The Chips Under the Bed

They should be alright after about a week in the heat, right?  Ugh.

Usually when “the bus driver” and I come home from a camping trip, we empty the travel trailer of all food that very night.  Of course it may be 3 in the morning but it all comes out nonetheless.  Not this time.  This time was very different.  The unopened bags of chips are still in the storage compartment underneath the bed and we have been home for SIX DAYS!  Gratefully the ants on the driveway have not found them yet!

I really don’t know where to begin to tell the story of our attempt to bring a family member here from out of State to visit, to maybe live with us.  This was a huge undertaking for all three of us:  a journey that began over 6 months ago that was actually cancelled the first time around.  Perhaps it will be best to unpack the situation in a few blog posts over time as I begin to recover from what was largely a failure.  But there is good news:  my Aunt is healthier, stronger, more mentally sharp, conversant, happier, and overall functioning significantly better than when my hubby, Steve, and I picked her up in Florida 8 days ago.  As for me, not so much.

Last night was one of the most horrific scenes of recent memory.  After a total of 12 hours finally getting some errands done with a late night Doctor appointment too, I had the most frightening convulsive episode imaginable.  My threshold of reactivity had been plummeting with each passing day that my Aunt was travelling or living with us.  We had taken extreme mold avoidance procedures and she was wearing all new clothing that I had specially prepared for her.  Her belongings from Florida were cleaned and secured in plastic storage bins in our garage; only doubly-freezer-bagged supplements and medication were in the house in a remote closet.  She lived in an inadequately  maintained and moldy living environment laden with the fragrances that most women like.  We took extreme measures with her stuff but never considered the detoxing of her body to be the toxin most noxious to me; her skin scent reflected several different problems beyond hygiene and no amount of bathing or washing of linens/clothing was helping me fast enough.  I crashed fast.  She, on the other hand, (in our very clean and climate-controlled home with exceedingly healthy meals, rest, and loved ones nearby) quickly regained skills and energies she had lost in the past year.

I was unpacking groceries from our local Meier when an odd feeling hit me.  The warning signs that I learned to recognize in the past when at my sickest with this complex/biotoxin illness had changed.  The odd symptoms ramped up so quickly into involuntary full-body shaking episodes that I barely had a time to get to a safe position to prevent injury.  These kinds of episodes are very dangerous!  So I was standing in front of a counter filled with plastic bags of groceries when my eyes drew in to close and all I could do was kind of lean-and-cling to the edge of the refrigerator as the convulsions began.  They went on and on for at least 20 minutes until my husband would discover me and carry me to the bedroom.  The repetitive oscillations injured my spine from one end to the other.  I could not move my body and was terrified of falling.  Trying to relieve the cramp in my right calf triggered a rebound, a worsening of the episode.  I just held on . . .

Things were no better once lying down.  The involuntary shaking traumatized my neck and my body temperature began to drop.  I could not speak when I needed to and breathing was difficult.  Time either stood still or passed along quickly, I have no idea which one.  I couldn’t even cry out my angst until much later.  Then the visual anomalies began of swirling shadowy circles on the ceiling of our bedroom.  Steve left and returned a couple of times as he tried to help figure out just what caused this and more importantly, what to do to make it stop.  He sniffed my clothing and found them to be musty.  That discovery pointed to my hours trying to get special requests for everyone at the grocery store — a water-damaged building that was problematic for me before their remodeling.  I guess it is still a problem!  My Beloved removed my soiled clothing and the amplitude of the shakes lessened.  But by then the weird, demonic-like writhing and vocalizations had already begun.  It is terrifying to endure this hell.  I prayed for the Lord to take me.  I searched for the white lights but did not find any.  Three hours went by before I could function again . . . what was left of me, that is.

Repeated biotoxin exposures had lowered my threshold of reactivity.  I was at the lowest point, last night, after doing significantly better these past 5 months.  Looking back it all makes sense:  cumulative exposures began when helping my Aunt for five hours on each of two days to do laundry and then pack for this trip in her moldy State of Florida.  It rains there every day now and she has had water damage in her condo several times without remediation.  I wore a charcoal mask during our time there but the conditions were still unbearable.  (Even Steve agreed and had some symptoms.)  Have you ever had to wear a mask in 90 degree heat and humidity while doing physical and emotionally exhausting work?  I had a stress rash on my chest, at least 12 irritated mosquito bites, soreness from dental adjustments from my Craniomandibular Specialist in town, and to deal with a cognitively impaired and severely anxious family member who still struggles in facing her brain disease.  The process was exceedingly painful, frustrating, exhausting.

In another post I will outline the procedures that we used to attempt to implement extreme mold avoidance to be able to care for a family member in crisis.  We simply could not leave her in Florida any longer.  For today, I am grateful that I did survive last night because I got to see a miracle in action.  No, it’s not only the organic lime corn chips that are alright tonight.  I am completely exhausted yet stable and have not had any episodes since she left our home around 10:00 p.m. (and I cleaned, tossed bed linens and other things out of course).  This is the first time I have been stable in 4 nights.  The miracle is that when I was able to get out of bed at 5:00 p.m., my Aunt’s friend from Michigan had arrived and was sitting with her on our patio outside.  Well hello Dean!  He was offering to drive her back home to Florida.  While I disagree with many aspects of this arrangement, I was in no position to decline a solution that could help stabilize me:  her now former caregiver in crisis.  She left with him after some dinner, some packing, some very sad goodbyes.  Our visit wasn’t supposed to end this way!

Aunt Lori with Dean at Dinner 7.12.18

Looks like the chips and me are going to be fine in a little while (as the bags are still out there in the Camplite in the driveway).  Steve is grateful for the possibility of a full night of sleep.  We shall recover.  I am grieved that things didn’t work out with my family member and for the torture I had to endure trying to care for her.  I am glad that we could give her the gift of renewed health; that I discovered where I am at with this ongoing illness; and that our Lord is there to carry us, to act, to make His presence known no matter how hot things get in our lives.  Please join me in praying for my Aunt.  Dean won’t be staying with her very long and . . . I had to let her go from our care.

JJ

So you want to go camping do ya?

Camping is not for the faint of heart, even in the “posh” conditions of a travel trailer! Having a trusty companion or two and the right tools can make the difference between success and failure.  For me that would be the guard dog, handy husband, jugs of water, and very long extension cord.  Gotter done!

Camplite, husband, kayak, Scorpius, rack, roof, outrigger, canoe, man, towing, camper, travel, trailer, home, Nissan, Frontier, camping

I am grateful for our Camplite (aka Tin Can Ranch) that allows me to go places with my hubby and stay in a mobile “clean room,” away from the hazards of hotels and limited choices of restaurant menus.  Preparing for these trips is an incredible amount of work all by itself:  just about the same amount of tasks need to be completed for a week-long vacation as an over-nighter.  I have a sense that we won’t be doing the latter again anytime soon!  Regardless, I rallied the strength and off we went with great expectations to the Illinois Beach State Park north of Chicago, Illinois.  I was to attend the day-long Designs for Health:  A Prescription for Wellness seminar at the beautiful Chicago Botanical Gardens and Steve was to tackle the surf along Lake Michigan.  Later we planned to meet up with some friends for dinner on the north side of the city before heading south around the city and back to NE Indiana into the wee hours of the morning.  Whilst the latter plans were complicated by severe rain and traffic issues for all parties, it turned out to be an “easier” part of our itinerary!

Our wacky adventures began soon after we pulled into the campground along the shores of Lake Michigan.  Up first:  hooking up the electrical.  Not!  For the next several hours we battled a worn breaker system that kept tripping no matter what we did to avert the issue.  Was it the breakers in the trailer that were overloaded?  The eroded contacts in the refrigerator switch plate that requires a few minutes of babysitting to turn on? Figuring this out required much problem-solving with wifey-poo dressed in early Spring/Winter garb, very weary from travelling and following orders from the friendly but not-so-helpful front office staff.  To sort this out, we ran our extension cord to a few adjacent sites to no avail.  Very likely it was the campsite breakers that were worn and not our camper since everything had worked fine at home the day before.  Too bad the real on-site expert had the day off!

Finally my husband figured out two work-a-rounds:  1)  hooking up our battery charger to the battery to run the water pump and 2) running our 100-foot extension cord to a 3rd campsite and through the kitchen area window to run the electric heater.  In the morning I disconnected the heater and attached it to my blow dryer to make some order of the bed head that came with the morning.  What about just taking a shower you ask? Well don’t!  That didn’t happen . . . for me anyways.  The campground did not have water or sewer hook-ups so we had filled our modest, 30-gallon water tank at home thinking it would be enough for bathroom needs with quick “Navy-style” showers.  We were wrong. Steve did get a shower . . . then a paddle in Lake Michigan . . . then another shower in the only open bathroom facilities in the campground.  I made the most of things and had a quick cooooold sponge bath before heading out to the seminar!  Oh well.  I was definitely AWAKE for the day of lectures to follow!

A few other tidbits further enhanced our experience such as Steve gashing his lip on the rusted breaker box in the midst of trying to figure out things!  So glad for our first aid supplies!  Then there was the brand new hot water pot that I had plugged in through the cord dangling in kitchen window to make some hot tea ended up not working; I used an electric frying pan instead!  Additionally I took every remedy that I had with me to ward off noxious symptoms from ongoing illness and to consume before-and-during the seminar (with copious amounts of food-n-bacon, of course).  And guess what?  The seminar was incredible!  Steve had a great time paddling our outrigger canoe 7 miles along the lake shore and the pup got in a few long walks at the beach.  Cool beans.

woman, seminar, Chicago Botanical Gardens, flowers, planter, Designs for Healing, sitting

Forrest Gump logic applies very well to almost all of our camping experiences these past 3 years:  you never know what you are going to get!  This trip was no different.  We are now home and pooped.  Massive loads of laundry and cleaning are now underway to decontaminate everything for our next adventure having something to do with trailer demolishen derby races or something.  With our luck, let’s just hope we don’t end up on the figure-8 track.  Should be fun.  Or maybe not.  I’ll be sure to letcha know.  Eeeeek!

JJ