The way it should be

We had planned to be in Texas to see my hubby’s family this week for Thanksgiving but it was not to be due to “the illness.”

I had hoped to get some cleaning, shopping, planning, and cooking done days ago but things did not turn out that way.  The cleaning got done at 3 o’clock Monday morning!

The special oatmeal dish that my hubby makes for me when I am recovering from seizures was to be off my special diet right now . . . until I had another episode rendering me too weak to consider anything else.

One afternoon my beloved was carrying me to the bathroom due to a neurological collapse episode and the next day we were working together after dark on winterizing our landscaping.

Alternate plans for a family gathering in Arkansas would have saved us a significant amount of driving but my In-laws decided not to change their plans; my hubby’s parents even chose not to add another “leg” onto their California-to-Texas-and-back trip as we had hoped and discussed.

Lying in bed each day this past weekend was broken up by a few meals in the kitchen, barely recovered from intractable back pain that sent me to the emergency room this past Monday.

My LLMD decided to treat my back with his chiropractic finesse despite my visit lasting 15+ minutes beyond when his timer went off.  He never does that.  I benefitted tremendously.

The new antibiotics prescribed to treat a co-infection of (chronic) Lyme disease has had the effect of increasing my most noxious symptoms instead of alleviating them.  My private pay costs increased $45 each week instead of decreasing as my treatment days diminished from 3 to 2.

The compounding pharmacy is now able to make my prescribed mineral IV treatment after declining the ability to craft the prior prescription, saving us hundreds of dollars and incredible inconveniences travelling to a clinic 2-hours from home.  My home health nurse reports that the new plan meets the criteria of her agency so we can schedule the start of bi-monthly infusions within a couple of weeks.

Two home infusions were cancelled during the transition from one antibiotic to two but my home health nurse was off sick those days that I usually received treatment anyways.

I sent an expedited check to make a payment for the medical bills on my credit card by the due date but the credit union never received it.  Someone named “John” supposedly signed for it but it was never found.  They reimbursed me for both the check and the “stop payment” fee.

I could go on . . .

If there is anything that I have learned over these 5 years of illness is that things are never as they should be.  Well actually I knew that long before 2011 from my work with PEOPLE in healthcare.  Peeps are finicky, change their minds, let you down, show up late or not at all, get sick, get on board with the program eventually, give into emotions over reason, love you anyways, or just plain old don’t care sometimes.  In the end it’s not about the individuals really.  It’s about where I am placing my trust.

A wise pastor (Bill Hybels of Willow Creek Community Church in Barrington, IL) once preached that we are to, “Trust God, Love People.”  Yes indeed.  Our ultimate hope for things turning out the way they should be should be in the person of Jesus Christ.  We are to love everyone else as unto the Lord.  Only He will never forsake us, never fail us, and deliver right on time every time. 

Alrighty then.  This rant is now over.  It is just before sunrise and my nurse will be here in a few hours to administer my care.  I seem past the bewitching hour of the nightly seizure attacks so I will probably try to get a nap of sorts.  Two bags of antibiotics tire me out so I would have needed a long nappy-poo/recovery period afterwards anyways.  I will trust that the Lord’s will will be served once again.  So before I stop making any sense at all, I will end here.

It’s probably the way it should be?  JJ

 

We must learn to let go

You must learn to let go to move forward.

“Keep moving forward” my brother, Mike, used to say when we were settling the estate of our dear mother after her death.  The attachment and meaning of each object and task made moving in any direction difficult, confusing at times, and so very final.  Then we decided to take them one at a time.  Then we decided to learn to let go . . .

The unmade necklaces which would have surely been my best work needed to be disassembled today before they were ever completed.  If I had stopped to make jewelry this afternoon then I would have never made my deadline for shipping Trinity Jewelry by Design to its new owner.  I actually tried putting the beads back on the cotton fibers before realizing that I needed to stop and it would be o.k. to let these unmade designs go . . .

wall mural, unyru paper, Indian paper, condo mural, mural on the wall, handmade mural, sun mural, recovery image, mural on wallwall mural, condo mural, mural on wall, unyru paper, Indian paper, inspirational poetry, wall poem, poetry on the wall, wall art, condo art

The 9-foot mural on the wall of my condo in Naperville, Illinois took a year to complete.  I began with sunny colors of yellow tracing paper, pastel hues of unyru papers from India, custom-stenciled golden palm leaves, a few rhinestone swirls, lettering from a local sign shop, and a very important message about the bunny trails of life being such a very important part of the journey.  “But what about the mural?” my friends would ask when moving to be with my intended beloved would take me 200 miles to the East of my happy place.  Yes, finding true love required leaving the art of restoration behind:  a different song of letting go . . .

When the pain of running my life on emptiness, stress, unanswered questions of “why?” and never having enough to make a difference anyways I finally crashed into the arms of my Jesus.  At the time I was 29 years old, single, working full time, and forever trying to finish my Master’s degree.  Then a laundrymat attendant laid out the plan of salvation and invited me to come to the table of the Lord for refreshment, forgiveness, renewal, eternal life with Him.  Later that night with tears the wasted meaningless living-for-me finally did let go once and for all . . .

The hurt of wretched divorce grieves my Lord and me, sometimes even now when I have known such goodness in my new life with Steve.  It took me years of harboring what it would take to even the score if given the chance:  holding onto the files that would prove the ways in which I was wronged.  Then I realized that the one carrying the baggage too far was me not him.  I was already forgiven years ago for my part in things.  In due time and with lightness of heart I finally learned to let go of that other person too . . .

Who could ever imagine the hellish suffering of these past three years with my head banging to and fro day after day?  Literally, I mean, with a yet undiagnosed illness that has had too many pieces to keep track anymore.  Cries out for healing one thousand times have made little difference on the surface; it’s so easy to become discouraged, to give up in motionless brokenness of the worst kind.  “Who knows if the trials will ever end?” I often wonder when up late at night.  We cannot know much about tomorrow so we must move along in faith today.  For through faith, through Divine intervention, I have had enough grace once again to get me through yet another episode, another day.  And the smallest of sweetness has come that would have been missed had it come any other way.  So to the throne of grace with great expectation I do most definitely let my achy breaky heart go . . .

For who really knows when the Lover of my soul shall return in glory or to take me home?  When He comes for me I’m sure I will recognize His name, His face, His comfort from all the days I’ve seen each of these before.  I cannot afford to be discouraged or waste much time groaning the pangs of sorrow in this life when preparation is what is now due.  It is time for letting God direct my every word, my every task:  my thoughts held captive as an offering in love nothing else.

Oh how I do pray He comes soon to take me home to His mansion with many rooms and warm embrace!  Yet in the meantime, Gentle Reader, my Jesus directs me to keep my eyes on Him from here and the one step of the path (that’s all) in front of me as I go.  Yes, I must learn to let go of more than I ever dreamed I would need to and let it all slip through my hands to be free.  My happiness depends upon this for the lightness in my spirit that will carry me to the wondrous places in life you or I may ever go.  I trust that down the road a bit it will be truly beautiful and worth lightening the load a bit don’t you think?  JJ

Jeremiah 29:11 (NIV)

11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.