morning but it all comes out nonetheless.  Not this time.  This time was very different.  The unopened bags of chips are still in the storage compartment underneath the bed and we have been home for SIX DAYS!  Gratefully the ants on the driveway have not found them yet!

I really don’t know where to begin to tell the story of our attempt to bring a family member here from out of State to visit, to maybe live with us.  This was a huge undertaking for all three of us:  a journey that began over 6 months ago that was actually cancelled the first time around.  Perhaps it will be best to unpack the situation in a few blog posts over time as I begin to recover from what was largely a failure.  But there is good news:  my Aunt is healthier, stronger, more mentally sharp, conversant, happier, and overall functioning significantly better than when my hubby, Steve, and I picked her up in Florida 8 days ago.  As for me, not so much.

Last night was one of the most horrific scenes of recent memory.  After a total of 12 hours finally getting some errands done with a late night Doctor appointment too, I had the most frightening convulsive episode imaginable.  My threshold of reactivity had been plummeting with each passing day that my Aunt was travelling or living with us.  We had taken extreme mold avoidance procedures and she was wearing all new clothing that I had specially prepared for her.  Her belongings from Florida were cleaned and secured in plastic storage bins in our garage; only doubly-freezer-bagged supplements and medication were in the house in a remote closet.  She lived in an inadequately  maintained and moldy living environment laden with the fragrances that most women like.  We took extreme measures with her stuff but never considered the detoxing of her body to be the toxin most noxious to me; her skin scent reflected several different problems beyond hygiene and no amount of bathing or washing of linens/clothing was helping me fast enough.  I crashed fast.  She, on the other hand, (in our very clean and climate-controlled home with exceedingly healthy meals, rest, and loved ones nearby) quickly regained skills and energies she had lost in the past year.

I was unpacking groceries from our local Meier when an odd feeling hit me.  The warning signs that I learned to recognize in the past when at my sickest with this complex/biotoxin illness had changed.  The odd symptoms ramped up so quickly into involuntary full-body shaking episodes that I barely had a time to get to a safe position to prevent injury.  These kinds of episodes are very dangerous!  So I was standing in front of a counter filled with plastic bags of groceries when my eyes drew in to close and all I could do was kind of lean-and-cling to the edge of the refrigerator as the convulsions began.  They went on and on for at least 20 minutes until my husband would discover me and carry me to the bedroom.  The repetitive oscillations injured my spine from one end to the other.  I could not move my body and was terrified of falling.  Trying to relieve the cramp in my right calf triggered a rebound, a worsening of the episode.  I just held on . . .

Things were no better once lying down.  The involuntary shaking traumatized my neck and my body temperature began to drop.  I could not speak when I needed to and breathing was difficult.  Time either stood still or passed along quickly, I have no idea which one.  I couldn’t even cry out my angst until much later.  Then the visual anomalies began of swirling shadowy circles on the ceiling of our bedroom.  Steve left and returned a couple of times as he tried to help figure out just what caused this and more importantly, what to do to make it stop.  He sniffed my clothing and found them to be musty.  That discovery pointed to my hours trying to get special requests for everyone at the grocery store — a water-damaged building that was problematic for me before their remodeling.  I guess it is still a problem!  My Beloved removed my soiled clothing and the amplitude of the shakes lessened.  But by then the weird, demonic-like writhing and vocalizations had already begun.  It is terrifying to endure this hell.  I prayed for the Lord to take me.  I searched for the white lights but did not find any.  Three hours went by before I could function again . . . what was left of me, that is.

Repeated biotoxin exposures had lowered my threshold of reactivity.  I was at the lowest point, last night, after doing significantly better these past 5 months.  Looking back it all makes sense:  cumulative exposures began when helping my Aunt for five hours on each of two days to do laundry and then pack for this trip in her moldy State of Florida.  It rains there every day now and she has had water damage in her condo several times without remediation.  I wore a charcoal mask during our time there but the conditions were still unbearable.  (Even Steve agreed and had some symptoms.)  Have you ever had to wear a mask in 90 degree heat and humidity while doing physical and emotionally exhausting work?  I had a stress rash on my chest, at least 12 irritated mosquito bites, soreness from dental adjustments from my Craniomandibular Specialist in town, and to deal with a cognitively impaired and severely anxious family member who still struggles in facing her brain disease.  The process was exceedingly painful, frustrating, exhausting.

In another post I will outline the procedures that we used to attempt to implement extreme mold avoidance to be able to care for a family member in crisis.  We simply could not leave her in Florida any longer.  For today, I am grateful that I did survive last night because I got to see a miracle in action.  No, it’s not only the organic lime corn chips that are alright tonight.  I am completely exhausted yet stable and have not had any episodes since she left our home around 10:00 p.m. (and I cleaned, tossed bed linens and other things out of course).  This is the first time I have been stable in 4 nights.  The miracle is that when I was able to get out of bed at 5:00 p.m., my Aunt’s friend from Michigan had arrived and was sitting with her on our patio outside.  Well hello Dean!  He was offering to drive her back home to Florida.  While I disagree with many aspects of this arrangement, I was in no position to decline a solution that could help stabilize me:  her now former caregiver in crisis.  She left with him after some dinner, some packing, some very sad goodbyes.  Our visit wasn’t supposed to end this way!

Aunt Lori with Dean at Dinner 7.12.18

Looks like the chips and me are going to be fine in a little while (as the bags are still out there in the Camplite in the driveway).  Steve is grateful for the possibility of a full night of sleep.  We shall recover.  I am grieved that things didn’t work out with my family member and for the torture I had to endure trying to care for her.  I am glad that we could give her the gift of renewed health; that I discovered where I am at with this ongoing illness; and that our Lord is there to carry us, to act, to make His presence known no matter how hot things get in our lives.  Please join me in praying for my Aunt.  Dean won’t be staying with her very long and . . . I had to let her go from our care.

JJ

Earlier Today

The salesman said that the service guy dropped the bed liner in earlier today (yesterday).  I noted that the General Manager said that they could drop in a bed liner in the truck for me for the same selling price.  There are 2 problems with this:  1)  I had just gotten off the phone with the GM about an hour ago and 2)  the bed liner the salesman was showing me was DIRTY!  There would not have been enough time to install it and it should be at least as clean as the truck in time for my test drive, right?  The salesman said that they often had old bed liners left lying around.  And since I wasn’t born yesterday, I didn’t believe him.  I took a test drive to Steve’s workplace for him and me to have a little fun with it, accepted the man’s business card, and parted ways.  It wasn’t even the year of vehicle for which I had asked and the cheap air freshener smell had given me a headache!

We are not sure if we are in the market for a new truck or not.  The added expense comes at a time of a few life transitions, the biggest one being the visit and possible moving in of my Aunt Lori very soon.  Transporting her across the country in our Nissan Frontier, towing a travel trailer, has challenged several logistical parameters even our  German shepherd pup traveled in a kennel in the bed of the vehicle.  (The cage is on order, just in case!)  Renting a full-sized truck proved to be extraordinarily expensive and it’s a bit late to arrange airline tickets.  The latter involved staging a car at a local airport, a fair amount of expense that would come from the purchase of two air fares (since she is unable to travel alone), and my hubby returning from Florida separately with the pup and Camplite.  Doable, yes, however not so easy to implement when my Aunt couldn’t decide what she wanted to do about any of her affairs.

And so we are making decisions based upon prayer, speculation, clinical judgement from my experience as an occupational therapist, delay/disinterest from my Aunt’s adult children to act on their Mom’s behalf, already considerable costs-to-date, and reading between the lines of communication with extended family at a distance.  Sadly her health continues to fail, that is for sure.  We will be in her home State soon for my next medical appointment so it made sense to begin her trial visit with us with our return trip home.  I have been very stressed attending to all of the details of this process.

Regardless, plans are still coming together except for one big one:  deciding if our Nissan Frontier King Cab 4×4 SV is adequate to make the trip.  Can we tow a larger travel trailer that is just within the specs of our tow vehicle even with the new Anderson load bearing hitch?  Can I survive in a jump seat of a King cab for a cross-country trip, modified with pillows and a step stool?  Will Elle survive alright in the 90+ degree heat in a kennel in the open air, if shaded from the sun?  I have my concerns for her!  She was born and lived as an “outsider dog” before we got her 10 years ago.  A lot has transpired since then, including her becoming a lovely house pet and indoor companion for me!  Sorry pup!

dog in truck, jump seat, German shepherd, woman and dog, travelling, Nissan Frontier, pet dog

The expense of a larger truck is considerable.  Stay tuned.  I do like the 2017 Ford F150 Super Crew 4WD . . . but I won’t be visiting salesman Jim anytime soon!  Ugh.  Next!  JJ

UPDATE 6.29.18:  No new truck at least for now!  We considered last minute airline tickets for me and my Aunt and staging a vehicle at the airport to get us home from there.  But it is time for us to come together as a family for this 3-week visit and it was my hubby who decided the best way to do that was a road trip together.  Low and behold with one day to spare, a full-sized rental truck with towing capacity became available in our city.  IT IS EXPENSIVE yet the right thing to do.  For now anyways.  :J

 

The Battery Effect

A transition was coming.  I did not know that at the time.  I longed for a change of some sort yet continued to struggle.  And then the Lord moved in a BIG WAY.  Did the man the Lord used to help me  know the difference he had made?

I was two years into the role of a divorced woman and much of the rough road had become smoother.  The Lord provided a cute condo just for me in a nice suburb of Chicago, a “little black race car,” and good job.  Physical limitations required me to work 3/4 time yet gratefully my profession of occupational therapy pays well so I could still support myself.  It was still a tough time in my life.  The stress contributed to a back injury that put me out of work without pay then right when I might default on my mortgage payment I was able to return to work.  Amazing.  And that is how the Lord provided for me during a total of 3 tough years:  just in time, right on time, and only after completely submitting to my Heavenly Husband and Father.

The Thursday night Bible study at the home of Pat and Mary was an important refuge for me during those years.  Pat brought to life the books of the Bible with detailed history and applications that made a difference for all of us.  He led us in prayer where we lifted each other up before the Father in the name of Jesus Christ; the love was palpable.  Members came and went yet were never forgotten.  Most of them knew my former spouse from years together in that living room.  It didn’t matter later on.  I am grateful that Craig led me to the fellowship that would make a difference then and even this past weekend.  Here’s why.

His name escapes me of the younger-than me gentleman who was a part of the Bible study who offered to help me with my car.  I understood that he was happily married with children and thriving in the IT field.  I needed a new battery for my Honda Civic but could not find the money for it.  Through Pat within the following week, I learned that the guy whom I barely knew had offered to pay for it!  I was grateful and humbled.  Life went on and the car worked great however I did not see this man again for many weeks on a Thursday night.  I’m sure I sent a thank you note but never got to tell him in person the difference and encouragement that came from his actions.

And then my life changed again:  my mother passed away.  I was already exhausted from the grievous circumstances surrounding her death and, at the same time, grateful that I got to see her out-of-state the day before she died.  Incredible.  Then much to the surprise of my brother and I, she had left behind an inheritance that would meet all of my needs in the near future.  Whew.  Such a paradox!  So many mixed emotions.  I had no idea; I thought she had squandered her hard-earned income that came from years working as an office manager at Hercules Machine Tool and Die in the Detroit area.  There was more leftover.  My brother and I had more to focus on than this so we each proceeded as we thought best while dealing with our childhood home, his ultimate need to find another place to live, etc.  An extended family member’s role saw to all of that for sure as my Mom’s chosen Executor of her estate.  (No, that was not me.)

So I decided to purchase a new car!  And then I felt guilty!  So I sought the counsel of my Bible study leader who taught me to enjoy the Lord’s financial blessing yet hold it lightly.  As a Christian the stuff of life has no eternal value yet we are to be good stewards of the resources bestowed to us.  I tithed then proceeded with my purchase, enjoyed my saweet Hyundai Tuscon.  Sure was nice having a good vehicle to take me to-and-from my new love interest in Indiana.  Things started looking better in some ways, in others there was still a cauldron of confusing emotions.

The gentleman who bought me the new battery for my old Honda Civic showed up sometime later at the Thursday night Bible study.  I was at the stage of purchasing the new car and trading in the old one, sharing my incredible mix of events.  The look on his face seemed to express “incredulous.”  Not sure if he was happy for me or sad.  His donation of a new battery was now in the hands of an unknown party.  The look on his face stayed with me for the next ELEVEN YEARS.  Did he know that his encouragement gave me the courage to go on with my life?  To trust in the provision ultimately of my Heavenly Father?  I didn’t think so.  And I never got an opportunity to thank this man in person; he left shortly after the end of our prayer time that night.

Eleven years later I ran into Pat and Mary at the Memorial Service of a brother in Christ:  this past weekend.  We laughed, we reminisced, we spoke of our mighty Lord and how He had restored the years the locusts had eaten in my life, twice!  (Well, probably more than that actually!)  My intended beloved, Steve, and I enjoyed a lovely time of fellowship with Pat and Mary in addition to many others who helped walk me through those important years when I worshiped at Village Bible Church; many were there on Saturday.  Before we left I had to ask Pat one more thing:  did the gentleman who bought me the new  battery ever knew the incredible blessing he gave me?  Did he understand that I really needed it at the time?  That his actions gave me the courage I would need to move on when a time of financial restoration would follow, albeit quickly?  Pat said that he did.  He said that it was a blessing for him to help me.  Sigh.  Really?  Oh Lord, I do hope so.

The gentleman’s name is Rich.  Lord, please bless Rich and his family, work, and life this day.  Let him know the generosity and goodness that you brought to me so many years ago and lead Him in your ways always.  I pray that he continues to seek you and bless others with what gifts you have given him as he did for me.  May our Lord be glorified in all this goodness that comes to any of us amidst the trials of this life.  Your fingerprint is here for me, for Rich, and for you too, Gentle Reader.  In due time for those who believe in the name and sacrifice of Jesus Christ, we shall be lifted up and made new one day, sharing in the glory beyond our wildest dreams.  Tis a decision worth making, a journey worth taking.  Thank you Jesus for Pat and Mary too.  I pray that you bless them as well for their faithful teaching and living every day for You.

1 Peter 4:8-10  Above all, love each other deeply, because love covers over a multitude of sins. Offer hospitality to one another without grumbling. Each of you should use whatever gift you have received to serve others, as faithful stewards of God’s grace in its various forms. If anyone speaks, they should do so as one who speaks the very words of God. If anyone serves, they should do so with the strength God provides, so that in all things God may be praised through Jesus Christ. To him be the glory and the power for ever and ever. Amen.

Beep!  Beep!  :J

Hyundai, Tuscon, German shepherd, garden, light pole, garden bed, Dodge Magnum, paddling gear, front driveway, holding things lightly, Christian man

A few of my favorite things in 2010 including Steve, Elle, and the blue Hyundai Tucson!

On the Cusp of Many Changes

Here’s a post from last week when I almost didn’t know where to put my focus at any given moment.  Maybe it’s time for a brain dump, prayer, and some quiet before the mayhem?

Inside

The bout of pneumonia is largely past now with occasional coughing spells and nasal rinses to get me through the occasional flare-ups.  Unfortunately this illness has exacerbated the seizure attacks when trying to go to sleep.  It is definitely time for an adjustment to my specialized dental appliances however the trip to go see my Craniomandibular Specialist got cancelled due to the pneumonia.  Oh well, the fact that it has been raining in Florida virtually every day for the last few weeks including a tropical storm this week makes me glad we were not camping in all that mess.  Ever camp and travel in hot, muggy, wet conditions with a large dog?  Yeah, it would have been a moldy, muddy mess for sure!

Outside

We are in the process of selling our Livin Lite Camplite 16 DB that has served us well for the past 4 years.  We very likely will need to accommodate one or more family members during some upcoming travel so we are pursuing the financing of a more suitable travel trailer.  This is a week of finalizing the sale of our “Tin Can Ranch” and the purchase of the new unit, Lord willing, requiring many tasks and 2 long days of travel:  one day this past weekend to scope out the new travel trailer and another day soon to go pick it up.  Travelling a total of 4 days to my medical appointments in Florida was out of the question yet 2 shorter trips over the period of a week was more doable yet very tiring.  No problemmo.  My beloved River Bear is a skilled “bus driver” too!   The cancellation of medical and other appointments this past week (because we were supposed to be out of town!) has allowed for plenty of time for rest-n-naps!  Hopefully the new owner of the 16 DB will be able to solve her delays soon as well.

Things got crazy when late Sunday night in the middle of the Memorial Day weekend we found the perfect travel trailer and price point for our situation!  Within 24 hours of the posting of the listing and us finding it, we were on the road and ultimately making an offer.  Do you think that the Lord cares about the special thingies of our lives?  I submit to you that He does.  The morning of Memorial Day that we were scrambling to take a day-long road trip to see the travel trailer, Steve sold a performance surf ski for his River Bear Racing!  We delivered it to a gentleman along the shores of Lake Erie then headed south to check out the new Camplite.  A week later it was in our driveway!  However, the timing of this transition has found us with TWO travel trailers, much paperwork, a couple of trips to the Bureau of Motor Vehicles, yada, yada, yada.   We are a little nervous but trusting the Lord that things will also be resolved in time for our first camping trip in June . . .

Family

Looks like my family member in Florida will be visiting us for most of the month of July.  It’s still a month away yet many travel arrangements and accommodations are needed to both get her here and have her in our home.  Steve and I still must practice extreme avoidance procedures (changing clothes and showering when coming home from being away) which is tough on an older family member who needs care.  We will make as many preparations as we can before she leaves her home (in a moldy State), have initial provisions for her when she arrives, and hope for the best that her clothing can be sanitized and de-fragranced so she can travel and visit with us in July.  She has many fears, concerns, demands, yet is asking to come.  That is kind of weird since she has traveled with virtually no care just a few months ago and did alright.  So I will be very busy taking care of many details.  Thank the Lord I am less reactive to fragrance and trace amounts of mold, etc., and my activity level has increased some overall these past 2 months!

Home

Getting out in the garden continues to be a great therapy for me in many ways.  The vegetables are now in the ground including a new asparagus bed . . . until the bunnies find it of course!  No worries as I am working on my rascally rabbit defense system as we speak.  Overall I am still months ahead of schedule for Spring clean-up as compared to the past 6 years battling a serious illness.  I am humbled and grateful.  When my days in the past focused on basic household chores and a plethora of medical appointments and treatments.  Was really nice yesterday to sell a piece of medical equipment that I no longer need and then drive directly to a local nursery with the cash to purchase a lavender plant!  The rains today shall nurture the earth and my garden refuge wonderfully.  Thank you Lord for the lovely view out our windows to encourage me on my recovery journey.  You are soooooo good!

I am in awe of the overall goodness of these changes happening in our lives.  Steve an I are grateful and humbled, tired and excited, stressed and energized all at the same time.  So I’ll end with my happy place that provides refuge through it all.  (Can you find the pup in the photo?)

Thank you Lord for your blessings and goodness, love and care.  Gentle Reader:  He is so good!  JJ

Front Door 6.18